All I can say is that my heart goes out to you and your little one. It's so
incredibly frustrating and heartbreaking when this sort of thing happens.
Sometimes, I think it's pain and at other times I think it can be a
neuro-irritability...or both. Either way I believe it's genuinely very difficult
for our kids and likely scary too. I'm so sorry for anyone who is experiencing
this. The grandma in me just wishes I could come and assist!
Peace to You...and Hugs!
Lee

--- On Mon, 7/6/09, gpk8905 <cle17g9@...> wrote:

> From: gpk8905 <cle17g9@...>
> Subject: [Mito] Re: Inconsolable spells of crying/pain
> To: Mito@yahoogroups.com
> Date: Monday, July 6, 2009, 8:52 AM
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> --- In Mito@yahoogroups.
> com, "browning.stacey" <sbrowning@. ..>
> wrote:
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> > My 2 yr old son is very fussy. Of late, he is
> inconsolable for a couple hours straight ever afternoon. It
> can happen at other times too. It's reminicent of my
> older son's early colic. At first we thought it due to
> heat as he doesn't regulate his temperature well, but
> we've moved his crib and have had low temperatures
> outside lately and still the crying. Admittedly nonverbal,
> he's always cried/held his breath when eliminating or
> hungry. But as soon as those things were remedied, he'd
> be fine. Now he can eat between cries or poop, then continue
> with his crying. Tylenol/Motrin hasn't worked.
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> > We are at our wits' end. Our nerves are fried.
> When I ask Docs what to do (GI, ENT the latest seen - in
> fact he cried through his entire ENT appt and the doc seemed
> unfazed), they seem to say that fussiness is typical with
> neurological disorders (probable mito complex 1). Anyone had
> this or can offer some help?
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> Sorry this is happening to your son, our daughter cried at
> night alot but was able to tell us her leg was hurting her.
> We talked to ped., then her ner. and he said she had
> neropathy and put her on nerrontin. Hope this helps.
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