FYI: very good career development workshops for persons with disabilities being held on WSU campus in March. originally rescheduled from February. please see below.
---------- Forwarded message ---------- From: Roy Gedat <rgedat@...> Date: Oct 29, 2007 12:55 PM
Subject: Direct Care Alliance: Launching a National Direct Care Movement To: mikebray@...
Direct Care Alliance E-News Leading the Way to Quality Care Through Quality Jobs
September 2007 - Vol 1, Issue 1
Welcome to the first Direct Care Alliance E-Newsletter. We plan to develop this format to build and communicate with the growing network of associations, coalitions and individuals who share our of goal creating a high quality long term care system. Creating a powerful nationwide alliance of consumers, direct care workers and their employers, policy makers and advocates is our goal. Please share this newsletter with your friends and colleagues and let us know what you think.
Leonila Vega, Executive Director - lvega@... / (718) 928-2063
Roy Gedat, Field Coordinator - rgedat@... / (207) 739-9179
Don Pirozzoli, Field Coordinator - dpirozzoli@... / (608) 354-8973
First National Convention of Direct Care Worker Associations
Des Moines, Iowa : On August 15-17, 2007, the DCA sparked a national movement of direct-care activists-a strong and caring core group of individuals committed to working together to
improve the quality of long-term care for consumers by improving the quality of the direct-care job. One of the outcomes of this event, the launch of the Voices Institute, will continue to energize this new national network of worker associations, workers, employers, and consumers.
What's Next?
The Iowa convention has informed us in a number of exciting ways. Compiling the results of our time together has been a wonderful activity affording incredible visioning and goal setting. Thanks for your ideas and PLEASE keep them coming.
Priority One: Nurture the development of a national network of direct care worker associations and coalitions to amplify our message and advocate for policy change to provide quality jobs, long term care reform, and quality care.
This will be accomplished through education, effective communication and collaboration, and DCA provided services, tools and products. A steering committee of current association and worker leaders is being formulated to move forward on what is expected to be an ongoing initiative of the DCA. Call or email us if you want to join!
Priority Two: Launch the Voices Institute to expand the knowledge and skills of workers, consumers, employers, labor, advocates and policy makers who support the mission and principals of the DCA.A reputable and prestigious oversight committee to help plan and organize the institute as an integral and ongoing component of the DCA is being recruited as
staff and consultants begin planning and delivering specific programs and activities. Share your opinions and recommendations please!
Priority Three:Strengthen the DCA's and allied state based worker associations and advocacy coalitions communications and messaging capacity to provide an effective national voice to the Quality Care through Quality Jobs campaign.
New DCA Website! Please help
We are looking for workers and association leaders who what to join a special planning/review committee to re-design the DCA website. We want to create an interactive network of our essential partners including workers, consumers, employers, labor, advocates and policy makers. New media like videos, messaging, and on-line tools and services will be utilized. YOUR IDEAS AND INVOLVEMENT ARE SOUGHT! Call or email Roy if you want to help.
AARP Foundation offers scholarships to help "mature" women discover new lives and new futures
The AARP Foundation is dedicated to creating new opportunities for individuals to re-enter the workforce or obtain better employment so that they will be more financially secure in the second half of life. New job opportunities, however, often require additional skills, time and money. The right education and training can sometimes be out-of-reach, especially for individuals with limited financial resources.
The Women's Scholarship Program is accepting applications until October 31st to help women 40+ overcome financial and employment barriers by allowing them to participate in education and training opportunities they could not otherwise afford.
Thank you for your time and attention. We hope you found this interesting and worthwhile. If you want to see some more photo's of DCA Convention in Iowa
click here.
Sincerely,
Leonila, Don & Roy
Direct Care Alliance
Our Mission: We are a nationwide and statebased alliance of direct-care workers, employers, and people of all ages and disabilities who use long term services, care and supports. We are united to build an empowered and valued professional direct care workforce essential to ensuring high quality services, a life of dignity, respect, autonomy and opportunity for all to participate in community life.
FYI: Please see the attached flyer for the Direct Care Worker Conference coming up.
Thanks,
Michael
---------- Forwarded message ---------- From: Elizabeth Janks <ab3707@...> Date: Sep 27, 2007 1:05 PM
Subject: FW: 6th Lillian and James Portman Conference for Direct Care Workers To: Mike Bray <michaeljbray2@...>
This is an announcement of the Lillian and James Portman Conference for Direct Care Workers which will be held on November 5. Please share this announcement with any individual or agency that would be interested. It would be a great way to acknowledge the importance of the direct care worker.
Thank you
-- Michael Bray, M.A. Developmental Disabilities Institute
4809 Woodward Ave, Ste. 268 Detroit, MI 48202 (313) 577-6684
Kathy McGeathy The Disability Network 810-742-1800
From: Judy R. Roy [mailto:bhamilc1@...] Sent: Thursday, September 20, 2007 11:55 AM To: Kathy McGeathy (E-mail) Subject: Community Choice Act Hearing
Dear Independent Living Advocate,
The Community Choice Act of 2007, amends title XIX of the Social Security Act to make community- based attendant care services an alternative for Medicaid recipients who are "institutionally eligible."On Tuesday, September 25 the Senate Finance Committee will conduct a hearing on Community Choices Act.NCIL is collecting testimonies from across the nation that will be entered into the record of the hearing and serve to establish the depth of need and support for this legislation.
A member of NCIL's PAS Subcommittee may have already contacted you asking you to submit written testimony or identify someone from your state to submit testimony to the Senate Finance Committee.If you have already done that, thank you.If you haven't, there is only six day until the hearing.
Elizabeth Leaf at the NCIL office and I are ready to answer questions and provide assistance if you need it.Attached is an outline for preparing testimony and talking points.These may be helpful.
Judy Roy
PAS Subcommittee Chair
Judy R. Roy Independent Living Resources of Greater Birmingham 206 13th Street S. Birmingham, AL 35233-1317 Phone 205.251.2223 ext 102 Email bhamilc1@... There are only four kinds of people in the world: those who have been caregivers; those who are currently caregivers; those who will be caregivers; those who will need caregivers. - Rosalynn Carter
Governor Jennifer M. Granholm Proclaims October 2007 as
Investing in Abilities Month
September 18, 2007– Governor Jennifer M. Granholm has proclaimed October 2007 as Investing in Abilities Month in Michigan.
The proclamation is to encourage employers to hire qualified people with disabilities, focusing on workers' abilities. This is the third year that Governor Granholm has designated October as a time to recognize the important role of workers with disabilities in Michigan's economy. As stated in the proclamation, "The vitality and diversity of the people of
Michigan have made this state a leader in business and employment opportunities by blending the talents and skills of all Michigancitizens."
This proclamation carries on the work done by many public and private disability organizations in Michigan
to promote Investing in Abilities activities over the past 19 years, in order to increase accessibility to the workplace and shatter stereotypes which create barriers to employment.
The proclamation is online on Governor Granholm's website at
www.michigan.gov/gov under Proclamations.
Investing in Abilities Month
Whereas, The vitality and diversity of the people of Michigan have made this state a leader in business and employment opportunities by blending the talents and skills of all Michigan citizens and allowing each individual to achieve success in the workplace; and,
Whereas, Through the hard work and dedication of citizens with disabilities throughout this state, individuals have greater access to opportunities in the workplace where their talents and abilities are recognized and rewarded; and,
Whereas, Many public and private disability organizations in Michigan have promoted Investing in Abilities activities for the past 19 years to increase accessibility to the workplace and shatter stereotypes which create barriers to employment; and,
Whereas, A growing number of
Michigan employers are recognizing the abilities of people with disabilities and demonstrating that employing persons with disabilities makes good business sense; and,
Whereas, Many activities and events will be conducted in October to advance the "Investing in Abilities" theme to promote the employment of people with disabilities and encourage employers to focus on people's abilities; and now therefore be it,
Resolved, That I, Jennifer M. Granholm, Governor of the State of Michigan, do hereby proclaim October 2007, as Investing in Abilities Month in Michigan
, and encourage all citizens of the Great LakesState to recognize the great contributions made by people with disabilities.
-- Michael Bray, M.A
. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268 Detroit, MI 48202 (313) 577-6684
---------- Forwarded message ---------- From: Cary Nelson, AAUP President <aaupnewsletters@...>
Date: Sep 11, 2007 2:45 PM Subject: AAUP Newsletter: Freedom in the Classroom To: "Michael J. Bray" <mikebray@...>
The intellectual independence and integrity of higher education's classroom faculty have been under attack for some time—by the press, by conservative commentators, and by politicians. The American Association of University Professors (AAUP) is convinced that it is time take back the classroom on behalf of academic freedom. In a clear and carefully reasoned historic new report, we counter these attacks and lay out the principles of responsible college pedagogy. The full report, Freedom in the Classroom, is available in the September–October issue of Academe , our journal of record, and
online.
The report differentiates instruction from indoctrination. It addresses demands for "balance" in the classroom and offers a very specific and limited disciplinary rationale for the relevance of balance. It argues forcefully that college instructors have the right—and, some would argue, the responsibility—to challenge their students' most cherished beliefs.
