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Mito · For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

Group Information

  • Members: 1774
  • Category: Support
  • Founded: Feb 14, 1999
  • Language: English
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Description

For those affected by mitochondrial disease - a place to discuss, share and gain information and support.

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Re: In Ocala Fl/Need Doc. who knows mito
I wish I could help!! We are in St. Augustine, FL and are having a very hard time finding anyone to help. We have done the Jax and Gainesville thing. I did run
Posted - Mon Jul 6, 2009 3:06 pm
teresagraf
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Re: Inconsolable spells of crying/pain
Stacey, Kelly-Ann mentioned sensory issue's. Spinning would provide temp relief with Dasha....at times it was the short term releif that got us through. Teresa
Posted - Mon Jul 6, 2009 2:52 pm
teresagraf
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Re: Inconsolable spells of crying/pain
Stacey, this is one of the many things Dasha did. Has he been worked up for EOS by a doc that what to look for and where, has been been worked up for
Posted - Mon Jul 6, 2009 2:31 pm
teresagraf
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Re: Inconsolable spells of crying/pain
oh yeah -Stacy - it's a HARD situation. Hold out some hope since it's kinda predicatble that we acan figureout the issue for your son. My son, now 8 still has
Posted - Mon Jul 6, 2009 2:26 pm
KA
kalars69
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Re: Anyone doing HBOT this summer?
Great to read another positive story, Gerri and Savage family, too!! Thanks for sharing all the ups and downs - please share again soon!   Kelly-Ann in MN
Posted - Mon Jul 6, 2009 2:05 pm
KA
kalars69
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