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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Messages 28565 - 28595 of 98732   Oldest  |  < Older  |  Newer >  |  Newest
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28565
Deb, Worried about ME! My oh my-we all are so well trained to "worry"! Dear Ada was sick again with..., the flu? Not sure lots coming out both ends. The rest...
PINE LAKE TOWNSHIP
krebscycle99
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Apr 1, 2003
1:00 pm
28566
... Thanks for sending this. I will burn up the phone lines today. Stephanie ... to delay marking up the bill until after Easter, Congressman Castle, Chairman...
krebscycle99
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Apr 1, 2003
1:09 pm
28567
Hi..I had a rough day yesterday. If you want to read about it hear it is. If not thats ok but does anybody know of a lab that does Interleukin 10 and ...
LILQT4U1984@...
cfsgal18
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Apr 1, 2003
1:21 pm
28568
Allison, So sorry you have not been feeling well. Know that I am thinking of you and sending up lots of prayers on your behalf. Hugs, Lisa Horsley ... From:...
Tommie Horsley
bulldoggmom
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Apr 1, 2003
3:26 pm
28569
Cara, You did ask about markers so you're not going crazy! You don't think the markers smell affects him? Me and some of my family have such a hard time with...
Linda
joelinda@...
Send Email
Apr 2, 2003
1:29 am
28570
Allison, I am sorry you have have to keep going through so much pain and exhaustion. It definately has been an exhautive raod for most of us too. I know that....
thefiveofus02
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Apr 2, 2003
1:29 am
28572
Hey My son Colby is 13 and is only 49 inches tall. The last 2 inches grown in the past 2 months. We found out his thyroid wasn't functioning. He is sick ...
CARRIE CLARK
mitolayne63
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Apr 2, 2003
1:29 am
28573
THE DIFFERENCES ARE OBVIOUS. We like things. They fixate on objects. We try to make friends. They display attention seeking...
CARRIE CLARK
mitolayne63
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Apr 2, 2003
1:29 am
28574
Linda, whew! i did mention the markers! ;) i can't find that post though. i'm afraid my computer is going to crash - right now the screen is flashing colors...
C. Waller
wallerworms
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Apr 2, 2003
2:37 am
28575
Thanks for the welcome!!!I havent been able to get back online here since I posted. Wow......so you have deciede to homeschool your daughter, I wonder if that...
scjilevesque
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Apr 2, 2003
3:00 am
28576
Dear Shirley, My son Mitch started showing signs of mito about age 6 1/2. Very subtle at first but definately more so over the past year and 1/2. He does...
hilandgang@...
hilandgang
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Apr 2, 2003
3:49 am
28577
Good luck, Ruth. Hope the testing is helpful and allows some peace of mind and positive interventions. Virginia, Emma's Mom...
Ginny581@...
Send Email
Apr 2, 2003
12:56 pm
28578
Thanks so much. It's a small world. I do remember you and Morgan. How is she doing? Allison...
LILQT4U1984@...
cfsgal18
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Apr 2, 2003
1:50 pm
28579
Cara, Thanks for the post. Sounds like you went down a long winding weary road with the trying to figure out which foods bother you deal. I agree that it...
rebecpeck
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Apr 2, 2003
1:59 pm
28580
Stephanie, All sugars; honey, fruit sugars, milk sugars, tree syrups, etc. Both Trevor and I get panic attacks when we eat a "typical" diet. We can't even...
rebecpeck
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Apr 2, 2003
2:09 pm
28581
Hi there! Jenny is still in the school system but recieves home bound services. Her teacher comes on Friday's. We are only working on socialization and life...
Tommie Horsley
bulldoggmom
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Apr 2, 2003
2:16 pm
28582
I am hoping someone can shed some insight on seizure medications for me. My son is on Tegretol and Topamax. He has become disabled to the point of wheelchair...
scjilevesque
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Apr 2, 2003
3:01 pm
28583
My granddaughter, Audrey who is not quite 20 months is also on Tegretol, but they have added a daily dose of Tegretol XR. That is a long lasting Tegretol and...
klboone@...
duckydolly2
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Apr 2, 2003
4:42 pm
28584
... How is she ... Allison, I wasn't sure if you'd remember us...I know that this is very overwhelming and exhaustive and you were to tired that day, and I'm ...
thefiveofus02
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Apr 2, 2003
4:42 pm
28585
Cara, I read the "whole vent". You don't vent half as long as I do. Sorry you had to go up the chain of irritation. Sounds like you know what to do, so I...
PINE LAKE TOWNSHIP
krebscycle99
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Apr 2, 2003
6:45 pm
28586
I have a question. How often do you need to get a new attachment for the g-tube? I thoroughly flush with water before and after each feeding and medication...
Darla Klein
honeybear50317
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Apr 2, 2003
7:25 pm
28587
hi, our daughter jessica has 8 different seizure types, she is 9 yrs old and up until last march she was uncontrolled on every med we could find, she has a g-j...
luvmybully2@...
stormvoyg36
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Apr 2, 2003
7:50 pm
28588
Greetings, Here is a repost and update of some information concerning the journey we have been on with our son Adrian, which I trust will be of interest to...
Howard & Brenda Savage
howardsav
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Apr 2, 2003
8:01 pm
28589
In a message dated 4/2/2003 1:47:11 PM Central Standard Time, ... our ostomy nurse said to use about one a month...we only use ours for water and medicine and...
VisibleWorship@...
worshiponlyhim
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Apr 2, 2003
8:06 pm
28590
Unfortunately we have had too much experience with seizure meds. Jamieson has the Lennox-Gestault seizure pattern and has multiple types of seizures. At his...
Dalsmith@...
dalsmith3
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Apr 2, 2003
8:22 pm
28591
Darla, We are allowed 5 attachments a month by our insurance company. We use one a week due to his immune issues we are very germ concious. My trick is...
Dalsmith@...
dalsmith3
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Apr 2, 2003
8:28 pm
28592
We got a fax this morning from Dr. Cohen with the carnitine challenge results and next reccomendation. Here are my numbers: Blood(pre-dose level_ _>post dose...
LILQT4U1984@...
cfsgal18
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Apr 2, 2003
9:45 pm
28593
Hi Allison, This is really interesting. I hope it goes well. Would they consider a central line instead of a PICC line? A PICC line can be a hassle -- it's...
orrmullane@...
mom2girls939...
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Apr 3, 2003
1:15 am
28594
Allison, I had a PICC line for about 6 weeks during my first pregnancy. If you have any questions, please let me know. Sharon ... challenge results ... kidneys...
shannon16125
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Apr 3, 2003
1:18 am
28595
Darla, I boil ours for about 5 min. like we did baby bottles.The only thing is to make sure you don't let it touch anything other than the water or it will...
thefiveofus02
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Apr 3, 2003
1:47 am
Messages 28565 - 28595 of 98732   Oldest  |  < Older  |  Newer >  |  Newest
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