Welcome Crystal!! It is nice to see we got some action here. My son Lalo is now 21 months just like Debs son and I still have lots of questions about symptoms...
Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,I see that no one...
Michel:  I heard back from my resource at Weisman Center in Madison. I have included her email to me, which includes her email address and telephone...
For the first 8 monthes of Lalo's life he had many ear infections. At 9 months we had the tubes put in and since then he has not had any.Like I said before we...
Just a hello from our family to all of you members. Seems everyone has been busy busy and have not been able to post any messsages or visit the site recently....
Hi everyone, When Little Dean had his latest surgery to redo his palate the genetics team was able to get our insurance company to pay for the genetic testing...
Hi: My name is Deb and my son James is 11 months old. He has Marshall's. I have just joined and would like to talk to other people and/or parents living...
Well, we had surgery in May. Unfortunately, the doctor had to completely take apart the first palate repair and re-do it. There was a 3 milimeter gap when...
Hello to all! It has been a busy first year, many ups and downs, it has gone by so fast, it is hard to believe we are about to celebrate Lalo's first birthday!...
Hey gang...anyone out there? Just kind of seeing who is out there since this list is soooooo quiet. Hope to chit chat a little bit with you out there who have ...
Hello my name is Michel.I am from Southern California,and i'm the mother of three month old Lalo who has been diagnosed with Marshall Syndrome. After months of...
Hello everyone! My son, Dean had to have his palate completely taken apart and redone last week (wednesday) and is doing VERY well!! He still talks a bit...
Hi everyone, I haven't been here in a LONG time, sorry. Anyways, my son "little" Dean has prs and marshall's syndrome...he is 5 and in kindergarten. We are...
Hey folks! Looking at the archives it appears that this list hasn't had much activity for awhile. Anyone still out there??? I just recently joined and would ...
Hi Everyone When I went to NYC to see Dr. Shanske (peds genetics), he evaluated me, my sister and nephew. He said the difference between sticklers and marshall...
Hi everyone. I was contacted by a family that has a child with Marshall and they looking for a doctor to help there family with Marshall Syndrome. I don't know...
I would like to wish everyone a belated Merry Xmas. I hope everyone had as wonderful a day as my family did. There have been a few new members, and I would...
Hi. I have a 19 month old named Bryn. SHe was dx'd with PRS, hypermobility syndrome, OSA and CSA, Kyphosis & Lordosis, flat nasal bridge, epicathical folds,...
Ok have any of you out there thought of teaching your child Sign language? We have been working with Mackenzie for a couple of months now and she is starting...
Hi this Tony I have in the past few days received a number of requests to join the list. I don't even know how many of you are still out here but I think maybe...
Hi Tony- I have some journal articles on Marshall syndrome... I can make copies of them tonight and send them to you... then you can scan them and put them on...
Tony, I think the website looks good so far... it will always be a work in progress.... One thing I think you should add, is that Marshall syndrome involves ...
Hi everybody. I want to give all the link to the TEST site. I have not finished proofing it, and style have information to get up there but I am pretty close...
Tony- Here are some websites with info about Marshall Syndrome. I also have some medical journal articles....let me know if you need/want copies of those, or...
If you looked at the Solo Bambini Frames they will take a VERY high negative. These are the frames that wee have for Mackenzie and her RX is -16.5. They only...
Hello everyone! I wanted to take a minute to say hi. Thanks to Macenzies dad for making this group and even starting a website on Marshall Syndrome, there...
Hello everyone I just want to take a couple of minutes and wish every a happy holiday. I hope you have had a great holiday to this point and the New Year is...
We had a hearing test and ENT appointment today and got so pretty good news I guess. They want to look at Mackenzie in March to see if we can start trying to...
Hi everybody The list is start to pick up a few more members. I hope we can gather a few more but for now I have a question for you. I am putting the final...
I am working hard on getting this setup as fast as I can and hope people will find it useful. I have added 2 documents to read and posted a picture of my...
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