The report also takes up the most controversial issue, politics in the classroom, and offers an analysis for your consideration. We adapt an example from a 2007 New York Times column: "Might not a teacher of nineteenth-century American literature, taking up Moby Dick , a subject having nothing to do with the presidency, ask the class to consider whether any parallel between President George W. Bush and Captain Ahab could be pursued for insight into Melville's novel? Might not an instructor of classical philosophy, teaching Aristotle's views of moral virtue, present President Bill Clinton's conduct as a case study for student discussion?"
No matter what the discipline, no matter what subject matter or historical period a course description defines, we suggest, the field of contemporary culture and politics is available for comparison, analogy, and contrast. To say this is to reaffirm the life of the mind, to assert that in human culture anything may potentially be connected to anything else.
This e-mail is being sent to more than 350,000 faculty and academic professionals in the United States and to tens of thousands in other countries. Not all faculty and academic professionals have the sort of academic freedom we value, but they all need to hear these principles articulated and affirmed. We encourage you to read the full report, discuss it with your students and colleagues, send us your comments, and join our efforts to disseminate this message.
The AAUP Online is an electronic newsletter of the American Association of University Professors. For more information about the AAUP, visit
http://www.aaup.org/aaupportal.htm.
---------- Forwarded message ---------- From: Schulze, Lori (MDE) <SchulzeL@...> Date: Sep 12, 2007 9:56 AM
Subject: FW: 2007-08 NASDSE Satellite Series Dates Announced To: SEWHATSNEW@...
Lori Schulze
Michigan Department of Education
Office of Special Education and Early Intervention Services
-----Original Message----- From: CEN [mailto:
info@...] Sent: Thursday, September 06, 2007 3:01 PM To: Schulze, Lori (MDE) Subject: 2007-08 NASDSE Satellite Series Dates Announced
If you're having trouble viewing this email, you may
see it online.
2007-08 NASDSE Satellite Conference Series
The
National Association of State Directors of Special Education (NASDSE), with support from the Pennsylvania Department of Education and the Pennsylvania Training and Technical Assistance Network (PaTTAN), presents its 11
th Annual Satellite Conference Series. Experts will provide important information on high-interest topics from nationally recognized experts.
School personnel at the intermediate, local, and public school academy levels, as well as parents, and organizations, can view the four-part series during the 2007-08 school year via satellite or streaming media at no cost.
Districts and organizations that have the capacity to receive a C-Band satellite signal are encouraged to become a downlink site.
2007-08 Conference Schedule:
Wednesday, October 3, 2007 :: 1-3 pm ET
High School Redesign: Expanding Resources and Opportunities through School/Business Partnerships
Wednesday, November 14, 2007 :: 1-3 pm ET
Redesigning Teacher Preparation: Collaborative Programs in General and Special Education
Wednesday, March 5, 2008 :: 1-3 pm ET
Redesigning Instructional Delivery: Co-Teaching as a Strategy for Success
Wednesday, May 7, 2008 :: 1-3 pm ET
Moving from High School to Post-School Opportunities: Transition Components and Strategies for High School Redesign
The above dates and times are for the live satellite feed. Each of the four programs will also be available via streaming media five days after each satellite broadcast.
To serve as a downlink site or to receive access to the streaming media broadcast, you must complete a request form. Satellite information and streaming media passwords will be provided prior to each broadcast.
For more details on each topic, including presenters, please download the
series brochure. Conference participants can earn SB-CEUs for participating in the conference series. For additional information regarding SB-CEUs, please contact your SB-CEU Coordinator.
-----Original Message----- From: Maria Peak [mailto:
mpeak@...] Sent: Monday, September 10, 2007 1:42 PM To: Laurie Bradley Subject: Free PCP Workshop
Laurie,
Could you forward this to the TOPS and Transition Listserv? I'm having trouble getting it to go through.
Thanks,
Maria
******************************
Eaton Intermediate School District is once again offering a FREE Person Centered Planning Workshop on October 3, 2007 from 2:30 to 8:30 p.m.
We'd love to have you come! Please RSVP by September 27th.
Maria
Maria Peak Transition Coordinator
mpeak@... Eaton Intermediate School District 1790 E. Packard Hwy. Charlotte, MI 48813 (517) 543-5500 or (517) 484-2929 ext. 1132
-- Michael Bray, M.A. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268 Detroit, MI 48202 (313) 577-6684
Kathy McGeathy The Disability Network 810-742-1800
From: national@... [mailto:national@...] Sent: Thursday, September 06, 2007 3:02 PM To: Kathy McGeathy Subject: Life Without Limits: Direct Support Professionals Rally on Capitol Hill
Direct Support Professionals Rally on Capitol Hill
Direct support professionals (DSP) are an irreplaceable part of the services and supports we provide to individuals with disabilities. Wages and benefits are too low to keep workers in the jobs.
Rep. Lois Capps (D-CA) and Rep. Lee Terry (R-NE) introduced legislation to provide more federal funds to state Medicaid programs to improve wages. The bill is called the Direct Support Professionals Fairness and Security Act of 2007 (H.R. 1279 ).
UCP is doing all it can to generate support for the bill. Over 200 direct support professionals will be attending a rally on Capitol Hill September 11th to lobby their representatives to co-sponsor the bill. The rally and Hill visits are being sponsored by UCP, The Arc, ANCOR and Lutheran Services in America. Many thanks to the UCP affiliates who are sending DSPs to DC to participate.
To further raise awareness about this issue and generate co-sponsors for the bill, we are sponsoring a national call-in day to coincide with the Washington DC rally. On September 11th we are asking people to call your representative and ask that they co-sponsor H.R. 1279. Call the Capitol Switchboard at 202-225-3121 and ask for your Representative. We need your help to show that people care about this issue and want Congress to act. Please call on September 11th.
UCPWA Mixes Dancing and Dining at 18th Annual Taste of the Town
Attendees enjoy the array of food options at the 18th annual Taste of the Town. Photo by Piel Photography
United Cerebral Palsy of West Alabama (UCPWA) has added a new twist to "Dancing with the Stars!" On August 14, UCPWA held the 18th annual Taste of the Town. For the first time in its 18-year history, the event featured a dancing extravaganza with local celebrities showcasing their best moves. Over 30 restaurants and 20 vendors participated in the event to raise money for UCP.
Attendees had the opportunity to see fancy footwork in action, sample some of Tuscaloosa's finest foods, and enjoy a silent auction that included items such as a Wynona Judd autographed guitar, Nick Saban and Shaun Alexander autographed footballs, a Freddie Kitchen's coaching team autographed football, and a Kenny Stabler autographed print.
UCPWA serves a 16 county area, providing a wide array of supports and services to over 600 children and adults with developmental disabilities. Community involvement in fundraising and special events is critical to the success of these services as the funds raised are used to match other grants and funding sources.
"The 18th Annual Taste of the Town proved to be a very successful opportunity for our agency to provide awareness to the general public about supports and services provided to our community. We love our food in West Alabama and this event provides us with an opportunity to showcase local favorites while supporting a very worthy cause at the same time," says Toni Franklin, Executive Director at UCPWA.
For more information about United Cerebral Palsy of West Alabama, visit http://www.ucpwa.org.
Indian Uprising All Pontiac Car Show Benefits UCP of Will County
The largest all Pontiac Car show in the Midwest took place Sunday, August 5, 2007, at the Kane County Events Center in Geneva, Illinois. For the second consecutive year, the show benefited the day school and children’s programs at United Cerebral Palsy of Will County. This year's 17th annual show, hosted by the Cruisin' Tigers GTO Club, exhibited more than 275 cars from across the United States and Canada, and even as far away as Puerto Rico.
The event featured Pontiac GTOs, vendors, raffles, a wide variety of food, games, entertainment (including a DJ and clowns), and more than 125 awards for the exhibitors, such as Best in Show and Winners’ Circle. In addition to the more than $1,000 raised in individual donations from various exhibitors and spectators during the day, the club presented UCP of Will County a check for $5,000.
In its first two years benefiting UCP of Will County, the event has raised approximately $14,000 for the purchase of therapy equipment for the affiliate’s Reedswood day school. The school provides a formal school program for 62 children, aged 3 to 21, with profound developmental disabilities and other various medical impairments.
“Once again, UCP is the beneficiary of the incredible generosity of the Cruisin' Tigers GTO Club, who have donated $14,000 for our UCP Day School Program, along with countless classroom supplies, books, games, and electronic appliances. We thank them for this wonderful support, and for welcoming and embracing our clients who have attended their shows during the last two years,” said Samuel Mancuso, President and Chief Executive Officer of UCP of Will County.
Beginning September 10, you can bid on items featured in a United Cerebral Palsy online auction. The online auction is part of the 2007 United Cerebral Palsy Life Without Limits Gala. Visit http://ucp.cMarket.com to view and bid on auction items.
Interested in donating an item to the auction? Contact Emily Dolenz at 202.973.7100 or edolenz@....
This year's Gala will be held on October 4th at the Willard InterContinental Hotel in Washington, DC, and will be hosted by UCP Board members William H. Macy and Cheryl Hines. That morning, Mr. Macy and Ms. Hines will be lobbying on the Hill on behalf of UCP, and later that afternoon, a corporate CEO roundtable will discuss forecasted trends in the area of disabilities impacting employers and consumers.
For more information on the Gala, please visit www.ucp.org.
Founded in 1948 to help people with cerebral palsy, today United Cerebral Palsy (UCP) is a pivotal advocate for the rights of all people with disabilities. As one of the largest health charities in America, UCP is dedicated to advancing the independence, productivity and full citizenship of people with disabilities.
