I am sure that I will need advice getting James to wear his glasses. I know he will need them as he often brings things very close to his face to look at them. He did pass his newborn screening, but I believe he is hard of hearing.
As far as his development, he seem to be ontrack for everything except speech. He is now cruising around the furniture, but not walking, and is actully a little ahead of where our daughter was at this age. He was "army crawling" at ten months, but didn't crawl "regularly until 11 months. He is working with a Birth to 3 program and they have a speech therapist come out 2x a month to see him. He is only making vowel sounds, even though he has an obturator. His therapist says that he is so focused on his motor skills that he isn't really focused on his speech, but it will come.
James is currently in continuous motion and we cannot get him to sit still, except very briefly. He is eating very well. Even when he started wearing the obturator, it didn't interfere with his eating. He has five teeth, two on top and three on the bottom. The two on top are not the middle two(unless they came in very far apart), and I am worried that he is missing some teeth, as children with James' condition are sometimes missing the "second" teeth on top which make the middle teeth come in very far apart. He sees his pediatric dentist on October 28th and she will take a small x-ray to see if all the tooth buds are there.
How did you get Lalo to wear glasses? And how do they fit? James has a very flat nasal bridge and prominent eyes, and I just don't see how glasses will work.
Ddeb.
--- On Wed, 9/24/08, aranda.michel <aranda.michel@...> wrote:
From: aranda.michel <aranda.michel@...> Subject: [MarshallSyndrome] Re: (unknown) To: MarshallSyndrome@yahoogroups.com Date: Wednesday, September 24, 2008, 1:09 AM
Hey Deb, We live in Southern California, in San Pedro, south of L.A. it is cool how close their birthdays are! Although he does not have a cleft palate, it does seem a little high, and Lalo's gums seemed thicker than normal. he didn't get his first tooth until about ten months, and now has five. Lalo's features caught the attention of the doctors immediately at birth. Flatter nasal bridge, wider set eyes, short mandible, and lower placed ears. So Chromosome and genetic tests were done right away. Both parents were also tested, but neither of us carry the gene! Lalo did not pass his initial newborn hearing screening, but returned a month later and passed. we continue to have his hearing tested regularly. It took a few tries, but an optomologist finally got a prescription, about a -20 vision, very nearsighted, but he really seems used to wearing his glasses. We cannot thank the founder of this
group, (MacKenzie's Dad!) for help with the frustrating task of getting his glasses to sit right, and stay on! Looking back its been a crazy year, lots of work but lots of fun and love too. Do you mind us askin about James development as far as speech, crawling, etc.? Michel & Aaron
WOW! , ... I have lived in San Pedro back in 1996, then moved to Torrance from '96 - 2000. I now live in the San Diego area :-) Moved here 6 months ago. From...
Dear Michel & Aaron:  I am sure that I will need advice getting James to wear his glasses. I know he will need them as he often brings things very close to...
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