Dr. Jaya Ganesh In a message dated 3/11/2011 9:16:21 P.M. Eastern Standard Time, monstersmom@... writes: Can anyone recommend a good Mito doctor in...
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Lee Collins
leecol211
Mar 12, 2011 5:25 pm
Japan, Radiation Fallout and Iodine Recommendations With the terrible earthquake in Japan, let’s send thoughts, prayers as well as assistance to the...
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slpwoman@...
rutrab
Mar 13, 2011 2:09 pm
Joe melvin, who was at St chris and is now at DuPont is AMAZING!!! Worth his weight in gold- he would be an incredible assest to your team at DuPont. One of...
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mom2twoinaz
Mar 14, 2011 3:00 am
Does anyone have one of these? if so where did you purchase it? I have found one on feeding essentials.com but am looking for other patterns/colors than a...
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Kristin Gruber
pinkstawberries
Mar 14, 2011 3:49 am
I would like to know this as well! We have a Zevex pump. Blessings, Kristin Sent on the Sprint® Now Network from my BlackBerry® ... From: "mom2twoinaz"...
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m
mandyslathome
Mar 14, 2011 4:25 pm
What is the tylenol part? Thanks!...
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mitoakl
Mar 14, 2011 4:48 pm
I second this. We have been seeing Dr. Melvin for 5 years now and we just love him! Very thoughtful and great with the kids. We are so thankful he made the...
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Leigh Thomas
leighbe119
Mar 14, 2011 5:27 pm
Missy, My son sees Dr. David Lynch @ CHOP. He is a neurologist. He is awesome!! Leigh ________________________________ From: HEATHER EVANSSMITH...
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kalars69
Mar 15, 2011 2:20 am
Thanks Patti! Kelly-Ann...
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Erin McKenzie-Christe...
erinmck64
Mar 15, 2011 6:46 am
Today we got the car air con regassed and my mobile ph was on the charger and switched off i went to send someone an sms and got a voicemail i connected it to...
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deedee2n@...
deedee2n
Mar 15, 2011 8:04 pm
Pattie, Thank you so much for that it meant a lot. I really don't agree with sending a child with mito into a regular school setting if she is tube fed and...
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Lee Collins
leecol211
Mar 15, 2011 9:43 pm
Doctors have opinions, so do moms. I home-schooled each of my 3 children during most of their school years.I started home-schooling my eldest child 30 years...
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deedee2n@...
deedee2n
Mar 15, 2011 9:50 pm
Thank you Lee it is nice to know I made a good decision n was not alone Diana Sent from my BlackBerry® smartphone with SprintSpeed ... From: Lee Collins...
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Wendy D
wendylu4
Mar 16, 2011 9:46 pm
If you are unable to view the message below, Click Here to view this message
on our website Dear friends in Texas, Do you want to meet other families dealing...
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Erin McKenzie-Christe...
erinmck64
Mar 22, 2011 3:34 am
Last night on skype chat we were talking about how ignorant drs can be and it made me think about my GP apmt and during it he was writing a plan up so i can...
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nena1294@...
julianna1294
Mar 25, 2011 12:34 am
Hi everyone, we are in the hospital... juju had sevral episodes of vomiting last night. she is clear for a uti, no noticible virus, no distress. Her color...
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amy witonsky
treetarted
Mar 25, 2011 12:35 am
That happens to me and most other mito patients, look up autonomic dysfunction......
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Shelly Lorenzen
shellylynn000
Mar 25, 2011 1:05 am
My daughter also has drops in BP. I have been told that it is due to her dysautonomia. I hope your little one is feeling better soon. Shelly...
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nena1294@...
julianna1294
Mar 25, 2011 1:21 am
Thank you Shelly Sent via BlackBerry from T-Mobile ... From: Shelly Lorenzen <shellyplus4@...> Sender: Mito@yahoogroups.com Date: Thu, 24 Mar 2011...
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nena1294@...
julianna1294
Mar 25, 2011 1:50 am
thank you for responding so quickly ... From: amy witonsky <amywitonsky@...> To: Mito@yahoogroups.com Sent: Thu, Mar 24, 2011 8:35 pm Subject: Re: [Mito]...
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amy witonsky
treetarted
Mar 25, 2011 2:24 am
Juju's mom,. From what I understand - or at least from what my genetic specialist told me there really is no cure for autonima.. nothing really that could take...
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amy witonsky
treetarted
Mar 25, 2011 2:26 am
Ps. If it is autonomic dysfunction all the fluid in the world wont help - i know i was bolused several times - did nothing for me..... I would recommend her...
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Nancy
sergeahead
Mar 25, 2011 3:52 am
Will experiences similar issues...His bp can go as low as 60/30. A year ago, we changed him to D10 45% normal saline with the addition of levocarnite every 8...
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Sarah Schmitz
qsmama06
Mar 25, 2011 4:46 am
My daughter's blood pressure runs 80's/40's normally. They had to actually decrease her parameters for normal. She does fine with those pressures though, but...
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Lee Collins
leecol211
Mar 25, 2011 1:19 pm
This could be dysautonomia, but it could also be a bit of dehydration from vomiting. Lee ________________________________ From: "nena1294@..."...
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Tracy Lengyel
tracyhope2008
Mar 25, 2011 4:26 pm
Sorry I just wanted to share that I am an adult with undiagnosed mito with symptoms mild with 2 severely affected babies that couldn't live with a 13 yr old...
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nena1294@...
julianna1294
Mar 26, 2011 3:35 pm
hugs back at you In a message dated 3/25/2011 12:46:32 A.M. Eastern Daylight Time, miqtpi@... writes: My daughter's blood pressure runs 80's/40's...
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nena1294@...
julianna1294
Mar 26, 2011 3:38 pm
Her status is the same.... not terrible. Taking all of the information into consideration. Appreciate all input. Thank you all.... juju's mommy ...
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m poole
mbpudd
Mar 26, 2011 3:43 pm
I think pain makes it low, not sure.. My daughter's blood pressure runs low and it makes her very tired. ________________________________ From:...
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nena1294@...
julianna1294
Mar 26, 2011 3:47 pm
With juju we were concerned that perhaps she had been nicked when they changed her tube in her intestines...blood loss can drop bp. In a message dated...
