All of our hearts and prayers are with Andrew and Allison. Our Love, Misty Marc Mik Brie and Abby VisibleWorship@... wrote: this was posted this morning...
To Allison and Andrew We are praying for healing and peace for you Love The Clark Family Carrie Clark mom to Colby,13,COXIV,LCHAD,ACC,ADHD ,hypothroidism and...
Don't apologize for going on. It was fun to hear about the party. You just got me thinking that we don't have Leah on video. We've watched videos when the...
Brian Sorensen
sorehead@...
Mar 1, 2004 5:05 pm
38136
I found a computer at the hospital parent library. Shawna has told you a bit of what is going on so I will go form there. The nephrologist said that they don't...
Dear Allison, Just wanted to take a quick minute and wish you a very HAPPY BIRTHDAY!!!!!! I hope you have a wonderful day. Kathy, grandma to Audrey, 30 mos...
I will be interviewed by my local newspaper's health reporter on Wed. morning March. 3rd at 10 a.m. about mitochondrial diseases. If you would please pray...
Curiously, our daughter bends her toes back and forth and indicates discomfort. Because she is a high pain tolerance and the way she does it we presumed it to...
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, March 1, 2004 Time: 7:00PM - 8:00PM MST...
Mito@yahoogroups.com
Mar 1, 2004 11:02 pm
38145
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, March 1, 2004 Time: 9:00PM - 10:00PM EST...
I was wondering what the different meds Iowa girls have been able to get covered through Medicaid. Have you been able to get COQ10, Vit. E, Vit. B12, or...
Darla, We do not live in Iowa, but have medicaid, We have gotten q10 and Carnitor covered. The carnitor was the easy one. Just a letter from our doc did it.The...
I just want you to know that I am praying for comfort and care for Andrew, and Audrey and families. This is a difficult circumstance I'm sure. I know from...
Hi, my name is Tina and I am new to the group. I have a 3year old son who until recently was diagnosed with a Fatty Oxidation Disorder (SCAD to be specific)...
Hi all, Doesn't Audrey just look like a doll in these pictures? These are some of the pictures I had told you about, at least I think I did. They were taken on...
Kathy, you have such a beautiful family, you are always in my thoughts and prayers!! Audrey is so adorable!! Wayne and Stacy Block Mommy and Daddy of ~Gentry...
Wow, what a beautiful bunch of kids. Thank you for sharing these pics of them. I have been thinking and praying for her a lot these last couple of weeks. It...
hi all, just wanted to let you know me and baylee are going on our local tv channel here in zanesville,oh on march 15th to do a spot about mitochondrial...
Hello to everyone Just wanted everyone to know that Julie Beckett is coming to talk at our Special Needs Support Group here in Burlington on Thursday March 25,...
sei1126@...
Mar 2, 2004 6:56 pm
38159
We had CoQ10 approved but at the time we were getting CoQ10 from GNC and they could not bill Medicaid. So, that did not work. So, presently we are paying for...
sei1126@...
Mar 2, 2004 6:58 pm
38160
Our next trip is scheduled for April 25-28th unless something happens to cause a sooner trip. We are glad for the break. Hope someone is going as it has been...
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