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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.
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Can't get him out of BED!   Message List  
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Re: [Mito] Can't get him out of BED!

This has happened to Grace, alot for many different reasons.  First, if she gets overheated she gets sick for at least that day (sometimes the next day too.)  Secondly if she is just playing too hard one day, she will sleep alot the next day.  Thirdly, when she had her last "brown out (as Dr.Cohen called it)" her sleeping patterns were off for about two months. This was brought on by a virus we didn't even know she had.  It started mostly as sleeping alot and she was very clumbsy, eventually it caused alot of other problems (most of wich resolved themselves with time.)  I would call the mito doc. if it goes on for too much longer.  Better to be safe.  Best wishes, I will pray he is full of energy really soon.
Carrie 


Tue Jun 1, 2004 4:37 pm

allbregra
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Message #41120 of 99967 |
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Hi all! Noah (7), has always awakened between 6 and 7am. Just recently he has been fighting me in the mornings when I try to get him out of bed for school....
shannumw
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Jun 1, 2004
1:38 pm

Us too! Nicole never gets out of bed when she needs to. Last week she was tardy 4 out of 5 days. She is in 3rd. grade and I know that the work load isn't all...
Michelle Gianino
jasperjunior...
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Jun 1, 2004
3:02 pm

In a message dated 6/1/2004 8:39:26 AM Central Standard Time, slhwatkins@... writes: Could this mean the disease is progressing? Has anyone else seen...
VisibleWorship@...
worshiponlyhim
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Jun 1, 2004
4:11 pm

This has happened to Grace, alot for many different reasons. First, if she gets overheated she gets sick for at least that day (sometimes the next day too.)...
albregra@...
allbregra
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Jun 1, 2004
4:41 pm

Stephanie, ... Emilie does this in streaks. She'll have trouble waking up and seem extra tired for a few days or a week or so, sometimes falling asleep again...
Julia31528@...
julia31528
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Jun 1, 2004
4:43 pm

Asenath always sleeps in. This morning she woke at 11:30 AM and her normal time to bed is between 9-10 PM. She will sleep even later if the noise level is...
Darla Klein
honeybear50317
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Jun 1, 2004
5:27 pm

It is hard to tell esp. with the nonverbal thing going (same with Morgan). I always jsut listen to her body.If she is very tired for a week or two I just let...
thefourofus03
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Jun 1, 2004
6:49 pm
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