Hi everyone. I was contacted by a family that has a child with Marshall and they looking for a doctor to help there family with Marshall Syndrome. I don't know...
Hey folks! Looking at the archives it appears that this list hasn't had much activity for awhile. Anyone still out there??? I just recently joined and would ...
Yes, I am still here . . . From: MarshallSyndrome@yahoogroups.com [mailto:MarshallSyndrome@yahoogroups.com] On Behalf Of Christy Hill Sent: Saturday, July 28,...
Hi - I just joined this group. Sorry I didn't respond sooner, but I was on vacation. I'm a 22 year old girl who was diagnosed with Marshall Syndrome in 1985....
What I need to clear up is that when I was at the National Institute of Health, They diagnosed me as Marshall-Stickler's Syndrome. That the Marshall part was a...
When I googled Marshall syndrome a while back (which is how I found this group) I found a great article on Marshall Syndrome, that also talks a little bit...
My grandson was diagnosed about 3 years ago with Marshall/Sticklers Syndrome. He's only 6 years old. He lost his eyesight a year ago and has undergone 4 ...
Hi Everyone When I went to NYC to see Dr. Shanske (peds genetics), he evaluated me, my sister and nephew. He said the difference between sticklers and marshall...
Hi Mel, Stickler's Syndrome is a connective tissue syndrome. I can say that I don't have loss of hair. Heh, kind of the opposite. My skin does keloid. Christy...
Hi Mary Ann, Thanks for the URL. Interesting that they say that the skull is too small for the brain.....when I have a large skull for a woman. My hat size is...
Hello my name is Michel.I am from Southern California,and i'm the mother of three month old Lalo who has been diagnosed with Marshall Syndrome. After months of...
Hi Michel, WELCOME! Wow, I didn't get diagnosed with Marhsall's until I was 36 years old. What advantages you have to know from early years to know how to help...
Hi everyone, I haven't been here in a LONG time, sorry. Anyways, my son "little" Dean has prs and marshall's syndrome...he is 5 and in kindergarten. We are...
Hi Mandy, You say that Dean doesn't see sign language well, but what about tactile sign language? Years ago I went to the Deaf-Blind conference and it was...
Hello Christy! So sorry about the late response, our conputer has been down! anyway, it is such a pleasure to meet you, i look forward to haering from you...
Hi Michel, Glad your computer is up and running so you can participate again! I would love to get a "little" activity going here. How is Lalo doing these days?...
Hello everyone! My son, Dean had to have his palate completely taken apart and redone last week (wednesday) and is doing VERY well!! He still talks a bit...
Mandy, congratulations on the success with the surgery and speech! Wow, who would have thought that Marshalls was that rare that your son would be the only...
Hi, I was going through my old email address' inbox and I came across your email. I also live in SoCal and was diagnosed when I was 18months old by Dr. Marilyn...
Wow! A message from this list!!!! I'm from Southern California too and have been living in the San Diego area for 4 months. I'm a native of California, but...
Hey gang...anyone out there? Just kind of seeing who is out there since this list is soooooo quiet. Hope to chit chat a little bit with you out there who have ...
Hi: My name is Deb and my son James is 11 months old. He has Marshall's. I have just joined and would like to talk to other people and/or parents living...
Welcome Deb, This list gets very very little activity. Although people here call it Marshall's Syndrome, I was told by National Institutes of Health that it is...
Hi Deb & Christy (and everyone else)! We have an 8 year old son, Nathan, who was diagnosed when he was one year old with Marshalls. He has had hearing aids...
Vickie, I'm one of the fortunate ones with Marshall's that do not have severe joint issues. I would say I didn't get achy joints or soreness issues until I was...
Christy: Thanks for your reply. It is nice to know what James' condition is, so we can watch out for sight and hearing issues, but still hard not knowing...
Hi Christy and all: Thanks for your reply. It is nice to know what James' condition is, so we can watch out for sight and hearing issues, but still hard not...
Christy, Thanks for sharing. Time will tell how Nathan will do. Actually, I may have asked you this same question a year or two ago :) . . .it is nice to...
Hey! Great we have discussion here! WHOO HOOO!!! Yeah, I have some of the facial features of Marshall's. I have extremely narrow hips, very short legs, but...
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