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A pdf version of
this newsletter can be found at
http://www.pascenter.org/newsletter/CenterforPASBulletinMar05.pdf
Previous newsletters
can be found at http://www.pascenter.org/newsletter
=========================
Center
for Personal Assistance Services Bulletin
March 2005--Volume 2,
Issue 2
IN THIS
ISSUE:
1) Harkin introduces Senate bill
to support community-based services
2) New and
updated reports on home and community-based services
available
3) Updated report
on community integration lawsuits now online
4) Medicaid HCBS
program data viewable by state, and for the entire United States,
2001
5) New
state-by-state information available on Center for Personal Assistance
Services website
6) Center
partner Job Accomodation Network (JAN) to host annual
conference in San Francisco
7) Center advisor wins national
award
8) Center
news
9) Kaiser Family Foundation
releases guides on Medicaid and Medicare
10) Report released on informal
caregivers
11) Report released on
consumer-directed programs for older adults
12) Government Accountability
Office (GAO) releases report on employers and One-Stop
services
13) The World Institute on
Disability announces a new training video and curriculum for medical
providers
14) New book
released on care for elderly parents
15) SELECTED CONFERENCES DURING
April, May, and June 2005
==========
The Center for Personal Assistance
Services provides research, training, dissemination and technical
assistance on issues of personal assistance services (PAS) in the
United States. Personal assistance services (PAS) refer to help
provided to people with disabilities to assist them with tasks
essential for daily living. These tasks include bathing,
dressing, getting around, toileting, eating, shopping, remembering
things, and other activities. PAS, along with assistive
technology such as wheelchairs, text readers, and hearing aides, help
people with disabilities to participate in activities at home, at
work, and in the community.
The purpose of this newsletter is to
provide the latest news on issues relating to formal and informal PAS,
home & community-based services, the PAS workforce, and workplace
PAS within and outside of the Center.
==========
1) Harkin introduces Senate bill
to support community-based services
Senator Tom Harkin (D-IA) introduced
the Medicaid Community-Based Attendant Services and Supports Act of
2005 (MICASSA) Wednesday, February 16, 2005. The legislation,
co-sponsored by Senator Arlen Specter (R-PA), would increase access to
community-based services and supports to Americans with disabilities
and older Americans. Similar legislation was introduced in the
House.
"I strongly believe that it is
important to level the playing field and give eligible individuals
equal access to community-based services and supports," Harkin
said. "This vital legislation will open the door to full
participation by people with disabilities in our neighborhoods,
workplaces, our economy, and our American Dream."
Specifically, MICASSA gives
individuals who are currently eligible for nursing home services and
institutional facilities equal access to community-based attendant
services and supports, and establishes a demonstration project to
evaluate service coordination and cost sharing approaches for those
eligible for both Medicaid and Medicare. The legislation also provides
additional funding to states to help them reform their long term care
systems and increase the provision of home and community based
services.
"This legislation is needed to
truly bring people with disabilities into the mainstream of society
and provide equal opportunity for employment and community
activities," Harkin said.
The following Senators co-sponsored
the Harkin-Specter legislation: Edward Kennedy (D-MA),John Kerry
(D-MA), Joseph Biden (D-DE), Mark Dayton (D-MN), Mary Landrieu (D-LA),
Jon Corzine (D-NJ), Charles Schumer (D-NY), Frank Lautenberg (D-NJ),
Joseph Lieberman (D-CT), and Christopher Dodd (D-CT).
For more information, see
http://harkin.senate.gov/news.cfm?id=232219
==========
2) New and
updated reports on home and community-based services
available
An update of the report 'Federal Systems Change Grants to
States and Territories: 2001-2004' is now published on the PAS
Center website. The table provides state-by-state information on
federal Systems Change Grants for the period 2001-2004 and includes
all grants awarded in 2004. This report is one in a series of five
reports available online that present information on national
initiatives to develop home and community-based services (HCBS)
including the extensions to the existing Medicaid HCBS program
infrastructure and federal funding for new innovations. The reports
are:
1. Federal Systems
Change Grants to States and Territories: 2001-2004
2. Home and
Community-Based Services: Federal Funding to States.
3. Home and
Community-Based Services: Selected Robert Wood Johnson Foundation
Grants to States.
4. Home and
Community-Based Services: Medicaid Research and Demonstration
Waivers.
5. Home and
Community-Based Services: State-only funded programs.
