My daughter is on Kepra and since she started we have not had any seizures for over a year now.
Marisol Sustache
----- Original Message ---- From: Laurie <lauraliew@...> To: Mito@yahoogroups.com Sent: Thursday, November 30, 2006 11:58:51 PM Subject: [Mito] Keppra
Tuesday Josephine was admitted into the hospital for a Video-EEG, MRI, food study, and lab work. Right before being discharged, the neurologist came tell us her preliminary findings from the EEG. She said Josephine was having tonic seizures, and prescribed Keppra. (At this time) she was not given any other anti-seizure medication. Now that I am home and reading more about seizures and Keppra I have many more questions for the doctor. (Even though she was having a Video- EEG, I was not prepared to hear that she was having seizures). I have read that Keppra is not given/taken by itself--it is in addition other anti-seizure medications. Do any of your little ones take Keppra by itself? Also, how can I determine if she is experiencing weakness (a side effect) when she has hypotonia?
I have a follow-up appointment with her neurologist in January and I hope to get the actual report in a week or two. Meanwhile I am
beginning to formulate more questions. Any advice or infromation you can give would be greatly appreciated.
My daughter is on Kepra and since she started we have not had any seizures for over a year now. Marisol Sustache ... From: Laurie <lauraliew@...> To:...
Shelly: Andrew has been the most affected our of the two boys . With a diagnosis of SCAD which is a fatty oxidation disorder but also falls under the mito...
It does. Dr. Boles is our Dr. he feels Sean has a very rare type of Mito, but more Dysautonomia, though the rest of Sean's Drs disagree. They feel it is just...
Adrian has been on Keppra for about 3 - 4 months (was already on Topamax & Frisium). Once he was stabilised on the full dose, he has been pretty much seizure...
My son Lucas was on Keppra for a time. He had grand mal seizures with influenza despite having a therapeutic Trileptal level. Our neurologist added Keppra...
Just wondering if any of your kiddos is on Keppra, we found out Kaylee is having absent seizures and quite a few of them, started her on this but dont like...
Hi Meisha- I've heard Keppra can influence behaviors in kid and that B-6 can improve that Keppra-tude... so ask neuro about adding in, if the need is there. Â ...
Both of my mito kids take it. They side affects went away after a few days they got used to it (drowseyness) its the only med that worked for us after trying...
We have a 4 year old that was on Keppra about 9 months ago. We had her on Keppra for close to 6 months and the entire time we had lots of aggressive behavior...
Sorry, I can't help you on this; however, I'm new to this group and would like to know where the good or bad list. Please advise. Thanks! ... about mito ... ...
My daughter was just started on this due to seizures. They gave me some info about side effects that would include irritability. Let me just say....NO...
to take care of the Keppra "rage" usually they will prescribe extra Vitamin B6. Keppra worked only for a short time for my son and then we figured out quite...
Jonathan did have those symptoms but they went away after about 2 weeks, he was taking 150mg twice a day. He stopped taking it for a while and then started...
When Erik Started on Keppra we went through the nasty attitude for a little over 2 weeks and then it leveled off for us. It seemed once he had an even level in...
My daughter was on this twice. It caused major irrability, she pulls her hair and chews on her fingers, and grinds her teeth while on this medication. She...
... Well, she was having absence seizures, and then on the EEG it showed partial seizures (I think that's what they are called? This is all new to us!) They...
Our son Sam has been on Keppra for about 18 months (he has Infantile Spasms, but the Keppra has kept him seizure free for 18 months!!!). He has never had any...
Does anyone's kids take Keppra? With what other seizure meds? Anyone on keppra and clonodine? Have you had any adverse reactions? Any problems? Kim was just...
When my daughter was about 15 mo they started her on Keppra.. About a week after her first dose she was sitting in the middle of the floor playing quietly and...
Not on the subject of Keppra anymore, but Jonathan had some kind of hallucination after being given Versed before a surgery...poor thing, it was so scary. Â ...
Melanie & Stacy- Grant was talking about purple hippopotumases and how they couldn't go (fishing?) because there wasn't enough water...after his mbx with...
Jonny's was scary...he was fine one second and then the next he was screaming in terror, even just looking at me made him scream as if he was afraid of...
That's wierd cause Korigan was seeing Rhinos and was FREAKING out. That's wierd that they both saw what to children their ages were similar animals......
When Isabella was first diagnosed with seizures they started her on Keppra. Before beginning the medication they told me that less than 1% of the kids had a...
Jonathan is on Keppra only because he had liver failure (not from seizure meds) but now he can't take anything that is sensitizing to the liver. He does fine...
Our 17 month old was on Keppra for about 2 months. We just recently finished weaning him because he would not sleep and was very irritable. We started the wean...
Hi Susie- My son has not taken Keppra but my one tidbit of info I learned from others: Keppra has "reputation" of bringing out more behaviors, agression...
Reading what Stacy wrote reminding me about the Keppra seizures where if the dose is too high they smack their lips and kinds do fish lips and shakes their...