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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

Group Information

  • Members: 1816
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Description

For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Re: quick update
Oh Stacy... geesh...I would hope the neuro would "add on" or replace the Topamax with a safer med for Korigan since she having szs again/still. REM is
Posted - Fri Nov 13, 2009 6:13 am
KA
kalars69
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quick update
A few nights ago Korigan started shaking like she was shivering in her sleep and was gasping with it.. She was clothed and covered and not at all cold.. it
Posted - Fri Nov 13, 2009 5:13 am
gibbons.stacy
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Re: Wish ideas
Make a Wish gave Emily a 150 gallon freshwater aquarium and all the supplies and fish (and frogs, eels) to go with it, and a monthly visit from the fishtank
Posted - Fri Nov 13, 2009 4:52 am
Kathy Rivers
mitomomof3
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Re: dentist
My daughter's teeth seem fine so far. I have never been diagnosed as having Mito but I do have a few symptoms.. I was a little older (not real old) before I
Posted - Fri Nov 13, 2009 3:54 am
Stacy Gibbons
gibbons.stacy
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Re: Ehlers Danlos
Interesting that she brought up Bethlem - she had to look it up for our vist when I mentioned...;-) We return in a few weeks to get a neuromuscular
Posted - Fri Nov 13, 2009 3:41 am
KA
kalars69
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