Sheldon's muscle biopsy was in December. He didn't seem to have a lot of pain and the recovery period was only a few days, he did well with it. He's also 2...
Why was Asenath put in? Best wishes for your family. Hopefully now Zipporrah will get what she needs and eliminate some of your stress. Hope everybody has a...
hi mysty, just to let you know my 4 year old daughter got her biopsy done by dr. kosnik at children's hospital in columbus. he froze it though and sent it to...
Sharon, I bet you will still be able to have Hailey wear her fru fru dress. When Gracie had her biopsies done (muscle and liver wedge) she was only down for a...
The mito cocktail has literally saved my daughters life. Her liver was deteriorating so fast and within a few months of the cocktail the damage has stopped....
Best wishes that all goes well. Why are they fighting the skin biopsy, those are pretty routine? You would think they would rather pay for that then the ...
Hi Darla, Im so sorry to hear they are both not improving. Perhaps the Ng tube will help with Zipporahs feedings for short term. We will keep them in our...
Abbey is three and she has been on a "cocktail" for a little over a year now. In this time she has started walking, can hold a cup and suck from a straw, is...
I would suggest that you immediately contact your dr and get a letter faxed STAT to the PTs. Who referred you to the PT? I would also advise you to contact the...
Sure, all the information I can get is worth while. I try to look at everything. Please fill me in on your exp. It isn't just about where to go, but who will...
Sure, all the information I can get is worth while. I try to look at everything. Please fill me in on your exp. It isn't just about where to go, but who will...
Brandy was seen by Dr. Gregory Barnes and he is real good friends with a doctor in Alanta. Ga... they was really awsome with her ... she was not sore or ...
In a message dated 3/30/2004 8:56:12 PM Eastern Standard Time, honeybear50317@... writes: When I give her the meds she has no idea of how to swallow them....
Whoops! A little behind on my mail! I am sorry to hear that both girls are in the hospital, but hopefully they will get the intense care that they need> I am...
I talked with Billy's school and shared this information. They were asking me where your information came from. Could you post it? Thank you Twana ... the...
Yes, My son, Asher, has had elevated pyruvate levels the only 2x that it's been checked. Shoffner is also investigating the possibility that he has a partial ...
In a message dated 4/1/2004 8:35:05 AM Pacific Standard Time, gardn02@... writes: I would suggest that you immediately contact your dr and get a letter...
Hi My son has been on Carnitor, riboflavin and coenzyme Q10 for 5 months I am curious with other mito children how long it took for results. My son is starting...
Well - it's all done - our almost 2 year journey with cochlear implants came to an end on Monday when Dr. Miyamoto took Jacob's implant out. The surgery went...
Davone, I have a very good friend whose daughter was born with only a brain stem. She is a twin and her and her sister had twin to twin transfusion. At day...
Darla, Hang in there. We're praying for you guys. Geri-Anne and Wyatt, complex I- -- In Mito@yahoogroups.com, "Darla Klein" <honeybear50317@m...> ... ...
In a message dated 3/29/04 4:27:38 AM Pacific Standard Time, ... You ABSOLUTELY have a right to ANY AND ALL medical records, notes, reports, lab results, and...
In a message dated 3/29/04 4:27:38 AM Pacific Standard Time, ... It does if they have something to hide. They did that with my daughter's medical records for...
In a message dated 3/29/04 4:27:38 AM Pacific Standard Time, ... Thanks, I will definitely go in armed with information this time! 5th and 6th (and 6th) grades...
muscular dystrophy association is mda. mito is one of the 40 neuromuscular diseases that falls under the mda umbrella. www.mdausa.org we are one of their...
A. C.
beaniex5@...
Apr 2, 2004 3:58 am
39278
Hi Davonne, My son was diagnosed 5 1/2 years ago with, epilepsy, reflux, failure to thrive, developemental delays, and white matter disease was diagnosed...
Hello: Wondering if anyone can point me in the right direction here. Hailey is very tall & now 46 lbs, Brenna is 36 lbs. They are to tall to fit in the...
Hi Kerry, This might be a bit pricey.. we are looking at it ourselves... you might be able to get them seperate Kimba wheelchairs/strollers.. whatever you want...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
