Joshua has had two time periods of this crying. His inconsolouble crying is usually associated with gas/constipation or fatigue. However, he is just diagnosed with siezures and now on Klonpin and we are seeing the same behavior that he had after being anesthetized for the muscle biopsy. He is more fussy and nothing seems to console him. I wonder if the medications anesthesia and Klonopine are causing some sort of confusion/dizziness/headaches. He is nonverbal, Complex 1, Complex III with mitochondrial encephalopathy.
Joshua's Aunt Who Who
--- On Tue, 7/7/09, amandaandjackson@... <amandaandjackson@...> wrote:
From: amandaandjackson@... <amandaandjackson@...> Subject: Re: [Mito] Inconsolable spells of crying/pain To: Mito@yahoogroups.com Date: Tuesday, July 7, 2009, 7:43 PM
SCD is the specific carbohydrate diet it is based on the ideas of an over growth of yeast in the system as well as a persons inability to tolerate specific foods, it is a very healthy diet it does eliminate almost all sugars and carbs but has many recipes that you can make substitions. ... you can find it online I saw another Mom post a link today...
Amanda
In a message dated 7/6/2009 6:47:33 P.M. Eastern Daylight Time, bkhawlah@yahoo. com writes:
My neuro also advised me against letting anybody put my son on anything for sleep or crying. He also felt getting to 'the issue' was better and I agree. --what is the SCD diet if I can ask?
--- On Mon, 7/6/09, amandaandjackson@ aol.com <amandaandjackson@ aol.com> wrote:
From: amandaandjackson@ aol.com <amandaandjackson@ aol.com> Subject: Re: [Mito] Inconsolable spells of crying/pain To: Mito@yahoogroups. com Date: Monday, July 6, 2009, 9:39 PM
In my experience long term crying not relieved by Tylenol or Motrin is almost always belly pain or some other GI related issues... I have been through this and my best friend whose son is severely delayed with neurological issues went through this in the most severe way ( he cried for almost a year) and was told consistently that it was "common" for kids with nuero issues to cry and all the Dr's offered her son was more med's that would sedate him.... what worked for her and her son was the SCD diet I am not saying its for everyone and in fact my son is not on it because we resolved his crying however your sons crying and other issues reminded me so much of my friends son I thought it was worth mentioning.. .. I hope this helps if you'd like any more info email me on or off list
Amanda mom to Jackson
In a message dated 7/6/2009 6:24:24 A.M. Eastern Daylight Time, sbrowning@paycor. com writes:
My 2 yr old son is very fussy. Of late, he is inconsolable for a couple hours straight ever afternoon. It can happen at other times too. It's reminicent of my older son's early colic. At first we thought it due to heat as he doesn't regulate his temperature well, but we've moved his crib and have had low temperatures outside lately and still the crying. Admittedly nonverbal, he's always cried/held his breath when eliminating or hungry. But as soon as those things were remedied, he'd be fine. Now he can eat between cries or poop, then continue with his crying. Tylenol/Motrin hasn't worked.
We are at our wits' end. Our nerves are fried. When I ask Docs what to do (GI, ENT the latest seen - in fact he cried through his entire ENT appt and the doc seemed unfazed), they seem to say that fussiness is typical with neurological disorders (probable mito complex 1). Anyone had this or can offer some help?
My 2 yr old son is very fussy. Of late, he is inconsolable for a couple hours straight ever afternoon. It can happen at other times too. It's reminicent of my...
... Sorry this is happening to your son, our daughter cried at night alot but was able to tell us her leg was hurting her. We talked to ped., then her ner. and...
All I can say is that my heart goes out to you and your little one. It's so incredibly frustrating and heartbreaking when this sort of thing happens. ...
Stacey, this is one of the many things Dasha did. Has he been worked up for EOS by a doc that what to look for and where, has been been worked up for...
oh yeah -Stacy - it's a HARD situation. Hold out some hope since it's kinda predicatble that we acan figureout the issue for your son. My son, now 8 still has...
Stacey, Kelly-Ann mentioned sensory issue's. Spinning would provide temp relief with Dasha....at times it was the short term releif that got us through. Teresa...
My daughter has gone through multiple periods of the same thing. It is sooo frustrating when they cannot tell you what is wrong! Here are a couple things...
My son had LOTS of these periods during the first 18 months. I used to drive him around in the car and he woudl still cry--for hours. He always did this much...
Is it possible we're talking about childhood biopolar with or without Asperger's here ?My sister was diagnosed with both,and both are associated with...
In my experience long term crying not relieved by Tylenol or Motrin is almost always belly pain or some other GI related issues... I have been through this...
My neuro also advised me against letting anybody put my son on anything for sleep or crying. He also felt getting to 'the issue' was better and I agree. --what...
Hi... I throw in my experience... Our oldest son, Andrew once cried and screamed nonstop for four days...he was 6 and still couldn't tell us what would fix it!...
WOW! Thank you for so many specific hints. It's bittersweet knowing others have similar experiences. *We do give him 1 tsp of milk of magnesia each day that...
This may sound wierd... but are you sure the episodes aren't some type of seizure? Just throwing that out there! ________________________________ From:...
We also tried Neurontin with Kayla and it has worked well.? We still use ativan sometimes also.? It makes it hard when they can't tell us what is wrong, but I...
Jackson is also on neurontin for pain management it has helped a lot especially when he first went on it.. he does not have a history of seizures he just takes...
SCD is the specific carbohydrate diet it is based on the ideas of an over growth of yeast in the system as well as a persons inability to tolerate specific...
Joshua has had two time periods of this crying. His inconsolouble crying is usually associated with gas/constipation or fatigue. However, he is just...
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