Hi Deborah, My name is Mandy and my son Dean has been wearing glasses and hearing aides since he was approximately 4 months old. Dean also did the birth to 3...
Hi Mandy:  Thanks for the info. James also has Pierre Robin and Marshalls. When did they fix Dean's palate? And how is his speech now? Have you had...
Dean's palate was repaired on his first birthday...unfortunately we had to go to gainesville and have it taken apart and redone this past may. I wish I had...
Why did they have to repair the palate? Was it repaired incorrectly the first time? Is there anything I should be looking for as far a problems. And some...
The second repair was for speech issues...the varangyl (sp?) flap was insufficient. Basically Dean outgrew his palate. Unfortunately we only had 1 plastic...
Thanks for the pictures - your children are beautiful. James has a eye doctor appointment on October 23rd, so we will see what the Dr. says, and try to get...
CONGRATS!!! on the first year...it truly is the hardest one to get through. It should get lots easier as time goes on. You are taking James to a pediatriac...
Hi: How do the cataracts affect Dean's vision. And if he can't go to a regular eye doctor, who will he go to when he is an adult?  James sees a pediatric...
Hi, sorry its taken me so long to get back to you. James is so adorable....I hate to say it, but Dean wasn't that handsome as an infant. He has really had...
Hi Everyone: Mandy, I appreciate all of the information you gave me, and it sure sounds like you have a great medical team. We live in Northern Wisconsin so...
It sounds like we have very similar teams...ours is called the cranio-facial team so they don't just concentrate on clefts...but I think they make up the...
Hi: I was wondering if you could clue me in on what the recovery is like for palate surgery. How long before he can eat, pain management, etc. It makes us...
The first palate surgery was easier than having a feeding tube placed for Dean. The morning after surgery he was sitting up in an oxygen tent and playing...
Hello everyone:  James is walking!! 13 months old, so just about the same time as our daughter started. We are looking forward to our surgery consult on...
Hi everyone, When Little Dean had his latest surgery to redo his palate the genetics team was able to get our insurance company to pay for the genetic testing...
Hi Mandy:  I would be more than happy to participate. What ages would they like picture of. (I am an avid scrapbooker and have literally dozens of...
Hi Deborah, I am having a hard time on the computer today (the baby keeps shutting it off on me). Can you call me? I know its long distance, but if you...
Hi Mandy: I don't have e-mail at home so I just got your message yesterday and tried to call, but got voicemail. If you would like to give me a call, my...
Just a hello from our family to all of you members. Seems everyone has been busy busy and have not been able to post any messsages or visit the site recently....
Hey!!! Some action on the list! I started wearing hearing aids when I was in second grade but that was 1972 and hearing aid technology has changed DRASTICALLY...
Hi Michel (and the rest of the group)- Our son Nathan has worn hearing aids since he was two months old (mild-severe in one ear - profound loss in the other)....
Good morning all!   My little james (almost 18 months now) had surgery last month to repair the palate and insert ear tubes. Thankfully, all went...
Oh, I forgot to add that in our state, Wisconsin, there is a bill pending before the state senate to require insurance companies to cover hearing aids for...
For the first 8 monthes of Lalo's life he had many ear infections. At 9 months we had the tubes put in and since then he has not had any.Like I said before we...
Michel:  I heard back from my resource at Weisman Center in Madison. I have included her email to me, which includes her email address and telephone...
Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,I see that no one...
Welcome Crystal:  My son James is now 21 months with PRS and Marshalls. His cleft palate was repaired last February, at which time they inserted ear...
Welcome Crystal!! It is nice to see we got some action here. My son Lalo is now 21 months just like Debs son and I still have lots of questions about symptoms...
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