Each of the reports
provide summary information accessible to the public, consumers,
advocates, researchers and professionals about federal funding sources
and the programs that are developing as a consequence of this funding.
For example, the 'Federal Funding to States' report includes
information on HCBS funded by the Older Americans Act.
For more information on Federal Systems Change Grants to States and
Territories: 2001-2004, go to:
http://pascenter.org/systemschange/
For more information on Home and Community-Based Services: Federal Funding to
States, go to:
http://www.pascenter.org/federal_funding_to_states
For more information on Home and Community-Based Services: Selected Robert
Wood Johnson Foundation Grants to States, go to:
http://www.pascenter.org/foundation_grants/
For more information on Home and Community-Based Services: Medicaid Research
and Demonstration Waivers, go to:
http://pascenter.org/demo_waivers
For more information on Home and Community-Based Services: State-only funded
programs, go to:
http://pascenter.org/state_funded/
==========
3) Updated report
on community integration lawsuits now online
The online report 'Home and Community Based Services:
Olmstead and Olmstead-related Lawsuits' has been revised for 2005 to
include recent lawsuits. The details of existing cases have also been
revised to reflect progress in cases. The report includes 141 Olmstead
and Olmstead-related lawsuits concerning community integration which
have been brought in 42 states, Guam and Washington D.C.
For more information, go
to:
http://www.pascenter.org/olmstead/
==========
4) Medicaid HCBS program data viewable by state, and for the entire
United States, 2001
From data collected
by PASCenter researchers, two sets of information concerning Medicaid
home and community based services (HCBS) are now viewable by state,
and for the entire United States, on the PASCenter website. First, a
series of tables report the most recent available (2001) participant
and expenditure data for the three Medicaid HCBS programs: (1) the
mandatory home health benefit, (2) the optional state plan personal
care services benefit, and (3) optional 1915(c) waivers. Second,
tables report program descriptions and contact information for all
Medicaid 1915(c) waiver programs operating in 2004.
For more information, go to:
http://www.pascenter.org/medicaid/
==========
5) New
state-by-state information available on Center for Personal Assistance
Services website
State-by-state
resources can be found on the Center for Personal Assistance Services
website at http://www.pascenter.org/state_based_stats/index.php.
In the past quarter, several new and updated resources are now
available by state, including
* An updated
estimate of the number of PAS workers and workers per persons with
self-care difficulty from the Census' 2003 American Community Survey
(http://www.pascenter.org/state_based_stats/state_statistics_2003.php?title=State+and+National+Disability+Data)
* The number
of participants and expenditures for Medicaid 1915(c) Waivers for
2001.
(http://www.pascenter.org/state_based_stats/medicaid_waiver.php?title=Medicaid+1915%28c%29+Waiver+Data+by+State)
* An updated list of
Olmstead cases in each state.
(http://www.pascenter.org/state_based_stats/olmstead_home.php?title=Olmstead+Decision+and+Lawsuits+by+State)
* An update of the
searchable database of recently and currently funded research
and demonstration projects to expand and improve the
personal assistance services workforce in the United States.
(http://www.pascenter.org/state_based_stats/workforce_projects_inventory_home.php?title=Workforce+Development+Projects+in+PAS)
* Contact
information and descriptions for each waiver offered by state.
(http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?title=State%20Medicaid%20Waiver%20Contact%20Information%20and%20Descriptions)
* A list of PAS
Workforce resources related to each state. The list data is provided
and maintained by Center partner National Clearinghouse for the Direct
Care Workforce
(http://www.pascenter.org/state_based_stats/xml.php?title=PAS+Workforce+Library)
==========
6) Center
partner Job Accomodation Network (JAN) to host annual
conference in San Francisco
The Job
Accommodation Network's (JAN) Annual Conference, Empowering
Employers to Build an Inclusive Workforce will be held in San
Francisco on September 26-27, 2005. This event provides a unique
learning opportunity for human resource managers, compliance officers,
disability program managers, and other professionals to discover ways
that enhance an organization's ability to accommodate and employ
people with disabilities. Instruction by JAN staff and national
experts will include three training tracks addressing accommodation
strategies, ADA/legal issues, and innovative employment practices.
Invited keynote speakers include Dr. Roy Grizzard, the Assistant
Secretary for Disability Employment Policy for the Office of
Disability Employment Policy, U.S. Department of Labor; Michael J.
Lotito, partner with Jackson Lewis; Dinah Cohen, Director for
the Department of Defense (DoD) Computer/Electronic Accommodations
Program (CAP); and Paul Steven Miller, Professor of Law, University of
Washington School of Law.
