Hi and thank you for your response, I couldnt see the picture, very sorry. I also have a 6yr girl with PDD and SID. Autism is a very difficult thing to go...
Hi Jenna and Bryn: I am a grandmother of a 4 year old grandson named Carlos. Carlos was diagnosed with Marshall Syndrome about 2 1/2 years ago. He does not...
Hi. I have a 19 month old named Bryn. SHe was dx'd with PRS, hypermobility syndrome, OSA and CSA, Kyphosis & Lordosis, flat nasal bridge, epicathical folds,...
Hello, we are new here. We use ASL with my dd Bryn who is 19 months. She has about 20 she understands and 7 that she does on her own. SHe has fluctating...
Thank you Tony for signing me up for this group! I see that not many have responded to your recent message but hopefully others will. I am Denise mother of...
Hi this Tony I have in the past few days received a number of requests to join the list. I don't even know how many of you are still out here but I think maybe...
Hi Tony- I have some journal articles on Marshall syndrome... I can make copies of them tonight and send them to you... then you can scan them and put them on...
I am defiantly working the information for that, but like you said it is Very rare and hard to find data that links the two of the together. Anything that you...
Tony, I think the website looks good so far... it will always be a work in progress.... One thing I think you should add, is that Marshall syndrome involves ...
Hi everybody. I want to give all the link to the TEST site. I have not finished proofing it, and style have information to get up there but I am pretty close...
Tony- Here are some websites with info about Marshall Syndrome. I also have some medical journal articles....let me know if you need/want copies of those, or...
Hi Tony: Thanks for the info! I read your email late so I will try calling you tomorrow after 3pm. Thanks again for all your help. My love to Mac and your...
First things first. We have an Eye Doctor appointment Duke University today. Mac had her second eye test and she did great. Her first test showed her have 20/...
Thanks for your prompt response. Carlos has the same problem "no nasal bridge". We can't seem to get him to keep his glasses on. We have even bought the...
If you looked at the Solo Bambini Frames they will take a VERY high negative. These are the frames that wee have for Mackenzie and her RX is -16.5. They only...
Hi Tony: I checked the website for the eyeglasses you referred to and it looks like they only go up to -10.00 do you know of any other websites that go up with...
Hi Melanie. I'm a grandmother of a 3 year old with Marshall Syndrome. Your not alone. Melanie <Meljbodin@...> wrote: Hello everyone! I wanted to take...
Hi Melanie Welcome to the group. When I first started this I was thinking of the parents that have to go threw not knowing or being able to find information ...
Hello everyone! I wanted to take a minute to say hi. Thanks to Macenzies dad for making this group and even starting a website on Marshall Syndrome, there...
Hello everyone I just want to take a couple of minutes and wish every a happy holiday. I hope you have had a great holiday to this point and the New Year is...
Ya each one after the first screen was done along with a surgery or EUA (exam under anesthesia). I think Mac has been under about a dozen times now. We...
Wow. Did they sedate her for each one? Nathan had the initial hearing screening in the hospital (which he failed) and two other hearing tests (one of these...
Mac had 3 ABR's now. The first was in the NICU and was normal for a new born. Then they did one with her Palate repair and showed a 50 DB deficit, so the put...
That is wonderful news. It is nice to come away from appointments with something so positive! When Nathan was about less than 2 months old, we did do an ABR...
That's great news. My prayers are with you. When my grandson had his hearing test done they had to put him to sleep in order to get an accurate result. I...
We had a hearing test and ENT appointment today and got so pretty good news I guess. They want to look at Mackenzie in March to see if we can start trying to...
Hi everybody The list is start to pick up a few more members. I hope we can gather a few more but for now I have a question for you. I am putting the final...
Thought I would send a quick email out to you. You may want to look into signing up for another Yahoo Group. I am a member of this group. It is called...
Ok have any of you out there thought of teaching your child Sign language? We have been working with Mackenzie for a couple of months now and she is starting...
I am working hard on getting this setup as fast as I can and hope people will find it useful. I have added 2 documents to read and posted a picture of my...
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