Hi guys, Another quick question. Asher got better for a couple days and now has a weird fever. It's like it's only the upper half of his body. He's 102.8 and...
Sorry that I really do not have any help for you. But, lately all we can get Gracie to take is milk or some other drink. It is very good for them to drink a...
I do not know too much about complex 1 in particular, my child has nonspecific mito. But, Dr. Cohen has literaly saved her life. She has some muscle ...
This is what Grace gets when she is too warm. She does have autonomic dysfunction. On our last 80 degree day, she even had prickly heat from being outside....
The reason I asked is I believe your granddaughter is a patient of Dr. Dickson. I think I was at the office when your granddaughter was there. It was through...
Actually, my older son, Sam (non-mito but has primary immune deficiency) has serious difficulty with sinus infections. I know some, including me, out there ...
Carrie, Does your daughter ever get only hot from her waist up and cool from her waist down? That's what was so weird about my son. Also, we were outside...
I do not think I have ever checked her lower trunk. But, we always keep her in the shade because of her heat problems and she still gets sick. It has even...
One of my other children (no mito, but never tested) has had recurrent sinus infections since she was about 10 months old. It has even puzzled her allergist,...
I think zach gets a lot of them, but, zachs ped swears that kids under a certain age sinuses arent developed before a certain age. I myself on the other hand...
Joey who just turned 5 years old get sinus infections at least 9 times a year. He has a very hard time getting over them. Sometimes it takes two rounds on...
We made it to DC for the skin biopsy and DNA testing this week. As we the 6 - 8 weeks for results we will be rounding off her testing with an MRI at months...
My 5 yr old, Caden has severe pancreatic insufficiency. He has Glutaric Aciduria II and MCAD. Krystena Richards ... From: wulfluvr1 To: Mito@yahoogroups.com ...
Katie is 6 and has had sinus infections for four years. At the first infection, we were told that she did not have sinuses and so she did not have an...
I have been wondering the same thing. Nathan (4 yo) has had more sinus infections in his life than we can count. He frequently gets pneumonia along with...
I have noticed this with Zipporrah and Asenath. It is the strangest thing to feel heat from the upper body and freezing cold on the lower, or even stranger to...
Have you tried sinus/nasal washes? They are supposed to work for some people. Did not work for Katie but.... The sinus surgeries (two of them) have not...
I have been diagnosed with sinusitis as well from a MRI many years ago but never have been treated much for it. I think I had a round of antibiotics for it...
When my daugher gets a sinus infection, we are able to tell without any test. Of course everyone is different, but for her the first sign is black and blue...
Hi, I don't know if I might be of help here, or if I might even be repeating myself. But I have the same problem as your daughter - that I don't make ...
Tammy, Have they checked his IgA? Have they checked his IgG subclasses? Have they seen how he responds to the pneumovax/prevnar vaccines (that checks if his...
Hi Darla, I don't know whether to be glad someone else has experienced this or not (LOL). Prior to this, the "only" autonomic problems I've seen with him are...
... I know that I too have dysautonomia,and I myself will be hot and sweating from the waste up and my feet and legs will be freezing. I think it has to do...
... My youngest Molly (still undiagnosed) had malabsoprtion d/t sensitivities to wheat, peanut, egg and milk. We have removed these foods from her diet and her...
... Morgan has battled sinus infections her whole life. She does have neutropenia (low white cells). She recently has been daignosed with immune def. I have...
I too have had it dx'd by mri. Well for me its as easy to dx a sinus infection as it is a uti since i've had so many. I know my first signs are usually mucous...
Alex and Evan (unspecified mito) have cold, sweaty hands and feet at times. They both have Raynaud's. With Raynaud's your hands can become numb (which might...
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