Disabilities advocates make stridesThe Herald News, 08/30/07 The Americans with Disabilities Act should be celebrated every day," said Sam Mancuso, director of the Will County United Cerebral Palsy in Joliet. "People with disabilities have a right to be included in society. Businesses and other entities need to comply with this federal legislation that has been mandated for 17 years."
The tiny survivors: PreemiesThe Denver Post, 08/27/07 United Cerebral Palsy estimates that every year, about 8,000 babies and up to 1,500 preschoolers are diagnosed with cerebral palsy. Prematurity is a major cause of the condition.
Performing Shakespeare casts a spell on teensOrlando Sentinel, 08/12/07 For two weeks this summer, 18-year-old Matthew Roszak got to be king. He stood like a king -- straight and proud and strong. He thrust his fist in the air when he spoke, as a king might do. And he wore a long robe and a sparkly, kingly crown. Matthew's mom, Farida Roszak, watched her son the king on an Orlando stage and cried. There in the spotlight was the child she had once worried would never be able to do anything for himself -- even make a sandwich. Now he was performing Shakespeare for an audience of 300.
Disabled advocate honoredSan Mateo County Times, 08/10/2007 Molly Kennedy had just arrived as a first-year student at Notre Dame de Namur University in Belmont when she got the urge to visit a mall. So she did. "I just got on the bus and went to the mall," Kennedy, 38, said. It was a short and simple trip back in 1987, but a significant one. For Kennedy, who has cerebral palsy, a pass to hop aboard a San Mateo County Transit District bus is a ticket to self-sufficiency. Her independence was recently recognized nationally with the Life Without Limits award, presented to her in April at United Cerebral Palsy's annual conference in Orlando, Fla.
Illinois hits 20th day without a budgetDaily Southtown, 08/20/07 Gov. Rod Blagojevich's plan to chop $500 million out of the state budget could affect emergency equipment for police and fire departments, services for the disabled and even efforts to clean up drinking water. A central Illinois organization that serves people with cerebral palsy is in line for $50,000 to buy equipment that lifts people out of their wheelchairs. Right now, United Cerebral Palsy Land of Lincoln offers day services for 62 people but has only one lift. "When we found out it might be vetoed, we were dismayed. I was just in shock," said the group's president, Brenda Yarnell. "This is not fluff. We would welcome the opportunity to show anyone the work we're doing and see how difficult it is."
Visit the web address below to tell your friends about this. Tell-a-friend!
This message was sent to kathymcgeathy@.... Visit your subscription management page to modify your email communication preferences or update your personal profile. To stop receiving Life Without Limits - UCP Monthly Newsletter, click to unsubscribe. To stop ALL email from United Cerebral Palsy, click to remove yourself from our lists (or reply via email with "remove or unsubscribe" in the subject line).
Here is the announcement regarding the FASD event going on in Detroit:
"Hello All,
Fetal Alcohol Spectrum Disorders (FASD) Awareness Day is Sunday, September 9, 2007. The Fetal Alcohol Syndrome Prevention Project staff at the Detroit Department of Health and Wellness Promotion (DHWP) invite you to visit and take part in a 2-Day Exhibit to be held at the DHWP on Thursday, 9/6/07 and Friday, 9/7/07. Please see the attachments for details.
We hope you are able to stop by!"
Yours in Good Health,
Sandra L. King, MSA
Project Coordinator
FAS Prevention Project
Sandra L. King, MSA Project Coordinator Fetal Alcohol Syndrome Prevention Project Detroit Department of Health & Wellness Promotion 1151 Taylor Street, Rm 235-C
Detroit, Michigan 48202 (313) 876-4733 (Phone) (313) 876-4658 (Fax) kingsa@...
"A candle loses nothing by lighting another candle"
-- Michael Bray, M.A. Developmental Disabilities Institute
4809 Woodward Ave, Ste. 268 Detroit, MI 48202 (313) 577-6684
I have pasted a link to a brochure for a series of workshops regarding Universal Education. For more inormation, please feel free to contact Karen Hobden at DDI by phone at 313-577-7980 or email at
khobden@...
Training Resource Network Disability Update Visit TRN for resources and updates in the field.
Due to the volume of email we receive, we cannot reply individually to requests for more information.
Illinois Nursing Home Residents with Disabilities File Suit Five individuals with physical disabilities living in nursing homes have sued Illinois state officials for unnecessary institutionalization as discrimination under the ADA. The lawsuit seeks an order permitting people with disabilities in Cook County, IL, to access services in their own homes or in community-based settings rather than nursing homes. The class-action lawsuit charges that warehousing persons with disabilities in nursing homes segregates them from their own communities. According to the Center for Medicare and Medicaid Services, more than 31,000 people live in nursing homes in Cook County. In six of the ten largest facilities, housing hundreds of people each, the majority of the residents are not elderly. http://www.aapd.com/News/adainthe/070822al.htm
Subway Manager Mocks Hearing Impaired Worker; Loses Lawsuit A jury has awarded $166,500 in a disability harassment lawsuit brought against a Subway restaurant franchise on behalf of a female manager who was discriminated against and forced to resign because of her hearing impairment. The Dallas jury awarded former area supervisor Tammy Gitsham $66,500 for lost wages and emotional harm and an additional $100,000 in punitive damages in a suit under the Americans with Disabilities Act (ADA). The US Equal Employment Opportunity Commission (EEOC) charged that Subway owner Robert Suarez and one of his managers subjected Gitsham to a disability-based hostile work environment, including teasing and name-calling, because she is hearing impaired and wears hearing aids. Gitsham was forced to resign her position after both the owner and human resources/training manager allegedly repeatedly mocked her privately and in front of other employees, creating a hostile workplace, with taunts such as: "Read My Lips" and "Can you hear me now?" and "You got your ears on?"
http://www.eeoc.gov/press/7-27-07.html
"A poignant, thought-provoking book... discusses the exclusion, isolation, and powerlessness of people with disabilities and the self-serving, change-resistant "disability industrial complex" that keeps people down."
- Review, Tennessee Disability Coalition
US Chamber Opposes ADA Restoration Act Proposal The US Chamber of Commerce, the world's largest business federation, has stated its opposition to the ADA Restoration Act of 2007 (H.R. 3195). According to the American Association of People with Disabilities (AAPD), the Chamber's opposition: "mischaracterizes the ADA Restoration Act as an expansion of the ADA, when in fact, it is, as its name suggests, a restoration of the original intent of Congress when passing the ADA in 1990, which was to create a level playing field for everyone who wants a job to have an equal opportunity to work. Just like other civil rights laws that prohibit employers from basing decisions on characteristics like race or sex, Congress wanted the ADA to stop employers from making decisions based on disability. However, that intent has since been distorted by the Courts through extremely narrow interpretations of the ADA. The employment rate of people with disabilities has not improved and two-thirds of people with disabilities who do not have a job indicate they would work if they could only find employment. What's more, for those fortunate enough to find jobs, Courts are deciding against people with disabilities who challenge disability discrimination 97% of the time, often before the person with a disability even has a chance to show that the employer treated them unfairly!"
US Chamber Opposition: http://www.aapd.com/News/adainthe/070827uscc.htm ADA Restoration Act Summary: http://www.aapd.com/News/adainthe/downloads/RestBill2007_Summary.doc
Next Online Courses
"I took the course last year and am still using the training information... " – Sarah Neal, Horizon House, Inc.
Over 780 participants have successfully received certificates of completion. Only $149 and includes two weeks' access to online web instruction, interactive exercises and readings, and a Forum discussion board. Log on any time you want! Each course discussion is facilitated by a national expert in the topic area. Share ideas with other professionals. A certificate for 18 in-service hours is awarded to each participant who successfully finishes. Limited enrollment. Students accepted on a first-come, first-serve basis. Learn more:
http://www.trninc.com/entry/welcome2.asp
Career Planning Oct 3-16 , 2007 Rob Hoffman
"The course is great ... I would not change anything!" Joe Webster, LEAP, Inc.
Marketing & Job Development Nov 7-20, 2007 Dawn Langton Dale DiLeo
Job Coaching & Consulting Dec 4-17, 2007 Tammara Geary
GAO Report: Federal Disability Programs "Poorly Positioned" to Help People Go to Work A recent report by the watchdog US Government Accountability Office (GAO) stated "…social and legal changes have promoted the goal of greater inclusion of persons with disabilities in the mainstream of society, including adults at work. For example, the Americans with Disabilities Act (ADA) supports the full participation of persons with disabilities in society and fosters the expectation that persons with disabilities can work and have the right to work… However, GAO's reviews of the largest federal disability programs indicate that such programs have not evolved in line with these larger societal changes and, therefore, are poorly positioned to provide meaningful and timely support for persons with disabilities." The report further cites the looming crises in the slowdown in the nation's labor force and the low rate of return of return to work for individuals with disabilities receiving cash and medical benefits.
http://www.gao.gov/new.items/d07934sp.pdf
My Life, My Dream Now also available on DVD! This video and accompanying color guidebook present a wonderful set of training tools to introduce staff, families, and people with disabilities to the world of person-centered planning. $49
Visit TRN's EStore Staff Training - Person-Centered Planning - Supported Living Job Development - Self-Determination - Transition
If you do not wish to continue to receive this posting, reply to this message with -no- in the text of your reply. To add a name to our list, reply with an email address.
