Stacey, this is one of the many things Dasha did. Has he been worked up for EOS
by a doc that what to look for and where, has been been worked up for
neurotransmitter issues, also we are still working on firgureing out immun
issues.
Teresa

--- In Mito@yahoogroups.com, Lee Collins <leecol211@...> wrote:
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> All I can say is that my heart goes out to you and your little one. It's so
incredibly frustrating and heartbreaking when this sort of thing happens.
> Sometimes, I think it's pain and at other times I think it can be a
neuro-irritability...or both. Either way I believe it's genuinely very difficult
for our kids and likely scary too. I'm so sorry for anyone who is experiencing
this. The grandma in me just wishes I could come and assist!
> Peace to You...and Hugs!
> Lee
>
> --- On Mon, 7/6/09, gpk8905 <cle17g9@...> wrote:
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> > From: gpk8905 <cle17g9@...>
> > Subject: [Mito] Re: Inconsolable spells of crying/pain
> > To: Mito@yahoogroups.com
> > Date: Monday, July 6, 2009, 8:52 AM
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> > --- In Mito@yahoogroups.
> > com, "browning.stacey" <sbrowning@ ..>
> > wrote:
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> > > My 2 yr old son is very fussy. Of late, he is
> > inconsolable for a couple hours straight ever afternoon. It
> > can happen at other times too. It's reminicent of my
> > older son's early colic. At first we thought it due to
> > heat as he doesn't regulate his temperature well, but
> > we've moved his crib and have had low temperatures
> > outside lately and still the crying. Admittedly nonverbal,
> > he's always cried/held his breath when eliminating or
> > hungry. But as soon as those things were remedied, he'd
> > be fine. Now he can eat between cries or poop, then continue
> > with his crying. Tylenol/Motrin hasn't worked.
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> > > We are at our wits' end. Our nerves are fried.
> > When I ask Docs what to do (GI, ENT the latest seen - in
> > fact he cried through his entire ENT appt and the doc seemed
> > unfazed), they seem to say that fussiness is typical with
> > neurological disorders (probable mito complex 1). Anyone had
> > this or can offer some help?
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> > Sorry this is happening to your son, our daughter cried at
> > night alot but was able to tell us her leg was hurting her.
> > We talked to ped., then her ner. and he said she had
> > neropathy and put her on nerrontin. Hope this helps.
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