Registration is
limited to 300 participants. The conference will also have
booths from exhibitors of goods and services.
For more
information, go to http://conference.jan.wvu.edu/
==========
7) Center advisor wins national
award
Center for Personal Assistance
Services advisor Paul Longmore recently became the first professor to
win the Henry B. Betts Award from the American Association of People
with Disabilities. Longmore, professor of history, was honored for his
work as a disability rights activist and leader in the academic field
of disability studies. The award comes with a $50,000
prize.
For more information, see San
Francisco Chronicle news story at
http://sfgate.com/cgi-bin/article.cgi?f=/c/a/2005/03/09/BAGG1BMD5C1.DTL
and San Francisco State University
news story at
http://www.sfsu.edu/~news/2005/spring/26.htm
==========
8) Center
news
* Center researcher
Martin Kitchener has been awarded a new grant for a study of states'
long-term care strategy and performance in expanding access to home
and community-based services. The project will begin in May
2005.
* Center researchers
Martin Kitchener and Terence Ng will present a symposium on
national trends in 1915(c) HCBS Waivers at the National Association of
State Units on Aging (NASUA) Annual HCBS Waiver Conference in Orlando,
Florida in May. The symposium will be chaired by Martin Kitchener with
three discussants: Mary Jean Duckett (CMS), Bridget Simone (New York
Medicaid) and Beth Kidder (Florida Medicaid). More information on the
symposium can be found on the Center website at
http://www.pascenter.org/presentations/index.php
* The Shepherd Center in
Atlanta, Georgia has developed a training for staff to help consumers
understand consumer direction in personal assistance services.
They have used printed versions of the consumer training section of
the Center for PAS website, developed by InfoUse
(http://www.pascenter.org/pas_users/index_old.php), as the textbook
for their training.
* Center researchers Mike Oxford and
Lewis Kraus along with Center advisor Steven Gold will
conduct a workshop entitled "Living Independently and Personal
Assistance Services" at the 2005 National Council on
Independent Living (NCIL) Independent Living (IL)
Conference in Washington, DC in July.
==========
9) Kaiser Family Foundation
releases guides on Medicaid and Medicare
The Kaiser Family Foundation
recently released new guides, prepared by Bob Williams and Henry
Claypool of Advancing Independence and Jeff Crowley of the Georgetown
University Health Policy Institute, that explain the role of Medicare
and Medicaid for roughly 20 million children, adults and seniors with
disabilities.
These guides offer a basic
introduction to the Medicare and Medicaid programs, including answers
to questions such as:
- How do people with disabilities apply
for coverage under Medicare or Medicaid?
- What is Medicare's policy for covering durable medical equipment?
- Where can people with disabilities turn if they need help in
applying for Medicaid?
- How do people with disabilities appeal Medicare coverage
decisions?
- Can a person with a disability who has Medicare and/or Medicaid be
employed and still keep their coverage?
To retrieve these guides in PDF or
HTML format, go to
http://www.kff.org/medicare/med020705pkg.cfm
==========
10) Report released on informal
caregivers
The Center on an Aging Society at
Georgetown University has released the first in a series of Data
Profiles on informal caregivers of older persons titled, "A
Decade of Informal Caregiving: Are today's caregivers different than
informal caregivers a decade ago?"
Family and friends are the primary
source of long-term care provided to people who need assistance
performing basic everyday activities. This Profile reports that
spouses and adult children continue to be the primary caregiver - the
one who takes the responsibility for coordinating the care and often
provides most of the care needed.
The majority of primary caregivers
are women, but the proportion of men as primary caregivers has
increased over the past decade. Compared to a decade ago, a
slightly smaller proportion of primary caregivers have child-care
responsibilities and similar proportions of informal caregivers are
employed today as were a decade ago. However, fewer caregivers
report making adjustments to their current employment situation in
order to provide care to an older family member. As the
population continues to age, the composition of informal caregivers
will inevitably change as well.
The series of Data Profiles, Family
Caregivers of Older Persons is supported by a grant from the AARP
Andrus Foundation and a grant from the Mathers LifeWays. This
Data Profile was prepared by Katherine Mack.