---------- Forwarded message ---------- From: Spectrum Training Systems <spectrumtrainingsystems@...
> Date: Aug 20, 2007 12:26 PM Subject: OH and MI Autism/Asperger Trainings To: ai3063@...
Spectrum Training Systems
Upcoming Autism Conferences
Detroit, MI Oct. 31 - Nov. 1, 2007
Asperger Syndrome and Behavior Solutions for Autism
Children and adolescents with Asperger Syndrome (AS) can intrigue and confound us- often simultaneously. Designed for participants with a basic knowledge of AS, this workshop will present a framework that allows us to build upon strengths in order to minimize challenges in the real world. Participants will learn accommodations, modifications, and direct teaching strategies that optimize availability for learning and enhance social cognition, communication, and emotional competence. The workshopwill emphasize practical strategies that can be used across school, home, and community settings.
November 1, 2007
"Behavior Solutions for Autism Spectrum Disorders" Maria Wheeler, M.Ed.
Increase understanding of the characteristics of Autism Spectrum Disorders (ASD) that impact behavior and can foster communication breakdowns and feelings of being overwhelmed. Learn how to address both the social and sensory needs of an individual. Topics will include: effective behavior interventions, visual supports for maximizing communication and minimizing confusion, and preventing and dealing with shutdowns and meltdowns. This presentation is appropriate for educators, therapists, caregivers and parents of children/teens with ASD.
The Autism Spectrum: Social Skills, and Students with Asperger Syndrome
November 15 "Social Skills Training and Frustration Management"
Jed Baker, Ph.D.
Specific, user-friendly strategies and techniques for providing relevant social skills instruction to children and teens with ASD will be shared at this workshop. Enjoyable socialization methods are emphasized so individuals may experience success and desire to build skills. Social deficits affect life at home, school and eventually in the workplace. Conference participants will learn both highly beneficial strategies that can be used across a variety of settings and routines; and practical and effective solutions to assist 'typical' peers, family members and professionals to become more understanding, accepting and engaging of those with social difficulties.
November 16 "Strategies for Students with Asperger Syndrome"
Diane Adreon, Ph.D.
This workshop will focus on specific strategies to increase the likelihood of providing a successful experience for students with Asperger Syndrome (AS) in school. Workshop participants will (a) gain an understanding of the challenges of students with AS in the school setting; (b) learn specific strategies to reduce the likelihood of problematic behavior by pro-actively engineering a supportive environment, and (c) learn practical strategies to address common academic, social, organizational, and behavioral issues.
If you register 4 or more people from one school, group or organization. Groups must be registered at one time, and either pay by check or purchase order. Purchase orders can include discount. This coupon is not needed to receive discount.
Offer good for all Spectrum Training Systems conferences
Children and adolescents with Asperger Syndrome (AS) can intrigue and confound us- often simultaneously. Designed for participants with a basic knowledge of AS, this workshop will present a framework that allows us to build upon strengths in order to minimize challenges in the real world. Participants will learn accommodations, modifications, and direct teaching strategies that optimize availability for learning and enhance social cognition, communication, and emotional competence. The workshopwill emphasize practical strategies that can be used across school, home, and community settings.
November 1, 2007
"Behavior Solutions for Autism Spectrum Disorders" Maria Wheeler, M.Ed.
Increase understanding of the characteristics of Autism Spectrum Disorders (ASD) that impact behavior and can foster communication breakdowns and feelings of being overwhelmed. Learn how to address both the social and sensory needs of an individual. Topics will include: effective behavior interventions, visual supports for maximizing communication and minimizing confusion, and preventing and dealing with shutdowns and meltdowns. This presentation is appropriate for educators, therapists, caregivers and parents of children/teens with ASD.
The Autism Spectrum: Social Skills, and Students with Asperger Syndrome
November 15 "Social Skills Training and Frustration Management"
Jed Baker, Ph.D.
Specific, user-friendly strategies and techniques for providing relevant social skills instruction to children and teens with ASD will be shared at this workshop. Enjoyable socialization methods are emphasized so individuals may experience success and desire to build skills. Social deficits affect life at home, school and eventually in the workplace. Conference participants will learn both highly beneficial strategies that can be used across a variety of settings and routines; and practical and effective solutions to assist 'typical' peers, family members and professionals to become more understanding, accepting and engaging of those with social difficulties.
November 16 "Strategies for Students with Asperger Syndrome"
Diane Adreon, Ph.D.
This workshop will focus on specific strategies to increase the likelihood of providing a successful experience for students with Asperger Syndrome (AS) in school. Workshop participants will (a) gain an understanding of the challenges of students with AS in the school setting; (b) learn specific strategies to reduce the likelihood of problematic behavior by pro-actively engineering a supportive environment, and (c) learn practical strategies to address common academic, social, organizational, and behavioral issues.
If you register 4 or more people from one school, group or organization. Groups must be registered at one time. Purchase orders can include discount. This coupon is not needed to
receive the discount.
Offer good for all Spectrum Training Systems conferences
Kathy McGeathy The Disability Network 810-742-1800
From: OLMSTEAD DISCUSSION LIST [mailto:OLMSTEADMI@...] On Behalf Of Hollis Turnham Sent: Thursday, July 12, 2007 10:01 AM To: OLMSTEADMI@... Subject: Reporter becomes a direct care worker
A firsthand look at direct care work
In a web-exclusive commentary written for Newsweek, journalist Lauren Kessler provides insight into what it is like to be a direct care worker at a facility for residents with Alzheimer’s disease. To better understand the disease that killed her mother and afflicts approximately 5 million people a year, Kessler took a job as an entry-level caregiver at an Alzheimer’s facility she calls “Maplewood.” In her commentary, Kessler writes about the situation of her co-worker, Jasmine, who has a 7-year old son, a car that died, and a voucher for federally subsidized housing that she received after waiting for 3 years. For her work at the facility, Jasmine receives no health insurance, no sick days, no vacation days, no job security and not even a paid lunch break. Kessler notes, “the chasm between the importance of the job and the remuneration is astonishing.” She states that if she and Jasmine worked 8 hours a day for 52 weeks, they still wouldn’t clear $15,000 each after deductions. The facility is understaffed, and Jasmine and Kessler are required to care for 11 - 14 residents each. Yet despite the backbreaking and often unpleasant work, Kessler found that the job was the best she had ever had because it taught her patience, how to live in the moment and how to find and connect with the humanity that remains within us all, no matter how demented we become. Kessler used her experience at “Maplewood” to write a book called “Dancing with Rose.”
NEW AAIDD BOOK PROVIDES A BLUEPRINT TO ORGANIZATIONS AND COMMUNITIES ON HOW TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH INTELLECTUAL DISABILITIES
Three noted experts—Robert Schalock, Valerie Bradley, and James Gardner—with 110 years in the intellectual disability field—team up to write a book on best practices in introducing the concept of quality of life for people with intellectual disability within organizations and community systems. Written for a primary audience of service providers and policy makers, the authors propose a quality assessment and improvement methodology grounded in person-centered needs and outcomes. The book also contains a review of the federal government's new and comprehensive quality improvement/quality assurance expectations in home and community-based services and contains specific examples of state efforts and results.
To download an excerpt from Quality of Life for People with Intellectual and Other Developmental Disabilities or to purchase the book, visit
http://bookstore.aaidd.org. For questions, email books@...
NEW REPORT DOCUMENTS THE SEVERE HOUSING CRISIS FOR PEOPLE WITH INTELLECTUAL AND OTHER LONG-TERM DISABILITIES IN AMERICA Priced Out in 2006 documents the continued lack of affordable and accessible housing for people with long-term disabilities, including intellectual disabilities, physical disabilities, chronic illness, and mental illness. The national average for a one-bedroom apartment is at $715 and a studio/efficiency is at $633, and both are higher than the entire monthly income of people with disabilities who rely on the Supplemental Social Security Income (SSI) program. The report is published by the Technical Assistance Collaborative and the Consortium of Citizens with Disabilities, and is available to read and download at http://www.tacinc.org/Pubs/PricedOut.htm.
ACTIVITIES OF MEDICAID AGENCIES NATIONWIDE TRANSFORM INSTITUTIONAL SYSTEMS INTO COMMUNITY-BASED PROGRAMS USING FEDERAL SYSTEMS CHANGE GRANTS
In 2000, the U.S. Congress enacted legislation authorizing Real Choice Systems Change grant programs to help states develop the infrastructure needed for seniors and individuals with disabilities to live in integrated community settings, as opposed to being served in nursing homes or institutional settings. Administered by the Centers for Medicare and Medicaid Services, over $243 million dollars have been awarded so far to all the states to support these activities. A new report by the National Health Policy Forum tracks the community-based activities state Medicaid agencies have conducting since receiving these federal dollars. Medicaid is the nation's primary source of financing and delivering community-based health and long-term services to children and adults with disabilities.
Click here to read Trading Places: Real Choice Systems Change Grants and the Movement to Community-Based Long-Term Care Supports
.
WHY HAS THE INTERNET BECOME SO IMPORTANT TO THE WORK OF SELF ADVOCATES? READ ABOUT IT IN INTELLECTUAL & DEVELOPMENTAL DISABILITIES
An article in the new issue of Intellectual & Developmental Disabilities talks about the historical origin of the use of the Internet in the self-advocacy movement and explains the benefits of its use to self-advocates. Click here to read Making Links, Making Connections: Internet Resources for Self-Advocates and People with Developmental Disabilities
. The article appears in the June 2007 issue of Intellectual and Developmental Disabilities. To read a table of contents from this issue,
click here.
