Welcome Crystal!! It is nice to see we got some action here. My son Lalo is now
21 months just like Debs son and I still have lots of questions about symptoms
and affects of Marshall Syndrome myself.I may not be able to answer all the
questions one may have but I can definitely say I'm here for support and to
makes friends with anyone me and my family can relate to. If there are any
adults with this that can share their stories or can give advice I would love
that. There are features my son has I don't know if I should worry about or not.
His small chin, underbite, the short nose bridge and the way his ears sit lower
than normal. I have only seen one picture of an adult with this syndrome, in a
medical book the geneticist showed me when he was diagnosed. Docters have said
when he is 5yrs.old they can build up his bridge. I would love to hear back on
this, I don't know if it would be necessary. I see both the good and bad in it.
Also Lalo only has a mild to moderate hearing loss but am trying to learn and
teach him to sign. Is there anyone out there that feels children with Marshall
Syndrome should learn this considering the hearing loss can be progressive? Hope
to hear back and that all are well enjoying their summer. Crystal I hope some of
the questions I have asked can help you too. I will be checking my email
often.AGAIN WELCOME!!

                                                                      Stay Cool,
                                                                             
Michel Aranda
                                                                        (San
Pedro,California)