For more information, go to
http://ihcrp.georgetown.edu/agingsociety/pubhtml/caregiver1/caregiver1.html
To retrieve a PDF of the report go
to:
http://ihcrp.georgetown.edu/agingsociety/pdfs/caregivers1-E.pdf
==========
11) Report released on
consumer-directed programs for older adults
The National Association of State
Units on Aging (NASUA) and The National Council on the Aging (NCOA)
have released a report documenting the scope and characteristics of
the growing number of consumer-directed programs for older adults
across the United States. The report, "State of the States in
Consumer-Directed Home and Community Based Services Results of a 2004
Survey of State Administrators, an Opinion Survey & Telephone
Interviews", contains information about some 30 states operating
58 consumer-directed programs.
Report findings document the scope and characteristics of
consumer-directed services; state aging administrators' views about
consumer direction for older people; the motivating factors and
barriers to the development of these programs; and effective practices
in providing consumer direction to older people.
The research and the report were developed through a collaborative
effort of NASUA and NCOA; with support from The Robert Wood Johnson
Foundation. Matthew Greenwald and Associates conducted the surveys and
initial data analysis. Donna Lind Infeld, Ph. D. of The George
Washington University, completed the data analysis and wrote the
report.
The report and the executive summary
as well as numerous resources and articles on consumer-directed
services may be downloaded from the project Web site.
For more information or to retrieve
the report, go to:
http://www.consumerdirection.org/news.php
==========
12) Government Accountability
Office (GAO) releases report on employers and One-Stop
services
The Government Accountablility
Office (GAO) recently released a letter report titled
"Workforce Investment Act: Employers Are Aware of, Using, and
Satisfied with One-Stop Services, but More Data Could Help Labor
Better Address Employers' Needs." The report
(GAO-05-259) found that while about half of all
employers are aware of their local one-stops, awareness increases with
employer size, with about half of small, two-thirds of medium, and
three-quarters of large employers knowing about their local one-stops.
The report also found that, of all employers aware of the one-stops,
about three-quarters of large employers are likely to use one-stop
services, while approximately one-half of medium and one-quarter of
small employers are likely to do so. Employers of all sizes primarily
use one-stop services to help fill job vacancies.
To get a copy of the report, go to:
http://www.gao.gov/cgi-bin/getrpt?GAO-05-259
For highlights of the report, go to:
http://www.gao.gov/highlights/d05259high.pdf
==========
13) The World Institute on
Disability announces a new training video and curriculum for medical
providers
"Access to Medical Care: Adults
with Physical Disabilities", a 22 minute video about mobility,
vision, hearing and communication impairment in outpatient settings
has been released by the World Institute on Disability. The
video offers physicians, dentists, nurses, social service and support
staff, an introduction to crucial issues that affect the quality of
care for patients with disabilities.
Through interviews with expert
medical providers and a diverse group of people with mobility, vision,
hearing and communication impairments, this video introduces and
clarifies key concepts in treating adults with physical disabilities.
Appropriate for out-patient clinical settings, the video:
* Explores the views and experiences
of people with disabilities and providers in establishing rapport and
effective communication,
* Addresses cultural competence,
access and communication issues which often arise in the
clinic,
* Identifies common myths and
stereotypes which interfere with accurate assessment of
patients,
* Explains barriers which result in
disparities in health care delivery, including physical/architectural,
communication, attitudinal and social/economic policy,
* Identifies the most common access
and accommodation needs of adults with physical, sensory and
communication disabilities, as required by the Americans with
Disabilities Act, and explains feasible, cost-effective
solutions,
* Clarifies essential principles of
quality care in treating people with disabilities,
* Reinforces key learning points in
bulleted graphics (available in printed handouts in the
curriculum).
Treating Adults with Physical
Disabilities, an accompanying training curriculum offers a case-based
learning exercise and extensive in-depth reference materials. It
provides essential knowledge for appropriate provision of care and
compliance with the Americans with Disabilities Act. The curriculum
emphasizes access and communication as the fundamental components in
addressing health care disparities for people with disabilities.
Developed by the World Institute on Disability, Oakland,
CA,
www.wid.org, in collaboration
with Center for Health Care Strategies, Kaiser Foundation Multi-Media,
California HealthCare Foundation.
For more information, contact: Dr.
Marsha Saxton, 510-251-4349.