NATIONAL COUNCIL ON DISABILITY IS SEEKING FEEDBACK FROM LOCAL COMMUNITIES ON HOW THEY HANDLE EMERGENCY PREPAREDNESS AND DISASTER RELIEF FOR PEOPLE WITH DISABILITIES In order to identify proven examples of community efforts in the areas of disaster relief, emergency preparedness, and homeland security for people with disabilities, the National Council on Disability (NCD), a U.S. federal agency, is seeking public comments to specific questions and themes by July 16, 2007.
Click here to learn more.
AAIDD F.Y.I. is compiled by Anna Prabhala, Editor and is published by the American Association on Intellectual and Developmental Disabilities (formerly AAMR). Please submit comments, suggestions, tips, and news to annap@.... For more information on becoming an AAIDD member, visit
http://www.aaidd.org/Membership/index.shtml. To purchase AAIDD publications, visit
http://bookstore.aaidd.org.
The June edition of Communication Matters includes information about a new assistive listening device, a new book to help you identify accommodations for workers, and information about a $300 reimbursement for C-Print or Typewell training. There's more too, so you will have to open the attachment to read it all.
-- Michael Bray, M.A. Developmental Disabilities Institute
4809 Woodward Ave, Ste. 268 Detroit, MI 48202 (313) 577-6684
Kathy McGeathy The Disability Network 810-742-1800
From: Hollis Turnham [mailto:Hollis@...] Sent: Monday, July 02, 2007 4:56 PM To: Toni Wilson; Farmer, Andrew; jonrreardon@...; hoyt22@...; roanne@...; Robert Allison; Sarah Slocum; dhoyle@...; rabidouxd@...; Chris.Chesny@...; Jane Church; LanumG@...; Jackie Tichnell; Mike Head Cc: Tameshia Bridges; ssteinke@...; Kathy McGeathy; Nick Ciaramitaro; Linda Ewing; Bob Lathrop; dcadreau@...; Elizabeth Janks; Cynthia Paul Subject: Support for direct care worker participation in the LTCSS Commission Workgroups
LTCSS Commission Workgroup chairs and co-chairs,
Through our largely foundation funded “Health Care for Health Care Workers Campaign,” PHI has some funding to support the participation of direct care workers in Commission Workgroups. Our funding support would reimburse direct care workers (certified nursing assistants, home health aides, personal care attendants, Home Help providers, etc.) for lost wages and mileage to attend workgroup meetings. PHI staff will also assist direct care workers in preparing and participating in the meetings.
Clearly, the charge to the finance and workforce development workgroups are within the desires of our funders to secure health care coverage for all direct care workers while building the voices of workers to affect that change. And, if direct care workers are interested in and able to attend the other workgroups (person directed planning, quality, prevention, and public education), I’ll explore how we might be able to support their participation in the other inter-connected recommendations.
Please share this information with anyone else who is helping you recruit workgroup members.
For more information about this support that can be offered in your recruitment of active members in your workgroups or to nominate someone for the monetary support, please contact me or Tameshia Bridges (517-372-8310 or TBridges@...) of PHI’s Health Care for Health Care Workers Campaign.
---------- Forwarded message ---------- From: Laurie Bradley <BradleyLM@...>
Date: Jun 8, 2007 11:26 AM Subject: Pesonal Curriculum Guidance Document To: SE-MITRANSRES@...
Forwarded from Deborah Clemmons, Supervisor, Office of School
Improvement regarding the personal curriculum guidance document. QUESTIONS SHOULD BE DIRECTED TO DEBORAH AT clemmonsd@...
YOUR INPUT IS VALUED To ensure every student has an opportunity to pursue a challenging
curriculum and have the necessary foundation to succeed in high school, we invite you to review and comment on the personal curriculum guidance document.
The guidance document is designed to assist educators, students, and
parents in understanding when and how to use a personal curriculum modification of the Michigan Merit Curriculum (MMC).
Feedback from these reviews will be incorporated in the final guidelines document.
To access the DRAFT Personal Curriculum Guidelines and provide input, please visit the Michigan Department of Education high school web page at www.michigan.gov/highschool
.
This survey will be open for review and comment through July 16, 2007. For additional information, please contact Deborah Clemmons, Office of School Improvement, at
clemmonsd@....
Deborah Clemmons Supervisor Curriculum and Literacy Unit Office of School Improvement Michigan Department of Education P.O. Box 30008 Lansing, Michigan 48909 517-241-2479
517-335-2473 - fax clemmonsd@...
-- Michael Bray, M.A. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268 Detroit, MI 48202
(313) 577-6684
FYI. Anyone interested in attending this training, please contact the judson Center directly.
Thanks,
Michael
---------- Forwarded message ---------- From: Johnson, Robin E <Robin_Johnson@...
> Date: Jun 6, 2007 8:00 AM Subject: Autism Interventions for Social Workers To:
Greetings,
Judson Center is offering training on Autism Interventions for Social Workers. We are an approved provider of Continuing Education (CE) in the State of Michigan. We are excited about providing CE's for professionals in the field of Social Work. We believe that professional development is critical to providing quality and competent services to the consumers we work with. We also believe that quality training needs to be affordable.
I have enclosed a flyer and registration form for our upcoming training on Autism. This training is appropriate for BMSW, SST and LMSW's. It will be offered again in November. Please feel free to distribute this to any coworkers that you think may be interested attending. For additional information, please email me or visit our website at www.judsoncenter.org for upcoming trainings.
This program is approved by the Michigan Social Work Continuing Education Collaborative for
3 CE Clock Hours. Course approval is # 052507-00
Thank you,
Robin E. Johnson, MSW, LMSW
Clinical and Macro practice
Director of Program Services and Quality
JudsonCenter
4410 W. 13 Mile Rd.
Royal Oak, MI48073
248.837.2013
-- Michael Bray, M.A. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268
Detroit, MI 48202 (313) 577-6684
This budget squabble is so hurtful. There are not enough people contacting their legislators to talk to them about how these cuts could hurt our children and the people we serve through our many programs.
Make your calls.
Judy Judy Cerano Public Policy Coordinator Developmental Disabilities Institute at Wayne State University 313.577.6389 or 248.330.8191
FROM Community Mental Health Boards' Association
>>> <dlalumia@...> 5/18/2007 2:20:11 PM >>> The elusive deal to balance the FY2007 is off again. After the deal fell apart last Tuesday, the Senate upped the ante by passing another bill
adding to the cuts they had earlier proposed to balance the 07 budget. In the most recent Senate bill, the Medicaid cut for June-September payments is 3%. The bill also elimates the entire Public Act 2 funding to counties and
substance abuse coordinating agencies. We have been working this issue hard as have MAC, MASACA and ALSAO. We are VERY disappointed with the Senate action to take the whole thing. If you haven't made contacts regarding this
issue, now would be the time. If you are communicating with your democratic state
legislators, I would recommend that you asked then to help by seeking support from the Governor's office to restore this cut. I've emailed out
talking points on the issue. If you would like another copy, let me know and I will email. This deal has to get done, certainly by the end of May at the latest. We will keep you posted. Thanks for your support of the spring
conference. --Dave LaLumia
Michigan Association of Community Mental Health Boards.
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-- Michael Bray, M.A. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268
Detroit, MI 48202 (313) 577-6684
The potential cuts to Michigan's Medicaid system will be devastating to all individuals with disabilities and their families. Consider taking a stand against these proposed cuts by voicing your opposition and sharing your story with your state legislators. Please participate in a statewide effort to stop these cuts using the links below. This "electronic" campaign is being coordinated between the times of 6am E.T. on May 17th to 6am E.T. on May 18th.
Thanks,
Angela Martin
In connection with the proposed Medicaid cuts, three videos have been uploaded to YouTube that describe the impacts the proposed Michigan Medicaid cuts would have on Special Needs kids.
To comment, participants can go to:
http://bang.calit2.net/sdhacklab/ between 6 am E.T., May 17th and 6 am E.T., May 18th. Click on the link for the Michigan Medicaid action, then minimize the browser window. The key YouTube phrase is "Michigan Medicaid".
-- Michael Bray, M.A. Developmental Disabilities Institute 4809 Woodward Ave, Ste. 268
Detroit, MI 48202 (313) 577-6684
---------- Forwarded message ---------- From: Glenna Taylor <glennat@...> Date: May 10, 2007 12:16 PM
Subject: Ticket to Work June 13, 2007 Teleconference-Federal Register Notice To: freedom@...
Glenna Taylor _______________________________ Check out http://WebbTaylor.com and tell your friends to check it out as well!
Mike, some add comes up for Band of America and I cannot read the whole thing.
