Mito : For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

Re: quick update Oh Stacy... geesh...I would hope the neuro would "add on" or replace the Topamax with a safer med for Korigan since she having szs again/still. REM is Posted - Fri Nov 13, 2009 6:13 am	KA kalars69 Offline Send Email
quick update A few nights ago Korigan started shaking like she was shivering in her sleep and was gasping with it.. She was clothed and covered and not at all cold.. it Posted - Fri Nov 13, 2009 5:13 am	gibbons.stacy Offline Send Email
Re: Wish ideas Make a Wish gave Emily a 150 gallon freshwater aquarium and all the supplies and fish (and frogs, eels) to go with it, and a monthly visit from the fishtank Posted - Fri Nov 13, 2009 4:52 am	Kathy Rivers mitomomof3 Offline Send Email
Re: dentist My daughter's teeth seem fine so far. I have never been diagnosed as having Mito but I do have a few symptoms.. I was a little older (not real old) before I Posted - Fri Nov 13, 2009 3:54 am	Stacy Gibbons gibbons.stacy Offline Send Email
Re: Ehlers Danlos Interesting that she brought up Bethlem - she had to look it up for our vist when I mentioned...;-) We return in a few weeks to get a neuromuscular Posted - Fri Nov 13, 2009 3:41 am	KA kalars69 Offline Send Email
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