Hi, we live in Orlando, FL my daughter is seen by Nemours in Orlando they are specialist in various areas in the medical field. I have been referred to go to ...
We live in Ocala, Fl and just went through the Mayo Clinic in Jacksonville for a mito specialist. We saw Dr. Dimburg who is a neor. with a specialty in...
MaryBeth: Not sure why, but my email didn't go through the last time. I'm going to try calling you with the number you left me. I know when I type in your...
Are you wondering what type of supplements and medications are frequently used to treat mitochondrial disease? Â Please join MitoAction on Tuesday, March 8th,...
My husband Jeff has sleep apnea and last night i had a sleep study done and I have to wait til end of march for results. I was lucky to get in on that apmt as...
It's Scholarship Application Time! I will pass along info as I receive it; most scholarships have deadlines between March and May for the Fall 2011 semester....
Heidi: Went I went on line to see the scholarships they only mention if the person under 25 has the life threatening illness. There is nothing mentioned about...
I am a chronic worrier so i have some questions maybe you can help me with. Kim is usually very thin at around 88 pounds 90 on a heavy day. she is 4foot 9...
Hello, is she retaining fluids? My son was in the hospital a couple of weeks ago and his ammonia level was high and he was very sleepy the whole time we were...
Thanks everyone for your responses. Kim is 32. This morning she had an explosive urination. She now weighs 94 instead of 97 pounds. Her doctors are all aware...
I hope things improve soon. Looks like you farm some. Does that lifestyle fit welll with Kim? Â I lived on an organic farm for quite a while. It worked well ...
I have a separate e-mail address for this group and thus I don't check emails often, but I have noticed that I get so few messages that over a month to two...
did you know that there are 3 different yahoo mito groups? mito adultmito and mitodiseasesupport? This one has the least messages of the 3 because someone made...
I agree with Erica...since a lot of people went to mitodisease group because of the added security, AND there's a lot happening via facebook, this group has...
Darla, I have also received few e-mails from this group. Not sure what's up. How is your family? Lee ________________________________ From: honeybear...
We are doing well overall. The girls are not getting as frequesnt of migraines an their stroke issues have been all but gone. Still dealing with all the...
Hey Darla: What do you guys take for meds for your migraines. Just checking as my middle son has been getting migraines this year and has been out of school...
Lisa, I sent you an email but I get the impression you didn't receive it. I just received a new order of magnets. How many would you like? I can send you a...
Hey, everyone, Just a reminder that I have mito magnets for walks, awareness events, or for your own family car! Send me an email with the number of magnets...
Since we also have familial hemiplegic migraine we are unable to use any vasoconstriction meds so it has limited what we can use. The girls take Topamax which...
Thanks for your info. I may have Griffin try the B2 and see if that can help with things. Right now we are keeping a food log and even sleep log as to pin...
Hi everyone. Has anyone ever got back a carnitine level of 4 before? I just received my latest labs back and my carnitine was 4 with normal being over...
I will have to have a look at your CB sites Darla i have one too www.caringbridge.org/visit/erinmckenziechristensen Erin ... From: Darla Klein To: Mito Sent:...
My girls see Dr. Marks at st chris...he is a neurologist and does take the mitho kids. Heather Mommy to: Sarina-(Hodgkin's Survivor, CP, Spina Bifidai Occulta,...
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Marie DiPietro
md8senuf@...
Mar 12, 2011 12:12 pm
Missy, Dr. Joseph Melvin at DuPont is a wonderful doctor. He sees my kids. Marie From: Mito@yahoogroups.com [mailto:Mito@yahoogroups.com] On Behalf Of Missy ...