Chuck
From: "Mike Bray" <michaeljbray2@...> Reply-To: Michigan-DSP@yahoogroups.com To: "MADSP Listserve" <Michigan-DSP@yahoogroups.com> Subject: [Michigan-DSP] Fwd: May 2008 E-Newsletter Date: Mon, 7 May 2007 18:31:02 -0400
FYI
Michael
---------- Forwarded message ---------- From: Center for Self-Determination <pcarver@chartermi.net > Date: May 7, 2007 4:33 PM Subject: May 2008 E-Newsletter To: ai3063@wayne.edu
Center for Self-Determination E-Newsletter Alliance for Freedom News
The Center for Self Determination is planning to present the International Conference on Self-Determination May 27 to 29, 2008 in Detroit, Michigan. International perspectives on progressive notions of recovery, family supports, community membership, ending forced impoverishment and system change requirements will be part of the focus of the conference. The meetings will feature leaders from across disability and aging and relate the efforts being made across the world to make freedom a reality for individuals with disabilities. As the contract with the Detroit Renaissance Marriot is finalized, registration and room information will be posted on The Center's website and the Michigan Association of Community Health Boards.
The 7th Centers for Medicaid and Medicare Services New Freedom Initiative Conference "Choice and Independence" held in Baltimore featured Center Executive Director, Tom Nerney. The conference focused on the policies, programs, and tools -including opportunities authorized by the Deficit Reduction Act. Nerney's plenary "The Challenge to Change: From Better to Great: The Meaning of Freedom in Everyday Life" addressed the important historical forces that created and continue to challenge the current system of long-term care. A DVD of Tom Nerney's poignant speech combined with his unconventional PowerPoint presentation developed by Pat Carver is under development at the Center and will be available soon. Contact Billie Nagi to reserve your copy.
Each month, the EQUITY e-newsletter of the World Institute on Disability challenges readers to narrow the divide between the disability and asset building communities. Equity April 2007 issue "Including People with Developmental Disabilities in the Ownership Society" featured Kern Regional Center (CA) Individual Development Account Program (IDA). The Center for Self-Determination and Kern Regional Center have been collaborating for several years. Participants with developmental disabilities in Kern County can begin an IDA to buy a home, advance their post-secondary education, or start/expand their micro-enterprise. To subscribe email EQUITY.
The Center for Self-Determination has now developed a legislative model for changing the federal Social Security and Medicaid Acts in order to:
Create more flexibility in Medicaid especially around housing and work;
Create incentives to work that include higher income disregards under Social Security, and
Allow for targeted savings accounts that do not penalize individuals for saving earned and unearned income in special "freedom" accounts.
This proposed legislation would direct the appropriate federal agencies to accept streamlined applications for a single simplified dual Medicaid and Social Security plan and/or Medicaid waiver. See both the proposal, background paper and a summary of cost and quality data on the Center's website: Contact Tom Nerney
Disability activists from 15 countries and every state in the U.S. continue to denounce the "therapy" administered to a young girl from Seattle, Washington, known as "Ashley X". In addition to the Center for Self-Determination , more than 550 individuals and 80 organizations signed an online statement of solidarity against medical procedures that strip people with disabilities of their human dignity. Susan Fitzmaurice, a Michigan disability advocate, created the Ashley Solidarity Statement web site in concert with the Michigan Partners for Freedom . The Partners for Freedom, created at the Center's 2004 Atlanta Immersion Learning event, actively work throughout the state of Michigan to enhance the demand for self-determination.
Written at the request of the Arc of Connecticut, this article by Tom Nerney outlines two issues in "The Assault on Ashley". Failure to develop an ethical grounding that would confront the utilitarian ethics of this assault and the extent human services contribute to a view of individuals with intellectual and or cognitive disabilities that allows some to so freely disparage them and render them less than equal under the law. For complete article CENTER PUBLICATION
Late last year Marsha Katz of Missoula, Montana was appointed to the Social Security Advisory Board (SSAB). This Advisory Board is an independent, bipartisan board created by Congress to advise the President, the Congress, and the Commissioner of Social Security on matters related to the Social Security and Supplemental Security Income (SSI) programs. Marsha Katz is an active member of the Center for Self-Determination, ADAPT and Not Dead Yet. She is an experienced trainer in all aspects of the Social Security Disability Insurance (SSDI) and Supplemental Security Income programs and currently works as an Organizational Consultant for the Rural Institute at the University of Montana. To contact Ms. Katz email
In Massachusetts, Representative Tom Sannicandro has filed legislation to support the growth of self-determination in the Commonwealth. Representative Sannicandro is a great ally in the state legislature and has a personal commitment to self-determination for people with disabilities with his vision for his son, who is a 22 year-old man with a developmental disability. The legislation is now being reviewed by the Joint House and Senate Children, Families and Persons with Disabilities Committee. The legislation supports the work of the Massachusetts Community-Based Personal Assistance Services and Supports CMS grant. More information will be available next month. If there are any questions, you can contact Jeff Keilson at 781 910-7216 or at or the Office of Representative Sannicandro at 617 722-2210.
Early in March, the Dane County Department of Human Services Adult Community Services hosted an exciting learning event bringing together asset based community development with self-determination. Organized by Dennis Harkins from A Simpler Way, Pat Carver, with Community Drive, Inc and Mike Green from the ABCD Institute to deliberately combine the strengths of individuals we serve, their families, the individual budgets and resources available to them, community mobilizing, and our services system. Teams from Dane County explored techniques of asset based community development and began to seed ideas about collective action at building community through individual budgets. (based on the Center's Guaranteeing the Promise of Freedom). To inquire about how this future learning might unfold in your community contact Dennis Harkins
The Center participated in a two day training on self-determination and individual budgeting in Corpus Christi in April. The event was sponsored by American Habilitation Services (AHS) in conjunction with Imagine Enterprises. Participants were very enthusiastic about how the principles of self-determination and personalized supports could change people's lives. The second day Center Resource Guides Vickie Vining and Jan Lampman worked with the AHS staff of to think about strategies to bring their organization closer to the principles of self-determination. They made commitments in each department to pursue ways that people with disabilities could have more control over their lives. To support self-determination Imagine Enterprises hosts a sister website Self-Determination for Texas.
Leidy writes and sings humorous and thought-provoking songs about life in the human service system. His songs touch self-determination, advocacy, personal care assistance, hiring employees, and the human services bureaucracy. In many learning events sponsored by the Center Peter Leidy's songs are played. Often through song, the message for change is heard in ways that previously could not penetrate deep defenses often inherent in human service. Leidy recently released his third Human Serviceland CD: The Great Escape.
"We just need to stop accepting what is and start creating what should be."
- Dale DiLeo in "Raymond's Room: Ending the Segregation of People with Disabilities" Training Resource Network, St. Augustine, Florida In this compelling book, DiLeo uses research, anecdotes, and stories, to take aim at the billion-dollar "disability industrial complex" that segregates people with significant disabilities from mainstream life.
You are receiving this newsletter because you have signed up to be on the e-mailing list of the Center for Self-Determination, you have been referred by a friend or have otherwise expressed interest.
---------- Forwarded message ---------- From: Center for Self-Determination <pcarver@...
> Date: May 7, 2007 4:33 PM Subject: May 2008 E-Newsletter To: ai3063@...
Center for Self-Determination E-Newsletter Alliance for Freedom News
The Center for Self Determination is planning to present the International Conference on Self-Determination
May 27 to 29, 2008 in Detroit, Michigan. International perspectives on progressive notions of recovery, family supports, community membership, ending forced impoverishment and system change requirements will be part of the focus of the conference. The meetings will feature leaders from across disability and aging and relate the efforts being made across the world to make freedom a reality for individuals with disabilities. As the contract with the Detroit Renaissance Marriot is finalized, registration and room information will be posted on The Center's website and the Michigan Association of Community Health Boards.
The 7th Centers for Medicaid and Medicare Services New Freedom Initiative Conference
"Choice and Independence" held in Baltimore featured Center Executive Director, Tom Nerney. The conference focused on the policies, programs, and tools -including opportunities authorized by the Deficit Reduction Act. Nerney's plenary "The Challenge to Change: From Better to Great: The Meaning of Freedom in Everyday Life" addressed the important historical forces that created and continue to challenge the current system of long-term care. A DVD of Tom Nerney's poignant speech combined with his unconventional PowerPoint presentation developed by Pat Carver is under development at the Center and will be available soon. Contact Billie Nagi to reserve your copy.
Each month, the EQUITY e-newsletter of the
World Institute on Disability challenges readers to narrow the divide between the disability and asset building communities. Equity April 2007 issue "Including People with Developmental Disabilities in the Ownership Society"
featured Kern Regional Center (CA) Individual Development Account Program (IDA). The Center for Self-Determination and Kern Regional Center have been collaborating for several years. Participants with developmental disabilities in Kern County can begin an IDA to buy a home, advance their post-secondary education, or start/expand their micro-enterprise. To subscribe email EQUITY.
The Center for Self-Determination has now developed a legislative model for changing the federal Social Security and Medicaid Acts in order to:
Create more flexibility in Medicaid especially around housing and work;
Create incentives to work that include higher income disregards under Social Security, and
Allow for targeted savings accounts that do not penalize individuals for saving earned and unearned income in special "freedom" accounts.
This proposed legislation would direct the appropriate federal agencies to accept streamlined applications for a single simplified dual Medicaid and Social Security plan and/or Medicaid waiver. See both the proposal, background paper and a summary of cost and quality data on the Center's website: Contact
Tom Nerney
Disability activists from 15 countries and every state in the U.S. continue to denounce the "therapy" administered to a young girl from Seattle, Washington, known as "Ashley X". In addition to the Center for Self-Determination
, more than 550 individuals and 80 organizations signed an online
statement of solidarity against medical procedures that strip people with disabilities of their human dignity. Susan Fitzmaurice, a Michigan disability advocate, created the Ashley Solidarity Statement web site in concert with the Michigan Partners for Freedom
. The Partners for Freedom, created at the Center's 2004 Atlanta Immersion Learning event, actively work throughout the state of Michigan to enhance the demand for self-determination.
