If it was not a seizure, I would guess it was because of the heat. Grace will get sick if it is even 75 F outside, for even 1/2 hour. It really makes life...
I don't really know if this will be of any help to you, because you have probally already tried it. Have you put him on a high fiber diet? Gracie constanly...
-Anne- Austen has the same problem. Our neuro suggested upping his carnitine dose. We have found this to be helpful, although you'll have to put up with the...
Hi all! Noah (7), has always awakened between 6 and 7am. Just recently he has been fighting me in the mornings when I try to get him out of bed for school....
Anne, I was wondering were are you located. We are in Saratoga, NY and our dr. suggested possibly seeing dr. korsen if we couldnt get into NYC Jennifer...
Us too! Nicole never gets out of bed when she needs to. Last week she was tardy 4 out of 5 days. She is in 3rd. grade and I know that the work load isn't all...
Sarah, the fact that it was relieved when he sat down made me think that it may be blood pressure related? I cannot stand in line for more than a couple of...
Ann Morgan had many yrs. of bowel problems. We use Reglan and it has helped her tremendously! She is on reglan and miralax. If she gets a little backed up we...
In a message dated 6/1/2004 8:39:26 AM Central Standard Time, slhwatkins@... writes: Could this mean the disease is progressing? Has anyone else seen...
Roomies- We are now home finally, but life isn't.... I lost our baby "Samantha Kate", before returning home from the 3 week trip. Days following the...
This has happened to Grace, alot for many different reasons. First, if she gets overheated she gets sick for at least that day (sometimes the next day too.)...
Stephanie, ... Emilie does this in streaks. She'll have trouble waking up and seem extra tired for a few days or a week or so, sometimes falling asleep again...
So sorry to hear of the news of your health problems and your loss. Being pregnant myself, I cannont comprehend how you must feel. Be assured you have my ...
After cathing some through the weekend we found Asenath only retained about 20-75 cc. after urinating so the docs said it was ok to stop all caths!!! I am...
((Ann)) I had no idea that all that had happened! You are certainly in my prayers double time. Is there anything at all I can do for you?? Big Hugs, Allison...
Ann, words can't express my pain for you and how horrible this past week must have been for you. If you need to talk to someone personally feel free to give...
Asenath always sleeps in. This morning she woke at 11:30 AM and her normal time to bed is between 9-10 PM. She will sleep even later if the noise level is...
Please do continue to be a part of our group. I am sure you have a wealth of knowledge to offer and hopefully we can offer you continued support as well....
Great news Darla. It is so nice to hear she no longer needs caths. My heart broke when I heard what you had to do. I am sure she will be overjoyed. Carrie...
Dear Ann- I am so sorry to hear of your loss of your sweet baby! Please accept our condolences and support! I hope you get better soon from these recent...
Amm. I am so sorry to read this message. My heart goes out to you on the loss of your baby. I know this is very difficult for you. Now your symptoms are...
Ann: So sorry to hear about your pregnancy. I know you were worried a few weeks ago. Take time to rest and recharge and we are thinking of you and your...
Brian Sorensen
sorehead@...
Jun 1, 2004 6:35 pm
41132
Darla, That is great news. I am sure you precious girl will be very happy to not have to go through that anymore. Dawn...
It is hard to tell esp. with the nonverbal thing going (same with Morgan). I always jsut listen to her body.If she is very tired for a week or two I just let...
Terrific news! So glad that she doesnt have to go through that any more.. and you of course! Kimberley ... __________________________________ Do you Yahoo!? ...
I am so happy for you. Yeah. What a relief. I hope it continues to go well. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same...
Hey we just got another set of Will's labs back, and his Carnitine is dropping. The first time it was run in January his Total was 22 Free was 13 and...
Sorry, I really do not know how low is too low on the Carnitine. I do know, however, that a carnitine defficiancy is actually pretty serious if it is long ...
Sarah, Is your son on carnitine supplementation now? I have severely low carnitine levels and am on IV Levo-Carnitine. Too low of carnitine levels can lead...
Just a little note to say thank you for all your help. You guys saved Grace from pain today. She went to her GI for her normal endless GI problems. While we...
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