I asked for liquid Levo-Carnitine for both myself and my daughter. It is also flavored. It is much more tolerable this way....
101113
Engi
cutelittlesm...
Mar 1, 2010 6:33 pm
Meggy Deals with a great deal of pain. She also has Eosinophilic Gastroenteritis and colitis. We found out today that she also has nodules on her vocal cords....
101114
Engi
cutelittlesm...
Mar 1, 2010 6:39 pm
We gave the results to our genetics who was appreciative of it. If this study pans out, it is certainly a step forward in medicine. As long as we keep our doc....
101115
skippi63
Mar 1, 2010 7:06 pm
Hi, am new to this site, kids just dxd with mito (complex IV) both have cardiomyopathy and son's has gotten worse is symptomatic and on meds. Q, do you know...
101116
Kass
kasskids
Mar 1, 2010 7:44 pm
Hi Skippi, Sorry you had to join us, but glad your here. We have had a mito dx since 2001 (Complex I & IV), but my 13 yr old Madison developed Dilated...
101118
girlchristian
quietas
Mar 1, 2010 8:15 pm
Good word Pattie!!! NASTY!! Sums up the pills. Christy http://www.caringbridge.org/visit/amybac/mystory http://www.youtube.com/watch?v=KEKw4Cul3Ak The Lord is...
101119
Lidia Marandola
lidiamarandola
Mar 1, 2010 9:38 pm
Hello Is nodules on the vocal cords related to mito? Thank You Lidia Marandola _____ From: Mito@yahoogroups.com [mailto:Mito@yahoogroups.com] On Behalf Of Engi...
101120
mom2colemankidz3@...
heidicoleman...
Mar 1, 2010 11:07 pm
PLEASE don't discount pain if your child generally has a high tolerance, doing this almost cost our daughter a year of her life. ^Heather^ always had a very...
101121
Heather Nichols
hmnichols343
Mar 1, 2010 11:30 pm
The ER did call the next day and said she did have bacteria in her urine so she did have an infection. I wish Dr would listen to us parents. I am glad now...
101122
girlchristian
quietas
Mar 2, 2010 12:28 am
My goodness, I’m glad you went also! Poor baby has an infection and her pain is the indicator. I can tell you, I’ve been battling an ear infection and...
101123
Kris Eng
kris2eng
Mar 2, 2010 3:26 pm
sorry- what is the buccal study? kris ________________________________ From: "mito1mom@..." <mito1mom@...> To: WI Mito group...
101124
Kris Eng
kris2eng
Mar 2, 2010 3:31 pm
We are working towards having a clinical trial for MNGIE patients. Please keep in touch with the columbia site at ke4@... kris ...
101125
balcellsfam
Mar 2, 2010 9:09 pm
Join MitoAction this Friday by phone for a question and answer session with compounding pharmacists Saad Dinno, RPh, and Dr. Virginia Tawa, PharmD, from Acton...
101126
R. Gray Goldsmith
mitzi_goldsmith
Mar 3, 2010 8:20 pm
Have a question about urine. My son is on a condom cath through the night so we have a good idea about his output. He gets over 1500ml of fluid/formula through...
101127
Rivera Family
riverafamily...
Mar 3, 2010 11:39 pm
Okay I have and alot of crazy things go on w/ my health lately. I was "Very quickly " diagnosed as having Fibromyalgia as well as my lupus. i have known I have...
101128
Stacy Gibbons
gibbons.stacy
Mar 4, 2010 12:34 am
All I can tell you is if they are suggesting Nephrology then they think there is something wrong with the kidney function.. My daughter goes to Urology due to...
101129
nikki26nzder
Mar 4, 2010 3:29 am
Hi there, Our son was diagnosed with Large amounts of Kidney stones a couple of years ago,and has been put on potassium citrate long term as they keep...
101130
Sue Miller
lvcatzorgo
Mar 4, 2010 4:07 am
Has anyone suggested PMR (Polymyalgia Rheumatica) to you. I had a bout of that several years ago; and your symptoms sound a bit like it. It is quite...
101131
Christopher & Heather...
m0m0fmany
Mar 4, 2010 4:47 am
Elicia, I was diagnosised with lupus, because of my sun sensitivity and about 3/4 of my lupus tests were positive. Now with finding that I have had a stroke...
101132
mom2colemankidz3@...
heidicoleman...
Mar 4, 2010 11:42 am
Hello everyone, I need to sell a really nice scooter. The scooter belonged to my Mom, who recently passed away. The final installment of the charges from the...
101133
nena1294@...
julianna1294
Mar 5, 2010 1:59 am
_List of Medical Abbreviations and Acronymns - WrongDiagnosis.com_ (http://www.wrongdiagnosis.com/lists/acronymns.htm)...
101134
HEATHER EVANSSMITH
zoeyrainbow
Mar 5, 2010 12:38 pm
Hello, We saw neuro yesterday. We went over the swabs and other things.The live lab should be open at St Chris in April and Sarina is first on the list for the...
101135
SFlynn7778@...
sflynn7778
Mar 5, 2010 1:36 pm
Heather, Erin had a regular surgeon do it. As long as they know what to do with the samples, it is okay. Sherry In a message dated 3/5/2010 7:38:47 A.M....
101137
kalars69
Mar 5, 2010 5:01 pm
In atalanta - the mbx surgeon was a transplant surgeon. They schedule the mbx early then their usual days surgery schedule. Kelly-Ann...
101138
Heather Evams-Smith
zoeyrainbow
Mar 5, 2010 6:06 pm
Thanks, I want to make sure it is done right. Heather Mar 5, 2010 07:36:48 AM, Mito@yahoogroups.com wrote: Heather, Erin had a regular surgeon do it. As long...
101140
mito1mom@...
pinkstawberries
Mar 5, 2010 6:43 pm
We took our son to see him last Oct. I've always heard of kids going to see him. Not sure. Maybe give them a call. ... From: "Pattie Curran"...
101142
mito1mom@...
pinkstawberries
Mar 5, 2010 7:16 pm
Who do you see now? ... From: Pattie Curran <catholicmomof3@...> Date: Fri, 5 Mar 2010 14:10:19 To: Mito@yahoogroups.com<Mito@yahoogroups.com> Subject:...
101143
nena1294@...
julianna1294
Mar 5, 2010 9:40 pm
_Therapy/Respite Camps: Kids with Autism and other Special Needs_ (http://wmoore.net/therapy.html)...
101144
kalars69
Mar 5, 2010 10:04 pm
Also be sure you have the right Dr. Bruce Cohen - there are 2 Dr C's...;-) Dr. Parikh was friendly and seem more approachable in my DH perspective....but we...
101151
Stacey Browning
browning.stacey
Mar 6, 2010 6:50 pm
New to the world of IEP, quickly reaching out to see what services your child received when he or she first started school? My son is turning 3 and will soon...
