thanks for reminding me that i haven't done it yet will try to do it before we go on our holiday its been a simply awful month thats for sure.i am not good at...
104451
Lan
lanea001
Jun 19, 2012 10:42 am
... No my son hasn't. Here on the Big Island where i live, we don't have alot of specialists. Our sons pediatrician does or suggests as much as she can. But...
104452
Lan
lanea001
Jun 19, 2012 10:49 am
... and the serious illness of another. ... Pharmaceuticals. But i have now & will look into it. Thank you.  There are clinical trials that have been...
104453
m poole
mbpudd
Jun 19, 2012 6:57 pm
I am not sure that I can be of any help and if I understand the stool problem with your son. My daughter has very loose stools, and occasional blood in them. I...
104454
m poole
mbpudd
Jun 19, 2012 7:01 pm
nothing is more important than resting and enjoying your holiday. Keep your stress level down if you can, easier said than done for sure. I hope you can feel...
104455
Cheryl
cbremer91
Jun 20, 2012 12:55 am
We just got our first cooling vest. My son (Complex I) is 8 and is ECSTATIC because he put that vest on yesterday and felt like the energizer bunny playing...
104456
Kris Kovalcik
mkjej
Jun 20, 2012 4:20 am
3 days left to register... Having trouble viewing this email? Click here to view it in your browser. Visit our site June 19, 2012 Only 3 days left to register!...
104457
nena1294@...
julianna1294
Jun 25, 2012 8:32 pm
_ILADS - Lyme Disease Conferences Videos - Richard I. Horowitz, MD_ (http://www.ilads.org/media/videos/videos_horowitz.php?utm_medium=email&utm_campaig ...
104458
nena1294@...
julianna1294
Jun 26, 2012 1:20 pm
_Biotin Deficiency Can Cause Neurological Disorders_ (http://www.biotin.com/neurological/biotin-deficiency-can-cause-neurological-disorders)...
104459
elle_pee
Jun 27, 2012 10:50 am
One of my doctors recently told me to start taking biotin but I forgot to ask what dose so I just bought a low one. For those who take it, how much do you...
104460
nena1294@...
julianna1294
Jun 27, 2012 11:08 am
1 capsule a day of 5,000 mcg In a message dated 6/27/2012 6:50:07 A.M. Eastern Daylight Time, elle_ pee@... writes: One of my doctors recently told me...
_LSUHSC School of Medicine_ (http://www.medschool.lsuhsc.edu/epilepsy_center/appointments_pediatric.aspx)...
104463
nightsong@...
norman_stretton
Jul 11, 2012 1:57 pm
Kimi goes to LSU. Her surgery and her specialists are there. They have been wonderful to us and helped her when nobody else seemed to know what was going on. ...
104464
nena1294@...
julianna1294
Jul 18, 2012 9:10 pm
As the result of today's EEG, Julianna has now been found to have hypsarrhythmia along with the microcephaly, encephalomyopathy, cortical blindness, optic...
104465
Lisa Nerenhausen
lisanerenhausen
Jul 19, 2012 3:29 am
Wow what a schedule for you to keep on her getting her meds. Do you do this all by yourself or do you get help during the day for her care? Small prayer sent...
104466
nena1294@...
julianna1294
Jul 19, 2012 10:06 am
Hi Lisa, Thank God I do not do this schedule by myself, there are some nights, but not usually. My husband and I created this schedule after constantly venting...
104467
Lisa Nerenhausen
lisanerenhausen
Jul 19, 2012 3:01 pm
I’m glad I’m not the only fuddy duddy on this list. I don’t have a facebook page at all. I felt with keeping up with the typical emails from this group...
104468
Wgirl
steelmagnl
Jul 19, 2012 6:49 pm
Have they mention trying either ACTH or Vigabatrin (sabril)? Those are typically the "frontline" meds for hyppsarythmia. Margie, mom to Sam...
104469
nena1294@...
julianna1294
Jul 23, 2012 2:59 pm
Hi Margie, No, we haven't tried the sabril yet. Since juju's hyp has been under control, but I will bring it up to the doctor thank you In a message dated...
104470
nena1294@...
julianna1294
Jul 23, 2012 3:20 pm
_Phenobarbital : Children and Phenobarbital : Epilepsy.com/Professionals_ (http://professionals.epilepsy.com/medications/p_phenobarbital_children.html)...
Still not showing an invite to new group. e-mail at marypoole10@... please.
MaryBeth Poole
________________________________
From: Wendy Bauer...
104473
Wendy Bauer
wbauermitotony
Aug 11, 2012 1:22 am
 sent it see if it works now Wendy S. Bauer Indiana Mom to Alex  Tony 9p-deletion Mitochondrial disorder Many other diagnosis Mom to Erica Mastocytosis ...
104474
michelle ingram
michelleingr...
Aug 11, 2012 4:26 pm
I'm writing this message to you with sadness. I traveled to Madrid, Spain for a short vacation and unfortunately for me, I was mugged at a knife point last...
104475
m poole
mbpudd
Aug 15, 2012 8:49 pm
maybe I do not understand how it works, about the invitation. But, I still do not see it.
Sorry to be such a blockhead.
MaryBeth Poole...
104476
Wendy Bauer
wbauermitotony
Aug 15, 2012 9:37 pm
MaryBeth Poole  go through it this way and try to get on this way. and see if it works let me know if it did or not   ...
Reminder from: Mito Yahoo! Group http://groups.yahoo.com/group/Mito/cal General Health Tips | Free health tips article Sunday August 19, 2012 8:00 am - 9:00 am...
104479
Mito@yahoogroups.com
Aug 19, 2012 12:47 pm
Reminder from: Mito Yahoo! Group http://groups.yahoo.com/group/Mito/cal 100 Healthy Raw Snacks and Treats Sunday August 19, 2012 9:00 am - 10:00 am Notes: ...
