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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Re: Folate/mito doctors? Was Leucovorin
I get nose bleeds every time I try Carotene, even worse if its vit E ( can only take 100mg a day). And I don't have any hematologic problems. Rick Sent from my
Posted - Mon May 20, 2013 2:22 pm
Rick3224
rickarnitine
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Re: Folate/mito doctors? Was Leucovorin
I have asked them.I have learned this is so rare,that Dr.Ramaekers at Centre Hospitalier Universitaire de Liège in Belgium is the only real choice I have.He
Posted - Mon May 20, 2013 2:13 pm
Roger Kulp
leucovorinsaves@...
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Re: Folate/mito doctors? Was Leucovorin
Try mayo clinic Not sure how to post on board ,but my sons had mito since 8 now 19 hed usually pretty normal 1 episode a year ,he takes l
Posted - Mon May 20, 2013 2:06 pm
Robert Pische
crimsonacecl...
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Current protocols for Mitochondrial Myopathy?
Hi, I haven't been here in a few years and wondering if there are any current, updated suggested protocols (e.g. CoQ10, vitaman E, etc.) for those with
Posted - Mon May 20, 2013 2:06 pm
Randall
startfromscr...
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Looking for current protocol for Mito treatment
Haven't been here in a few years but symptoms have worsened and looking for the most current protocol or protocols for supplements, diet, etc. I have one from
Posted - Mon May 20, 2013 2:06 pm
Randall
startfromscr...
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