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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Justin in Hospital   Message List  
Reply | Forward Message #93770 of 99967 |
Re: [Mito]lisa update//Justin in Hospital

I was thinking of taking up speed walking here and maybe timing how long it takes to walk all of the floors here!LOL!! Maybe how many elevators I can ride in 30 minutes!!
 
Self entertainment got to be creative!!
 
Karen

Karen (mom), Ryan 19, coq10 deficiency,
Justin 11, COX Dificiency/ POLG
 


--- On Sun, 2/1/09, LNerenhausen <LNerenhausen@...> wrote:
From: LNerenhausen <LNerenhausen@...>
Subject: Re: [Mito] update//Justin in Hospital
To: Mito@yahoogroups.com
Date: Sunday, February 1, 2009, 1:31 PM

Karen:
 
I'm glad his fever is down but I pray that the bacterial infection does NOT get worse.  I agree it can be lonely and boring up in the hospital.  You can do only so much watching tv and reading.  You should have a pedometer to see how many steps you do walking up and down the halls.
 
Prayers are with you and Justin at this time.
 
Lisa Nerenhausen
mom to leah
----- Original Message -----
Sent: Saturday, January 31, 2009 7:22 PM
Subject: Re: [Mito] update//Justin in Hospital

thank youall for the prayers. He still won't wake up and he has some sort of bacterial infection. They don't want to pull the breathing tube yet because not sure if he can protect his own airway. He is breathing on his own though but has cpap support. His fever is down but his blood pressure keeps dropping.
 
All I can say is Coffee, Coffee and more Coffee today. I am about to start to go out and make friends with other families I am lonely with out my sweet boy talking to me. That and no cell phone use in the PICU is driving me crazy. If I could at least text in there I would be great.
 
Well off to ander the halls for a few and stretch my legs and get more coffee.
 
Love ya all,Karen

Karen (mom), Ryan 19, coq10 deficiency,
Justin 11, COX Dificiency/ POLG
 


--- On Sat, 1/31/09, nena1294@aol. com <nena1294@aol. com> wrote:
From: nena1294@aol. com <nena1294@aol. com>
Subject: Re: [Mito] Justin in Hospital
To: Mito@yahoogroups. com
Date: Saturday, January 31, 2009, 12:16 PM

Get home soon!
Sending lots of hugs....
juju and mommy
 
In a message dated 1/31/2009 3:11:09 P.M. Eastern Standard Time, karenbrbkr@yahoo. com writes:
Hi all just asking fo rprayers for a quick recovery. Justin is in the PICU at Children's in seattle. They are planning to extubate him today but we are not sure what is the cause of al his issues right now. He has lactic acidosis right now and his liver counts were up even more from previously this week. He has been really lethargic for a week and now has a fever of 103. I am worried about him.
 
thanks and will update as I can.
Karen

Karen (mom), Ryan 19, coq10 deficiency,
Justin 11, COX Dificiency/ POLG
 



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Mon Feb 2, 2009 10:16 pm

karenbrbkr
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Message #93770 of 99967 |
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Hi all just asking fo rprayers for a quick recovery. Justin is in the PICU at Children's in seattle. They are planning to extubate him today but we are not...
karen brubaker
karenbrbkr
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Jan 31, 2009
8:10 pm

We will be thinking of you and hope he gets on the road to recovery soon. hugs, Sharon _www.caringbridge.org/visit/claytonandcole_ ...
lawblond7@...
lawblond7
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Jan 31, 2009
8:14 pm

Get home soon! Sending lots of hugs.... juju and mommy In a message dated 1/31/2009 3:11:09 P.M. Eastern Standard Time, karenbrbkr@... writes: Hi all...
nena1294@...
julianna1294
Offline Send Email
Jan 31, 2009
8:16 pm

thank youall for the prayers. He still won't wake up and he has some sort of bacterial infection. They don't want to pull the breathing tube yet because not...
karen brubaker
karenbrbkr
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Feb 1, 2009
1:23 am

Do you have a private room with a phone?  I'd be glad to call you if you need and ear  =)    Melanie Zavala   View Jonathan's webist @...
Melanie Zavala
melani04
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Feb 1, 2009
2:10 am

Karen: I'm glad his fever is down but I pray that the bacterial infection does NOT get worse. I agree it can be lonely and boring up in the hospital. You can...
LNerenhausen
lisanerenhausen
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Feb 1, 2009
9:31 pm

I was thinking of taking up speed walking here and maybe timing how long it takes to walk all of the floors here!LOL!! Maybe how many elevators I can ride in...
karen brubaker
karenbrbkr
Offline Send Email
Feb 2, 2009
10:16 pm

Karen, I hope and pray that Justin is doing better. Please keep us informed of his progress. Theano Dino's mom ... From: karen brubaker <karenbrbkr@...>...
Theano Delis
theanodelis
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Feb 2, 2009
6:58 pm

Thanks you all again!   we are on the floor and we ahve started feeds back up and probably won't get out of here until Thursday or later. Wea re going to get...
karen brubaker
karenbrbkr
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Feb 2, 2009
10:08 pm

You and Justin will be in my prayers. As for disease progression...keep in mind that mito ebbs and flows for most affected people. Keep on hoping and praying...
Lee Collins
leecol211
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Feb 2, 2009
10:15 pm

We will be saying lots of prayers for Justin.  Please keep us posted. Meagan, mom to Sophia, 4, Complex I, III, & IV deficiencies ...
Meagan
tooge01
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Jan 31, 2009
8:40 pm

Our prayers are with you!! Please keep us updated the best you can!~ I will get the prayer circle going!! Keli Quoting karen brubaker : Hi all just asking fo...
jaknatril@...
jaknatril
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Jan 31, 2009
9:12 pm

Lots of love and prayers. Here's to a speedy, non-eventful recovery.   XO- Heather and Samantha Heather Schichtel www.samsmom-heathers.blogspot.com ... From:...
Heather Schichtel
h_schichtel
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Jan 31, 2009
9:32 pm

-Hi Karen, We will be praying for Justin to regain strength. Take care of yourself too! I rely too much on the notification updates from CB's new version,...
loerco333
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Jan 31, 2009
9:47 pm

I will pray that Justin will get better soon.    Melanie Zavala   View Jonathan's webist @ www.caringbridge.com/visit/jonathanzavala ...
Melanie Zavala
melani04
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Feb 1, 2009
2:01 am

I'm so sorry to hear that Justin is so sick. I hope they find answers and that he's feeling better soon. ... -- Stacey Fleming ...
Stacey Fleming
stace434
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Feb 1, 2009
2:40 am

Oh, I am wo sorry to hear he is doing so poorly. I sure hope they will figure out what is going on and are able to help him make a quick recovery. Keep us...
Darla Klein
honeybear50317
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Feb 2, 2009
12:43 am
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