Written at the request of the Arc of Connecticut, this article by Tom Nerney outlines two issues in
"The Assault on Ashley". Failure to develop an ethical grounding that would confront the utilitarian ethics of this assault and the extent human services contribute to a view of individuals with intellectual and or cognitive disabilities that allows some to so freely disparage them and render them less than equal under the law. For complete article CENTER PUBLICATION
Late last year Marsha Katz of Missoula, Montana was appointed to the Social Security Advisory Board
(SSAB). This Advisory Board is an independent, bipartisan board created by Congress to advise the President, the Congress, and the Commissioner of Social Security on matters related to the Social Security and Supplemental Security Income (SSI) programs. Marsha Katz is an active member of the Center for Self-Determination, ADAPT and Not Dead Yet. She is an experienced trainer in all aspects of the Social Security Disability Insurance (SSDI) and Supplemental Security Income programs and currently works as an Organizational Consultant for the Rural Institute at the University of Montana. To contact Ms. Katz email
In Massachusetts, Representative Tom Sannicandro has filed legislation to support the growth of self-determination in the Commonwealth. Representative Sannicandro is a great ally in the state legislature and has a personal commitment to self-determination for people with disabilities with his vision for his son, who is a 22 year-old man with a developmental disability. The legislation is now being reviewed by the Joint House and Senate Children, Families and Persons with Disabilities Committee. The legislation supports the work of the Massachusetts Community-Based Personal Assistance Services and Supports CMS grant. More information will be available next month. If there are any questions, you can contact Jeff Keilson at 781 910-7216 or at or the Office of Representative Sannicandro at 617 722-2210.
Early in March, the Dane County Department of Human Services Adult Community Services hosted an exciting learning event bringing together asset based community development with self-determination. Organized by
Dennis Harkins from A Simpler Way, Pat Carver, with Community Drive, Inc and
Mike Green from the ABCD Institute
to deliberately combine the strengths of individuals we serve, their families, the individual budgets and resources available to them, community mobilizing, and our services system. Teams from Dane County explored techniques of asset based community development and began to seed ideas about collective action at building community through individual budgets. (based on the Center's Guaranteeing the Promise of Freedom). To inquire about how this future learning might unfold in your community contact Dennis Harkins
The Center participated in a two day training on self-determination and individual budgeting in Corpus Christi in April. The event was sponsored by American Habilitation Services (AHS) in conjunction with
Imagine Enterprises. Participants were very enthusiastic about how the principles of self-determination and personalized supports could change people's lives. The second day Center Resource Guides Vickie Vining and Jan Lampman worked with the AHS staff of to think about strategies to bring their organization closer to the principles of self-determination. They made commitments in each department to pursue ways that people with disabilities could have more control over their lives. To support self-determination Imagine Enterprises hosts a sister website Self-Determination for Texas.
Leidy writes and sings humorous and thought-provoking songs about life in the human service system. His songs touch self-determination, advocacy, personal care assistance, hiring employees, and the human services bureaucracy. In many learning events sponsored by the Center Peter Leidy's songs are played. Often through song, the message for change is heard in ways that previously could not penetrate deep defenses often inherent in human service. Leidy recently released his third Human Serviceland CD: The Great Escape.
"We just need to stop accepting what is and start creating what should be."
- Dale DiLeo in "Raymond's Room: Ending the Segregation of People with Disabilities"
Training Resource Network, St. Augustine, Florida In this compelling book, DiLeo uses research, anecdotes, and stories, to take aim at the billion-dollar "disability industrial complex" that segregates people with significant disabilities from mainstream life.
You are receiving this newsletter because you have signed up to be on the e-mailing list of the Center for Self-Determination, you have been referred by a friend or have otherwise expressed interest.
Kathy McGeathy The Disability Network 810-742-1800
From: Robert Allison [mailto:Robert.Allison@...] Sent: Friday, May 04, 2007 10:24 AM To: Robert Allison Subject: Home Care Jams Senate Hearing With Protests
The Michigan Quality Home Care Coalition made some serious noise in Lansing yesterday. Our message: "Hands off home care!"
Best graphs from the article below:
Members of the committee had to come in through a line of picketers, and a packed committee room, seeking to avoid pay cuts for home care workers, as well as public health officials warning of loss of services in their communities.
"I love my clients," said Beverly Yanson, a worker in Wayne County. "Even with five clients I can barely make ends meet. If my wages were cut, I would have to quit. My five clients would have to go to a nursing home. They want to live out the rest of their lives in dignity. They can't do that in a nursing home."
Others argued that the job often takes longer than regulations permit them to be paid.
The argued, at minimum, their pay should not be cut.
Sen. Deborah Cherry (D-Burton) urged pay increases for people who she said are not "getting really the wage they deserve. If we want to have quality care for our elderly, we need to pay a living wage to the people who provide those services."
The MQHCC brought 150+ to the hearing. Mary Ablan told me that this was the first time she'd ever seen a DCH subcommittee hearing be closed by the police over fears that they'd get a fire marshall violation. We filled another room across the street in the Farnum Building where overflow watched on TV.
Overall, decent event. I heard afterwards from one of the senators on the subcommittee. "You guys really made your point. It was all anyone up there could talk about afterwards."
HOME HEALTH WORKERS, PUBLIC HEALTH SEEK MORE FUNDING
Home health care workers and public health officials urged the Senate Appropriations Community Health Subcommittee to add to, rather than cut, funding for the Department of Community Health for both the current and coming fiscal years.
Members of the committee had to come in through a line of picketers, and a packed committee room, seeking to avoid pay cuts for home care workers, as well as public health officials warning of loss of services in their communities.
The bill (HB 4344*), which is still technically before the House Appropriations Committee, provides $11.5 billion ($2.99 billion general fund) as reported from the House subcommittee.
Home care workers and their patients argued that, should the cuts passed in March as part of the Senate efforts to patch the current year budget hole be implemented, more people will have to be placed in nursing homes because the workers will need to find other work. The current budget provided a minimum $7 per hour and provided a 50-cent increase for those making more than that, but the Senate-passed budget cuts eliminated that wage increase.
"I love my clients," said Beverly Yanson, a worker in Wayne County. "Even with five clients I can barely make ends meet. If my wages were cut, I would have to quit. My five clients would have to go to a nursing home. They want to live out the rest of their lives in dignity. They can't do that in a nursing home."
Others argued that the job often takes longer than regulations permit them to be paid.
The argued, at minimum, their pay should not be cut.
Sen. Deborah Cherry (D-Burton) urged pay increases for people who she said are not "getting really the wage they deserve. If we want to have quality care for our elderly, we need to pay a living wage to the people who provide those services."
Both workers and patients noted it is not just the elderly receiving the care. Home workers also provide care to those with disabilities and mental illness.
The state also needs to find additional funds for the public health system, said Jean Chabut, director of the Public Health Administration. While the Public Health Code requires the state to match communities in their public health spending dollar for dollar, she said the state is some $20 million short of meeting that goal. She said the $40 million the state now spends on local public health has been flat for several years.
And overall funding for public health has dropped to about $98 million for 2007-08 from $133 million in 2001-02.
"Our public health system in the state is getting dangerously stressed," Ms. Chabut said.
And she said the local departments have looked for savings. She noted the total number of health departments has dropped to 45 from 50 as a way of reducing administrative costs. They are also looking at ways of sharing or combining programs to reduce administrative costs without physically consolidating.
She noted that consolidations can also be a detriment. While a larger agency needs fewer administration workers, it may also need fewer facilities, meaning those who need services have to travel further.
Public health programs will take a further hit from the elimination of the Healthy Michigan Fund. The cuts will mean the end of many of the department's chronic disease outreach programs, Ms. Chabut said, including programs on diabetes
"Not only do we lose the state resources, but we also lose the ability to match federal funds," she said.
She and others noted those chronic care outreach programs are important given that of the top 10 causes of death in the state, most are chronic diseases. Number one remains heart disease.
A variety of school officials also joined the call for additional funds, noting that the elimination of the Healthy Michigan Fund as proposed for the 2007-08 budget would eliminate health education funding under the Michigan Model for Comprehensive School Health.
"Our small programs are reaping some amazing results," said Robert Miner from Tuscola Intermediate School District. Not only has the ISD used the funds for prevention programs on drug and alcohol use, but has also provided direct nutrition education to families in the region and provided security equipment in schools.
MEDICAID CUTS: At the same time, hospitals and physicians were in Lansing protesting Governor Jennifer Granholm's proposed cuts in Medicaid reimbursement rates.
Cutting payments to Medicaid will hurt residents and health care in the state, a group of hospital officials, doctors and health care providers said at a rally at the Capitol Thursday.
Ms. Granholm announced last week that Medicaid providers would receive a 6 percent cut in provider fees effective June 1 unless a budget plan is approved. Ms. Granholm said she was forced to make the cuts because the state Legislature for not doing enough to fix the state's budget deficit.
Spencer Johnson, president of he Michigan Health and Hospital Association, said cutting Medicaid will end health care for thousands of children, disabled residents and seniors.
