Stacey, I am so sorry for your loss. May you find peace in knowing she is with God. Lori On Fri, Dec 31, 2010 at 10:02 AM, Stacey Fleming...
103533
slpwoman@...
rutrab
Jan 1, 2011 1:00 pm
Sorry forgot to add- for those that didn't know us- Our sweet Rina turned 15 on Dec 16th. She was determined to make it thru her birthday. She indeed did and...
103534
Holly Robbertz
hollyrobbertz
Jan 1, 2011 1:20 pm
Dear Stacy: I was so sorry to hear about your loss. There are no words that can express what you must be going through right now, it is unimaginable. You are...
103535
Lee Collins
leecol211
Jan 1, 2011 2:04 pm
Many here (on this site) live in deep gratitude for each and every day we have with our precious children. We live with an uncertainty about things that most ...
103536
emhboo
Jan 1, 2011 8:35 pm
Plus it also benefits the UMDF. Story: Someone I know is a jewelery designer and asked her to help me make a beautiful awareness bracelet.. sadly I bothered...
103537
emhboo
Jan 1, 2011 8:44 pm
Oh and as a PS.. if you could help me out too.. I'm in a photo contest on facebook too.. Need Help PLEASE!!! Please go to Charm Factory and "LIKE" them (it is...
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m poole
mbpudd
Jan 1, 2011 9:40 pm
I can not say or express anything in your situation that would help, but know that I do have you and yours in my prayers today. This is too close to home for...
103539
uzma butt
uzmamir0103
Jan 2, 2011 12:41 am
we are so sorry and saddened by your loss. our thoughts and prayers are with you and your loved ones. x. love uzma....
103540
momofalyssa
Jan 2, 2011 12:58 am
Hi, Its been a long time since I posted on here. My family just relocated back to the Cincinnati\Kentucky area and we really don't know anyone here that has...
103541
m poole
mbpudd
Jan 2, 2011 2:49 am
I know how you feel, my daughter is now 21 and became sick when she was 11 yrs. old. We have not figured that out yet either. The whole family, her sister...
103542
m poole
mbpudd
Jan 2, 2011 2:54 am
... From: William Manahan <WMANAHAN@...> To: Undisclosed-Recipient@... Sent: Fri, December 31, 2010 10:40:07 AM Subject: Fw: For the New...
103543
nena1294@...
julianna1294
Jan 2, 2011 2:59 am
Adorable. Happy New year to my mito friends and mito family. Sent via BlackBerry from T-Mobile ... From: m poole <mbpudd@...> Sender:...
103544
Neelam Agrawal Shroff
neelamshroff
Jan 2, 2011 8:16 am
I am so sorry for your loss Stacy. May God gives you and family the strength and courage to bear and cope up this loss. I can only imagine the pain and grieve...
103545
Erin McKenzie-Christe...
erinmck64
Jan 2, 2011 12:15 pm
Hi Stacey I am so very sorry your daughter has passed. you are in our prayers and thoughts. from Erin ... From: Lee Collins To: Mito@yahoogroups.com Sent:...
103546
Thats2seven@...
worshiponlyhim
Jan 2, 2011 12:59 pm
Stacy... I had no idea Rina was doing poorly....I am so sorry! I am glad I got to meet your sweet and beautiful girl last year, and the rest of you guys, ...
103547
Rivera Family
riverafamily...
Jan 2, 2011 5:58 pm
I am so so sorry for you , prayers your way. Be blessed, Rafael and Elicia Rivera ________________________________ From: uzma butt <uzmamir0103@...> ...
103548
brenda savage
howardsav
Jan 3, 2011 10:24 am
I have asked this question before but would appreciate anyones experiences again - the good, the bad or the ugly. Doctors are considering a fundoplacation...
103549
Lee Collins
leecol211
Jan 3, 2011 1:36 pm
What I know about fundo, as a nurse, is that the reviews are mixed. Many people believe that anything you "do" to the GI system of an individual with mito can ...
103550
Mitzi Goldsmith
mitzi_goldsmith
Jan 3, 2011 2:02 pm
My son is 12 now but had his fundo done at 6 months. Here's my take on it...your son aspirates which in turn is one of the worst things for the lungs, it can...
103551
deedee2n@...
deedee2n
Jan 3, 2011 2:16 pm
My daughter has had a fundo since she is 9months old and she is ten now..it has truly helped in administering her meds and feeds when she was to weak and I...
103552
Lee Collins
leecol211
Jan 3, 2011 5:17 pm
I would never say that, when necessary, a fundo is a bad thing. Like everything the pros and cons have to be weighed carefully. Reading the research is...
103553
Tracy Lengyel
tracyhope2008
Jan 4, 2011 11:00 pm
Stacy, I understand. I'm so sorry and feel your pain personally. I had 2 babies that were so severely affected they passed away before age 1. It is...
103554
nikki26nzder
Jan 5, 2011 7:38 am
Where to start,we are all feeling like we are hitting stops all the time,Our son is 15 and 3 years ago he was diagnosed with Kidney stones..we know they are...
103555
Erin McKenzie-Christe...
erinmck64
Jan 7, 2011 7:15 am
sorry that i haven't been around too much i didn't feel too good this morning so i made an apmt with a GP that is not my reg GP and im glad i did because i...
103556
Wendy D
wendylu4
Jan 8, 2011 2:44 am
I understand Dr. Cohen left Cleveland Clinic and I received this link to an
article that says he is now at Akron Children's. http://www.ohio...
103557
Wendy
wendylu4
Jan 8, 2011 3:58 pm
Hi Brenda & Howard, I have not been on in a while but noticed your post about the fundo. My son who has mito had a partial fundo at 2 months old. Also, my two...
103558
Darla Klein
honeybear50317
Jan 8, 2011 8:17 pm
So sad to hear of your loss. Glad to hear she made her goal to reach her birthday though. Praying for you all.... ...
103559
Erin McKenzie-Christe...
erinmck64
Jan 11, 2011 1:01 pm
did u ever use a cooling vest? or a cooling neckwrap? ... From: The Kovalciks To: Group Mito Sent: Friday, November 05, 2010 10:36 PM Subject: [Mito] Fwd:...
103560
anyone
loerco333
Jan 11, 2011 3:23 pm
Stacy, I'm so sorry for your loss. I haven't been on the board much the last few years due to difficulties with a young fellow we have guardianship of ( time...
103561
anyone
loerco333
Jan 11, 2011 3:44 pm
Have you checked into support or adolescent groups at Cincy Children's Medical center ? They are a great hospital for kids. Blessings, Joni Holycross...
