I hope you don't mind if I pray for her, that it will heal well, she not need it, and that this be the beginning of a different chapter for her to write. I...
104440
Lisa Nerenhausen
lisanerenhausen
Jun 13, 2012 8:21 pm
well let us know how it goes. My husband had a g tube for a year because of cancer treatment. He went in and the doctor basically just grabbed it and pulled...
104441
HEATHER EVANSSMITH
zoeyrainbow
Jun 13, 2012 9:02 pm
So the tube is gone, YEA!!!!!! Just hope she does not backslide and lose weight. They said she will be fine, leakage for a bit she has had it for years so it...
104442
Erin McKenzie-Christe...
erinmck64
Jun 15, 2012 7:45 am
Hello I am crying tears of joy right now my OT just wrote to me and told me that the Alber Efix has been APPROVED!!!!!!!!!!!!!!!!!!!! After all the bad things...
104443
Wendy Bauer
wbauermitotony
Jun 16, 2012 6:02 pm
 To all the fathers and dad's out there. Happy Father's day from the Bauer family. Hope your father's day is a great one no matter what you do with your...
104444
Florence Rodriguez
julianna1294
Jun 17, 2012 11:21 am
Same to you Rodriguez...
104445
m poole
mbpudd
Jun 17, 2012 3:02 pm
Hope you are feeling better. I would appreciate your help in getting to the facebook mito. I have a face book page, if that helps. I have it under the e-mail...
104446
Lisa Nerenhausen
lisanerenhausen
Jun 18, 2012 1:37 am
Congrats on this!!! It does take time. My daughter is in the process of getting a new wheelchair approved. As our medical supplier stated she is going from...
104447
Lan
lanea001
Jun 18, 2012 6:18 am
it's been a while since i last had post here. I am a mother of 3. 1 girl 2 boys. Both my boys are diagnosed with Mito but unspecified as to the exact. My...
104448
Lee Collins
leecol211
Jun 18, 2012 11:08 am
Hi Lani, I'm so sorry that your family is suffering with the loss of a child and the serious illness of another. Do you know about Edison Pharmaceuticals? ...
104449
debsii2001
Jun 18, 2012 11:52 am
Hi Lani, Has Wayne been checked for colitis or internal/external hemorrhoids? The color of the blood makes a difference, also. Bright red = low in digestive...
104450
erinmck@...
erinmck64
Jun 19, 2012 5:39 am
thanks for reminding me that i haven't done it yet will try to do it before we go on our holiday its been a simply awful month thats for sure.i am not good at...
104451
Lan
lanea001
Jun 19, 2012 10:42 am
... No my son hasn't. Here on the Big Island where i live, we don't have alot of specialists. Our sons pediatrician does or suggests as much as she can. But...
104452
Lan
lanea001
Jun 19, 2012 10:49 am
... and the serious illness of another. ... Pharmaceuticals. But i have now & will look into it. Thank you.  There are clinical trials that have been...
104453
m poole
mbpudd
Jun 19, 2012 6:57 pm
I am not sure that I can be of any help and if I understand the stool problem with your son. My daughter has very loose stools, and occasional blood in them. I...
104454
m poole
mbpudd
Jun 19, 2012 7:01 pm
nothing is more important than resting and enjoying your holiday. Keep your stress level down if you can, easier said than done for sure. I hope you can feel...
104455
Cheryl
cbremer91
Jun 20, 2012 12:55 am
We just got our first cooling vest. My son (Complex I) is 8 and is ECSTATIC because he put that vest on yesterday and felt like the energizer bunny playing...
104456
Kris Kovalcik
mkjej
Jun 20, 2012 4:20 am
3 days left to register... Having trouble viewing this email? Click here to view it in your browser. Visit our site June 19, 2012 Only 3 days left to register!...
104457
nena1294@...
julianna1294
Jun 25, 2012 8:32 pm
_ILADS - Lyme Disease Conferences Videos - Richard I. Horowitz, MD_ (http://www.ilads.org/media/videos/videos_horowitz.php?utm_medium=email&utm_campaig ...
104458
nena1294@...
julianna1294
Jun 26, 2012 1:20 pm
_Biotin Deficiency Can Cause Neurological Disorders_ (http://www.biotin.com/neurological/biotin-deficiency-can-cause-neurological-disorders)...
104459
elle_pee
Jun 27, 2012 10:50 am
One of my doctors recently told me to start taking biotin but I forgot to ask what dose so I just bought a low one. For those who take it, how much do you...
104460
nena1294@...
julianna1294
Jun 27, 2012 11:08 am
1 capsule a day of 5,000 mcg In a message dated 6/27/2012 6:50:07 A.M. Eastern Daylight Time, elle_ pee@... writes: One of my doctors recently told me...
_LSUHSC School of Medicine_ (http://www.medschool.lsuhsc.edu/epilepsy_center/appointments_pediatric.aspx)...
104463
nightsong@...
norman_stretton
Jul 11, 2012 1:57 pm
Kimi goes to LSU. Her surgery and her specialists are there. They have been wonderful to us and helped her when nobody else seemed to know what was going on. ...
104464
nena1294@...
julianna1294
Jul 18, 2012 9:10 pm
As the result of today's EEG, Julianna has now been found to have hypsarrhythmia along with the microcephaly, encephalomyopathy, cortical blindness, optic...
104465
Lisa Nerenhausen
lisanerenhausen
Jul 19, 2012 3:29 am
Wow what a schedule for you to keep on her getting her meds. Do you do this all by yourself or do you get help during the day for her care? Small prayer sent...
104466
nena1294@...
julianna1294
Jul 19, 2012 10:06 am
Hi Lisa, Thank God I do not do this schedule by myself, there are some nights, but not usually. My husband and I created this schedule after constantly venting...
104467
Lisa Nerenhausen
lisanerenhausen
Jul 19, 2012 3:01 pm
I’m glad I’m not the only fuddy duddy on this list. I don’t have a facebook page at all. I felt with keeping up with the typical emails from this group...
104468
Wgirl
steelmagnl
Jul 19, 2012 6:49 pm
Have they mention trying either ACTH or Vigabatrin (sabril)? Those are typically the "frontline" meds for hyppsarythmia. Margie, mom to Sam...