The state's Medicaid caseload is near a record high of 1.6 million people, a 41 percent increase since 1999, so cuts would put the system under even more strain, the groups said.
"When a physician has no choice but to close the doors and leave a community, everyone losses access to health care," said Dr. AppaRao Mukkamala, president of the Michigan State Medical Society. "We already have cut Medicaid to the bone. Any more cuts will go into the marrow."
The groups also pointed to a survey released in February by the Michigan Hospital Association that said more cuts to state health care programs would cause around 4,000 residents to lose their health care jobs and hospitals would have to delay or reduce programs and projects that help residents.
Hospitals, home health care workers protest cuts 5/3/2007, 4:19 p.m. ET By TIM MARTIN The Associated Press
LANSING, Mich. (AP) — Michigan health care providers on Thursday urged lawmakers to come up with a solution to avoid Medicaid payment cuts scheduled to take effect June 1.
Home health care workers also rallied in Lansing, protesting suggested budget cuts that would trim their wages and hours.
Gov. Jennifer Granholm this week told hospitals and doctors that they will get 6 percent less for treating low-income or disabled patients unless lawmakers quickly approve a tax increase or come up with a different way to cover the costs. She blamed the possible cuts, similar to those planned for schools, on legislative inaction.
Michigan Republican Party chairman Saul Anuzis this week said Granholm is "extorting Michigans most vulnerable citizens as a way to lobby for unnecessary tax increases."
At a Capitol press conference, health care providers said thousands of Michigan children, the elderly and disabled could have their quality of care reduced if the Medicaid cuts take effect.
"Our message is this is a matter of life and death," said Spencer Johnson, president of the Michigan Health and Hospital Association, which represents the state's 146 nonprofit hospitals.
About one in seven Michigan residents is covered by Medicaid. Health care providers fear more doctors will stop seeing Medicaid patients because they lose money on reimbursement rates.
Health care providers said the Medicaid cuts could lead to layoffs at hospitals and longer waits in emergency rooms and clinics.
Home health care workers marched through downtown Lansing and then filed into a state Senate committee hearing.
Earlier this year, the Republican-led Senate voted to save more than $15 million by reducing the wages and hours for privately-contracted home health workers who care for 40,000-plus low-income seniors and the disabled. The Senate plan would reduce wages for home care workers, already among the lowest-paid in the mental health system, to $7 per hour. It also would eliminate a 2-percent wage increase passed last year by the Michigan Legislature.
Beverly Yancey, a home health care worker from Detroit, worried the cuts would force more people out of the business and hurt the quality of care for patients.
"Our clients need more time and more care," she said. "This would only make it worse."
Democrats generally oppose the plan and Granholm likely would veto the bill if it ever reached her desk.
But it's still a topic of discussion as state leaders try to eliminate a budget deficit for this fiscal year that currently is estimated at about $700 million.
Granholm wants to raise taxes to avoid the health care and school funding cuts. Republicans have opposed a tax increase, including Granholm's stalled 2 percent tax on services.
House Democrats have voted to close a few of what they call tax loopholes, but they haven't endorsed a specific general tax increase, either.
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From: Michael Bray <michaeljbray2@...> Reply-To: Michigan-DSP@yahoogroups.com To: MADSP Listserve <Michigan-DSP@yahoogroups.com> Subject: [Michigan-DSP] Fwd: IMPORTANT STATE WIDE CALL TO ACTION to Prevent Cuts in Services - Statewide Call-in Day April 18 Date: Fri, 13 Apr 2007 08:10:43 -0700 (PDT)
FYI concerning possible severe cuts in services to families. Pass this along to other listservs if you get a chance.
From: Judy Lynn Cerano <az9113@...> To: "Dr. Barbara LeRoy" <b_le_roy@...>, Angela Martin <Angela.M.Martin@...>, Claudette Cameron <claudettewcameron@...>, Drucilla Daniels <drucillahdaniels@...>, Elizabeth Janks <e.janks@...>, Julia Hernandez <JuliaPHernandez@...>, Michael Bray <mikebray@...> Subject: Fwd: IMPORTANT STATE WIDE CALL TO ACTION to Prevent Cuts in Services - Statewide Call-in Day April 18 Date: Fri, 13 Apr 2007 11:07:34 -0400 (EDT) >I know that some of you have received this, but wanted to emphasize its importance. Can we get this information out to the families in the 360 project? > >Judy > >Judy Cerano >Public Policy Coordinator >Developmental Disabilities Institute at >Wayne State University >313.577.6389 or >248.330.8191
From: "ELMER CERANO" <ECERANO@...> To: "Jay Kaplan" <kaplan@...>, "Fred Frese" <fjfrese@...>, "Ellen Sugrue Hyman" <Ellensugruehyman@...>, "Cerano, Jayne" <Cerano-Jayne@...>, "Dohn Hoyle" <dhoyle@...>, "Lisa Piercey (E-mail)" <lpiercey@...>, "Ellen Weaver" <eweaver@...>, "Dawn Pischel" <dpischel@...>, <Cdingell@...>, <ekillins@...>, "Jim Merritt" <moremoney222@...>, <jdehem@...>, "Kathy McGeathy" <kathym@...>, <aaron.holman@...>, "Steve Perdue" <sperdue@...>, "Courtney Trunk" <courtneytrunk@...>, "Patricia Dudek" <pdudek@...>, "Len Fleck" <Len.Fleck@...>, "David A. LaLumia" <dlalumia@...>, "'David Price'" <dprice@...>, "Ellen Hyman" <ellen@...>, "'Norm DeLisle'" <ndelisle@...>, "Mark Brewer" <midemparty@...>, "Vendella Collins" <CollinsVe@...>, "Terry Hunt" <huntt@...>, "Jane Reagan" <reaganJ@...>, "Pamela Bellamy, Ph.D." <bellamy@...>, <Mark.Lezotte@...>, "mitch tomlinson" <mtomlinson@...>, "Dan Mulhern" <danmulhern@...>, <higano@...>, "Cheryl Polite" <cherylp@...>, <langel@...>, "Paul Landry" <plandry@...>, "Linda Potter" <potter@...>, "Amy Maes" <amym@...>, "Joe Skiba" <jaskiba@...>, "Elizabeth Janks" <ab3707@...>, "Judy Cerano" <az9113@...>, <barbara_le_roy@...>, <arte@...>, "Diann Geran" <digeran@...> Subject: IMPORTANT STATE WIDE CALL TO ACTION to Prevent Cuts inServices - Statewide Call-in Day April 18 Date: Thu, 12 Apr 2007 16:12:50 -0400 > > > >>> skeneeri@... 4/12/2007 3:44 PM >>> >Dear Elmer Cerano, > >Make Your Voice Heard - Take Action to Prevent Cuts in Services > Statewide Call-in Day Wednesday, April 18th 9:00 a.m. - 5:00 >p.m. > >On Wednesday April 18th, please take a moment of your time to >call your State Representative and State Senator and send a >clear message to them that we can't afford to make more cuts in >the services relied upon by Michigan residents. > >Anti-tax/anti-government groups will be at the Capitol on April >18th to encourage the legislature to continue cutting and to not >increase revenue. It's crucial that you help to ensure that this >is not the only message heard by legislators on April 18th. As >you already know, the state is facing a $3 billion shortfall in >revenue between this fiscal year and next year. It's time to >Move Michigan Forward and for your legislators to understand >that they can't cut their way of this problem without seriously >impacting services in their districts. > >You can easily find the number for your State Representative at >http://www.house.mi.gov/find_a_rep.asp and the number for your >State Senator can be found at www.senate.mi.gov . > >The following are some general talking points for your call. If >possible, share stories and data about how your community has >been affected and will be affected by cuts in the state budget. > >*The state is facing a $3 billion shortfall in revenue and we >can't cut our way out of this budget crisis. > >*State programs and services have already been reduced by $4 >billion since 2001, and additional cuts will be devastating to >our community. > >*It's time to Move Michigan Forward by increasing revenue and >investing in services and programs to ensure that the quality of >life in Michigan is one in which communities, businesses and >families thrive. > >*Swift action is needed to reinvest in services critical to all >Michigan residents. > >Please share this message with others in your networks. For more >information on the state's fiscal crisis please visit >www.milhs.org and www.mnaonline.org . > >Don't Sit Back and Wait for the Cuts. Make Your Voice Heard to >Protect Vital Services - Your Legislators Need to Hear from You >Now ! > >-------------------------------------------------- > >Visit the web address below to tell your friends about this. > >http://givevoice.org/join-forward.html?domain=mna&r=dpauOX91zntW > >If you received this message from a friend, you can sign up for >Michigan Nonprofit Association - Advocacy Action Network at: > >http://givevoice.org/mna/join.html?r=dpauOX91zntWE > >-------------------------------------------------- > >This message was sent to ecerano@.... To modify your email >communication preferences or update your personal profile, visit >your subscription management page at: > >http://givevoice.org/mna/smp.tcl?nkey=g36w8s42x6n8b8& > >To stop ALL email from Michigan Nonprofit Association - Advocacy >Action Network, reply via email with "remove or unsubscribe" in >the subject line, or use the following link: > >http://givevoice.org/mna/remove-domain-direct.tcl?ctx=center&nkey=g36w8s42x6n8b8& > > >****************************** >This email is Powered by Convio, Inc. > >http://www.convio.com > >******************************