Shirley, I also listened to it and found it very encouraging. It was encouraging to hear from a family with such a strong faith and how they dealt with it....
I had ask a question on Sugar levels and got some wonderful responses. This morning someone suggested Dysautonomia. I read alittle about it this morning and...
My daughter has had urinary retention for about 3 yrs. She can go up to 48 hrs without peeing...says she just doesn't feel like she has to go. And then when...
Make sure it was the latex first, before you worry. A lot of people are not allergic to the latex, but the powder in the glove. If you are not sure they can...
Hi Kim, I agree with you totally. My girlfriend may have some ideas on how to get more information on their broadcast about mito dz. She had a situation that...
Here is the site address if you want to listen to the interview. Once at the site, scroll down to Jan 27, 2004 and push link to listen to program of that day...
Shirley and Kim, Excellent! You should have told me I would need a kleenex though. I shared it with several families I know. The message was right on in so...
Hi Allison, Glad you enjoyed it. I just put the link on for our mito group to make it easier for them to find if they want to listen to it. I liked it enough...
hey saw no one else was answering so I will throw my two cents in... yes it does sound like joe is dealing with dysautonomia. The autonomic system controls...
Kass, It sounds like maybe he just has a small tear in his rectum and as long as the blood is bright red in color and he's not continuing to have any rectal ...
I believe you need to be alarmed when the blood is brown or very dark red, with black stools. This means it is digested blood, and he is bleeding internally....
Kass, I am glad that you are going to see someone today. It sounded like a lot of blood to me. Fissures are common in kids with Crohn's--my nephew gets them...
Does anyone elses child have cynotic episodes i know its been brought up in here before I Just can't remember who. Zachary was at soccer the other day and i...
Hello all! I just have one silly question today. Gracie is having her G tube changed into the Mic Key button on Tues. Of Course she has to make this ...
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, February 2, 2004 Time: 9:00PM - 10:00PM EST...
Mito@yahoogroups.com
Feb 2, 2004 2:02 am
37312
We would like to remind you of this upcoming event. Weekly MDA Chats and Special Guest Announcement Date: Monday, February 2, 2004 Time: 7:00PM - 8:00PM MST...
Mito@yahoogroups.com
Feb 2, 2004 2:02 am
37313
carrie, jess has had a mic-key and now has a g/j tube. its so easy to change to a mickey. they just pull out the peg tube and top disk, then they slide the ...
I don't think it will matter. They can burn off any extra skin growth. My son's tube leaks a lot around the stoma. I use Balmex daily to prevent soreness. This...
I have really read up on Dysautonomia tonight, it really sounds like Joey. Things that I have really been wondering about, kinda make sense now. In the...
Tamara its just a matter of observation, like so many neurological diagnoses. They can only treat symptoms but they can no cure it...you understand that this...
My son has gone to MDA camp for three years. It is an amazing experience. Every child deserves to have the camp week he does. He has been lucky to have had...
A. C.
beaniex5@...
Feb 2, 2004 3:28 am
37319
Did your children receive their DPT/DaPT shots as infants?? Arlene Darla Klein <honeybear50317@...> wrote: Well, we got our swabs back indicating pertussis...
A. C.
beaniex5@...
Feb 2, 2004 3:33 am
37320
Lori, I am glad she is doing so well! How is Daniel and Christian??? Arlene Lori Cutillo <lfcutillo@...> wrote: Arlene, The little girl you are...
A. C.
beaniex5@...
Feb 2, 2004 3:37 am
37321
Another good site is http://www.ndrf.org I have two children with Dysautonomia. Sandra-Kay aged 10 years and Amy aged 22 years. Although both girls tire more...
You can go to a medical supply pharmacy and get tubular dressing. it is circular and you can put this around her belly to hold the thing still. It has ...
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