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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Group Information

  • Members: 1984
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Description

For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

Most Recent Messages

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Sarcoidosis/TH1 disorder and mito
Hi all, I really did not get into this group too much, as I was always the most symptomatic - my kids have only gotten symptomatic in the last year or so. My
Posted - Wed May 22, 2013 11:34 pm
ohgminion2
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Re: Health is going down quickly! Help!
I offer as much as i know & feel it saves my life yet not cure. i use high dose Vit B complex B 100 mg 2x day, green &black tea & other teas eg red white
Posted - Wed May 22, 2013 4:41 am
LindaP
lindasbook2004
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Re: Folate/mito doctors? Was Leucovorin
I get nose bleeds every time I try Carotene, even worse if its vit E ( can only take 100mg a day). And I don't have any hematologic problems. Rick Sent from my
Posted - Mon May 20, 2013 2:22 pm
Rick3224
rickarnitine
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Re: Folate/mito doctors? Was Leucovorin
I have asked them.I have learned this is so rare,that Dr.Ramaekers at Centre Hospitalier Universitaire de Liège in Belgium is the only real choice I have.He
Posted - Mon May 20, 2013 2:13 pm
Roger Kulp
leucovorinsaves@...
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Re: Folate/mito doctors? Was Leucovorin
Try mayo clinic Not sure how to post on board ,but my sons had mito since 8 now 19 hed usually pretty normal 1 episode a year ,he takes l
Posted - Mon May 20, 2013 2:06 pm
Robert Pische
crimsonacecl...
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