Hello everyone! My son, Dean had to have his palate completely taken apart and redone last week (wednesday) and is doing VERY well!! He still talks a bit...
Mandy, congratulations on the success with the surgery and speech! Wow, who would have thought that Marshalls was that rare that your son would be the only...
Hi, I was going through my old email address' inbox and I came across your email. I also live in SoCal and was diagnosed when I was 18months old by Dr. Marilyn...
Wow! A message from this list!!!! I'm from Southern California too and have been living in the San Diego area for 4 months. I'm a native of California, but...
Hey gang...anyone out there? Just kind of seeing who is out there since this list is soooooo quiet. Hope to chit chat a little bit with you out there who have ...
Hi: My name is Deb and my son James is 11 months old. He has Marshall's. I have just joined and would like to talk to other people and/or parents living...
Welcome Deb, This list gets very very little activity. Although people here call it Marshall's Syndrome, I was told by National Institutes of Health that it is...
Hi Deb & Christy (and everyone else)! We have an 8 year old son, Nathan, who was diagnosed when he was one year old with Marshalls. He has had hearing aids...
Vickie, I'm one of the fortunate ones with Marshall's that do not have severe joint issues. I would say I didn't get achy joints or soreness issues until I was...
Christy: Thanks for your reply. It is nice to know what James' condition is, so we can watch out for sight and hearing issues, but still hard not knowing...
Hi Christy and all: Thanks for your reply. It is nice to know what James' condition is, so we can watch out for sight and hearing issues, but still hard not...
Christy, Thanks for sharing. Time will tell how Nathan will do. Actually, I may have asked you this same question a year or two ago :) . . .it is nice to...
Hey! Great we have discussion here! WHOO HOOO!!! Yeah, I have some of the facial features of Marshall's. I have extremely narrow hips, very short legs, but...
Hello to all! It has been a busy first year, many ups and downs, it has gone by so fast, it is hard to believe we are about to celebrate Lalo's first birthday!...
Michel, Aaron and Lalo! :-) Sounds like you have had an incredible year! When is Lalo's birthday? Before I was diagnosed with Marshall's, I was at the National...
Hey Christy, Lalo will turn one on October 18th. It is amazing how fast time flies! We are throwing him a cowboy party, it is going to be a blast! hope you...
... birthday? ... National Institute of ... an MRI on my heart ... with Turner's ... was when they said I ... consistent with ... saw many people ... point is,...
Hi everyone: When my son James was born, then did a number of tests and determined that he had a bicuspic (?) aortic valve, but they also said that it was not...
Hey Deb, We live in Southern California, in San Pedro, south of L.A. it is cool how close their birthdays are! Although he does not have a cleft palate, it...
WOW! , ... I have lived in San Pedro back in 1996, then moved to Torrance from '96 - 2000. I now live in the San Diego area :-) Moved here 6 months ago. From...
Well, we had surgery in May. Unfortunately, the doctor had to completely take apart the first palate repair and re-do it. There was a 3 milimeter gap when...
Dear Michel & Aaron:  I am sure that I will need advice getting James to wear his glasses. I know he will need them as he often brings things very close to...
Hi Deborah, My name is Mandy and my son Dean has been wearing glasses and hearing aides since he was approximately 4 months old. Dean also did the birth to 3...
Hi Mandy:  Thanks for the info. James also has Pierre Robin and Marshalls. When did they fix Dean's palate? And how is his speech now? Have you had...
Dean's palate was repaired on his first birthday...unfortunately we had to go to gainesville and have it taken apart and redone this past may. I wish I had...
Why did they have to repair the palate? Was it repaired incorrectly the first time? Is there anything I should be looking for as far a problems. And some...
The second repair was for speech issues...the varangyl (sp?) flap was insufficient. Basically Dean outgrew his palate. Unfortunately we only had 1 plastic...
Thanks for the pictures - your children are beautiful. James has a eye doctor appointment on October 23rd, so we will see what the Dr. says, and try to get...
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