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Hello to all!   Message List  
Reply | Forward Message #98 of 104 |
Re: [MarshallSyndrome] Hello to all!

Good morning all!   
 
My little james (almost 18 months now) had surgery last month to repair the palate and insert ear tubes.  Thankfully, all went well.  The ENT was hopeful that once we removed the built up fluid from James' ears, her would hear better.  So far, I think he hears a little better, but I am still of the belief that he has hearing loss.  More testing in a few weeks.  In the meantime, Aranda, I have a few resources, one that I have contacted this morning in Madison, Wisconsin, who is somewhat of a specialist in working with chldren that have hearing loss, just to tell her of your situation and ask for advice.  I am thinking that she will offer to help and suggest that I give you her e-mail address.  I wish I had some first hand knowledge, but it looks like you are ahead of us will be more to our benefit as we will come to you for advice.  I also have some information regarding a company that provides digital hearing devices for children that are waiting for insurance funding or public funding to provide hearing aids.  If you are interested in that information let me know.  I will get back to you once I get informaton from my contact at the Weisman Center.
 
Deb Hatfield

--- On Tue, 3/24/09, aranda.michel <aranda.michel@...> wrote:
From: aranda.michel <aranda.michel@...>
Subject: [MarshallSyndrome] Hello to all!
To: MarshallSyndrome@yahoogroups.com
Date: Tuesday, March 24, 2009, 5:34 PM

Just a hello from our family to all of you members. Seems everyone has been busy busy and have not been able to post any messsages or visit the site recently. There have been many times i have wanted to ask questions but just can't seem to find the time. My son Lalo is growing so fast. We recently had an ABR hearing test done which showed some mild to moderate loss in both ears. On April 1st we will go get fitted and pick out his hearing aids. If any one has any imput on what to look for that would be great for i have never dealt with this before. Also one of the biggest questions i have had for a long time is regarding his small nose bridge. We have met with a cranial facial team who says when Lalo is 5yrs.they can build up the bridge. Of course it will have to be done every few years as he grows. Was wondering if any of you have done this or have anything to say on this subject. Your opinons would really help me in making this huge decision. Four years will be here before we know it. It'd be great to hear from any of you. Hope all is well with everyone. MICHEL ARANDA




Wed Mar 25, 2009 2:29 pm

debhat70
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Message #98 of 104 |
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Just a hello from our family to all of you members. Seems everyone has been busy busy and have not been able to post any messsages or visit the site recently....
aranda.michel
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Mar 24, 2009
10:59 pm

Hey!!! Some action on the list! I started wearing hearing aids when I was in second grade but that was 1972 and hearing aid technology has changed DRASTICALLY...
Christy Hill
care4k9ss
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Mar 25, 2009
4:47 am

Hi Michel (and the rest of the group)- Our son Nathan has worn hearing aids since he was two months old (mild-severe in one ear - profound loss in the other)....
Vickie L. Specht
vickiespecht
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Mar 25, 2009
2:35 pm

Good morning all!      My little james (almost 18 months now) had surgery last month to repair the palate and insert ear tubes.  Thankfully, all went...
Deborah Hatfield
debhat70
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Mar 25, 2009
2:39 pm

Oh, I forgot to add that in our state, Wisconsin, there is a bill pending before the state senate to require insurance companies to cover hearing aids for...
Deborah Hatfield
debhat70
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Mar 25, 2009
4:28 pm
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