Hi this Tony I have in the past few days received a number of requests to join the list. I don't even know how many of you are still out here but I think maybe...
Thank you Tony for signing me up for this group! I see that not many have responded to your recent message but hopefully others will. I am Denise mother of...
Hello, we are new here. We use ASL with my dd Bryn who is 19 months. She has about 20 she understands and 7 that she does on her own. SHe has fluctating...
Hi. I have a 19 month old named Bryn. SHe was dx'd with PRS, hypermobility syndrome, OSA and CSA, Kyphosis & Lordosis, flat nasal bridge, epicathical folds,...
Hi Jenna and Bryn: I am a grandmother of a 4 year old grandson named Carlos. Carlos was diagnosed with Marshall Syndrome about 2 1/2 years ago. He does not...
Hi and thank you for your response, I couldnt see the picture, very sorry. I also have a 6yr girl with PDD and SID. Autism is a very difficult thing to go...
I would like to wish everyone a belated Merry Xmas. I hope everyone had as wonderful a day as my family did. There have been a few new members, and I would...
Merry Christmas and a Happy New Year! ... everyone had as ... all. I ... in starting ... going on its ... differently, but ... change of ... attitude."...
Hi everyone. I was contacted by a family that has a child with Marshall and they looking for a doctor to help there family with Marshall Syndrome. I don't know...
Hey folks! Looking at the archives it appears that this list hasn't had much activity for awhile. Anyone still out there??? I just recently joined and would ...
Yes, I am still here . . . From: MarshallSyndrome@yahoogroups.com [mailto:MarshallSyndrome@yahoogroups.com] On Behalf Of Christy Hill Sent: Saturday, July 28,...
Hi - I just joined this group. Sorry I didn't respond sooner, but I was on vacation. I'm a 22 year old girl who was diagnosed with Marshall Syndrome in 1985....
What I need to clear up is that when I was at the National Institute of Health, They diagnosed me as Marshall-Stickler's Syndrome. That the Marshall part was a...
When I googled Marshall syndrome a while back (which is how I found this group) I found a great article on Marshall Syndrome, that also talks a little bit...
My grandson was diagnosed about 3 years ago with Marshall/Sticklers Syndrome. He's only 6 years old. He lost his eyesight a year ago and has undergone 4 ...
Hi Everyone When I went to NYC to see Dr. Shanske (peds genetics), he evaluated me, my sister and nephew. He said the difference between sticklers and marshall...
Hi Mel, Stickler's Syndrome is a connective tissue syndrome. I can say that I don't have loss of hair. Heh, kind of the opposite. My skin does keloid. Christy...
Hi Mary Ann, Thanks for the URL. Interesting that they say that the skull is too small for the brain.....when I have a large skull for a woman. My hat size is...
Hello my name is Michel.I am from Southern California,and i'm the mother of three month old Lalo who has been diagnosed with Marshall Syndrome. After months of...
Hi Michel, WELCOME! Wow, I didn't get diagnosed with Marhsall's until I was 36 years old. What advantages you have to know from early years to know how to help...
Hi everyone, I haven't been here in a LONG time, sorry. Anyways, my son "little" Dean has prs and marshall's syndrome...he is 5 and in kindergarten. We are...
Hi Mandy, You say that Dean doesn't see sign language well, but what about tactile sign language? Years ago I went to the Deaf-Blind conference and it was...
Hello Christy! So sorry about the late response, our conputer has been down! anyway, it is such a pleasure to meet you, i look forward to haering from you...
Hi Michel, Glad your computer is up and running so you can participate again! I would love to get a "little" activity going here. How is Lalo doing these days?...
Hello everyone! My son, Dean had to have his palate completely taken apart and redone last week (wednesday) and is doing VERY well!! He still talks a bit...
Mandy, congratulations on the success with the surgery and speech! Wow, who would have thought that Marshalls was that rare that your son would be the only...
Hi, I was going through my old email address' inbox and I came across your email. I also live in SoCal and was diagnosed when I was 18months old by Dr. Marilyn...
Wow! A message from this list!!!! I'm from Southern California too and have been living in the San Diego area for 4 months. I'm a native of California, but...
Hey gang...anyone out there? Just kind of seeing who is out there since this list is soooooo quiet. Hope to chit chat a little bit with you out there who have ...
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