==========
14) New book
released on care for elderly parents
Doing the Right Thing: Taking Care of Your Elderly Parents Even If
They Didn't Take Care of You
By Roberta Satow, PhD
As we enter
middle-age, more and more of us must confront the prospect of caring
for our elderly parents. It's difficult enough when our
relationships with them were close and loving. But it's especially
difficult, even destructive, when our relationships with our parents
were troubled or toxic. When faced with caring for a father or mother
who didn't take care of us, old wounds reopen. We plunge back into
crazy-making feelings from our childhoods as though we'd never grown
up. Fortunately, a brand-new book offers a compassionate and healing
approach to navigating these challenges. Sociologist and
psychotherapist Dr. Roberta Satow offers the wealth of her clinical
knowledge, interviews with fifty caregivers, and her own candid
accounts of caring from her ailing, elderly mother. The result is an
emotional as well as practical guide for taking care of your parent -
and, perhaps even more importantly, for using the experience as a way
to resolve old issues and grow as a human being.
Available March 17,
2005
A Tarcher/Penguin
hardcover, ISBN 1-58542-392-0
==========
15) SELECTED CONFERENCES DURING
April, May, and June 2005
For more detail about these
conferences, go to:
April
April 13 - April 16, 2005
Western Social Sciences Association 47th Annual Conference
Hosted By: Western Social Sciences Association
Location: Albuquerque, New Mexico
http://wssa.asu.edu/wssa_conference.htm
April 26 - April 28, 2005
8th Annual Coordinated Leadership Conference
Hosted By: California Association of Area Agencies on Aging
Location: Ontario, CA
http://www.c4a.info\events
May
May 02 - May 03, 2005
National Forum of the Thirty-First Institute on Rehabilitation
Issues
Hosted By: Rehabilitation Services Administration (RSA)
Location: Doubletree Crystal City Hotel, Arlington, Virginia
http://www.gwu.edu/%7Eiri/forum.htm
May 15 - May 18, 2005
21st National HCBS Waiver Conference
Hosted By: The National Association of State Units on Aging
Location: Orlando , Florida
http://www.nasua.org/waiverconference/
Center for PAS Presenting
May 17 - May 19, 2005
National ADA Symposium and Expo - The Annual Conference on Disability
Issues
Hosted By: The Network of ADA & Information Technology Centers, a
NIDRR project
Location: Kansas City, Kansas
http://www.adaupdate.org/Symposium.html
May 19 - May 21, 2005
Annual conference on the ADA and disability-related laws
Hosted By: Great Plains ADA & IT Center
Location: Kansas City-Overland Park Convention Center, in Kansas City,
MO
http://www.adaproject.org
May 20 - May 21, 2005
World of Possibilities Expo-Bigger and Better in 2005
Hosted By: Caring Communities
Location: Maryland State Fairgrounds, Timonium, Maryland
http://expo.caringcommunities.org/main.php
June
June 01 - June 03, 2005
Health Professions: The Lifeline to America
Hosted By: U.S. Department of Health and Human Services, Health
Resources and Services Administration, Bureau of Health
Professions
Location: Marriott Wardman Park Hotel, Washington, DC
http://pascenter.org/documents/Save_the_Date_Notice.pdf
June 01 - June 03, 2005
Fourth Annual Bridges to Employment Conference: Exploring Career
Opportunities for Latinos with Disabilities
Hosted By: Proyecto Visión, North Carolina Division of Vocational
Rehabilitation and Agrability Program; El Centro Hispano; El Pueblo,
Inc.; Cooperativa Latina and Partnerships in Assistive Technology.
Location: Raleigh, NC
http://www.proyectovision.net/english/bridges/index.html
June 18 - June 21, 2005
International Conference on Prevention of Dementia: Early Diagnosis
and Intervention
Hosted By: Alzheimer's Association
Location: Marriott Wardman Park Hotel Washington, D.C.
http://www.alz.org
======================================================
This document was developed by the
Center for Personal Assistance Services, funded by the National
Institute on Disability and Rehabilitation Research (NIDDR) of the US
Department of Education, grant #H133BO31102. The opinions
contained in this publication are those of the grantee/contractor and
do not necessarily reflect those of the US Department of Education.
Please credit the source and support of federal funds.
To unsubscribe to this Newsletter,
please send listserv@... an email from the email address
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Center for Personal Assistance
Services
Department of Social &
Behavioral Sciences
University of California San
Francisco
3333 California Street, Suite
455
San Francisco, D.C.
94118
Telephone: 866-PAS-9577
(866-727-9577)
415-502-7190
TDD/TTY: 415-502-5216
E-mail:
PAS@...
As part of the Center, InfoUse will
email this newsletter periodically to listserve
members.
InfoUse contact
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fax: 510 / 549-6512
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