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Reply | Forward Message #71 of 104 |
Re: (unknown)

Hey Deb,
We live in Southern California, in San Pedro, south of L.A. it
is cool how close their birthdays are!
Although he does not have a cleft palate, it does seem a little
high, and Lalo's gums seemed thicker than normal. he didn't get his
first tooth until about ten months, and now has five.
Lalo's features caught the attention of the doctors immediately
at birth. Flatter nasal bridge, wider set eyes, short mandible, and
lower placed ears. So Chromosome and genetic tests were done right
away. Both parents were also tested, but neither of us carry the
gene! Lalo did not pass his initial newborn hearing screening, but
returned a month later and passed. we continue to have his hearing
tested regularly. It took a few tries, but an optomologist finally
got a prescription, about a -20 vision, very nearsighted, but he
really seems used to wearing his glasses. We cannot thank the
founder of this group, (MacKenzie's Dad!) for help with the
frustrating task of getting his glasses to sit right, and stay on!
Looking back its been a crazy year, lots of work but lots of fun and
love too.
Do you mind us askin about James development as far as speech,
crawling, etc.?
Michel & Aaron




Wed Sep 24, 2008 6:09 am

aranda.michel
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Message #71 of 104 |
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Hi everyone: When my son James was born, then did a number of tests and determined that he had a bicuspic (?) aortic valve, but they also said that it was not...
Deborah Hatfield
debhat70
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Sep 23, 2008
4:59 pm

Hey Deb, We live in Southern California, in San Pedro, south of L.A. it is cool how close their birthdays are! Although he does not have a cleft palate, it...
aranda.michel
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Sep 24, 2008
6:09 am

WOW! , ... I have lived in San Pedro back in 1996, then moved to Torrance from '96 - 2000. I now live in the San Diego area :-) Moved here 6 months ago. From...
Christy Hill
care4k9ss
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Sep 25, 2008
3:15 am

Dear Michel & Aaron:   I am sure that I will need advice getting James to wear his glasses.  I know he will need them as he often brings things very close to...
Deborah Hatfield
debhat70
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Sep 29, 2008
3:26 pm

Hi Deborah, My name is Mandy and my son Dean has been wearing glasses and hearing aides since he was approximately 4 months old. Dean also did the birth to 3...
mndygianotti
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Sep 30, 2008
7:47 pm

Hi Mandy:   Thanks for the info.  James also has Pierre Robin and Marshalls.  When did they fix Dean's palate?  And how is his speech now?  Have you had...
Deborah Hatfield
debhat70
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Oct 1, 2008
4:07 pm

Dean's palate was repaired on his first birthday...unfortunately we had to go to gainesville and have it taken apart and redone this past may.  I wish I had...
Mandy Gianotti
mndygianotti
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Oct 8, 2008
2:53 am

Why did they have to repair the palate?  Was it repaired incorrectly the first time?  Is there anything I should be looking for as far a problems.  And some...
Deborah Hatfield
debhat70
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Oct 8, 2008
3:07 pm

The second repair was for speech issues...the varangyl (sp?) flap was insufficient.  Basically Dean outgrew his palate.  Unfortunately we only had 1 plastic...
Mandy Gianotti
mndygianotti
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Oct 8, 2008
7:55 pm

Thanks for the pictures - your children are beautiful.  James has a eye doctor appointment on October 23rd, so we will see what the Dr. says, and try to get...
Deborah Hatfield
debhat70
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Oct 9, 2008
2:32 pm

CONGRATS!!! on the first year...it truly is the hardest one to get through.  It should get lots easier as time goes on.  You are taking James to a pediatriac...
Mandy Gianotti
mndygianotti
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Oct 16, 2008
2:51 pm

Hi: How do the cataracts affect Dean's vision.  And if he can't go to a regular eye doctor, who will he go to when he is an adult?   James sees a pediatric...
Deborah Hatfield
debhat70
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Oct 21, 2008
5:25 pm

Hi, sorry its taken me so long to get back to you.  James is so adorable....I hate to say it, but Dean wasn't that handsome as an infant.  He has really had...
Mandy Gianotti
mndygianotti
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Oct 29, 2008
2:26 am

Hi Everyone: Mandy, I appreciate all of the information you gave me, and it sure sounds like you have a great medical team.  We live in Northern Wisconsin so...
Deborah Hatfield
debhat70
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Nov 4, 2008
9:32 pm

It sounds like we have very similar teams...ours is called the cranio-facial team so they don't just concentrate on clefts...but I think they make up the...
Mandy Gianotti
mndygianotti
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Nov 5, 2008
1:04 am

Hi: I was wondering if you could clue me in on what the recovery is like for palate surgery.  How long before he can eat, pain management, etc.  It makes us...
Deborah Hatfield
debhat70
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Nov 11, 2008
5:01 pm

The first palate surgery was easier than having a feeding tube placed for Dean.  The morning after surgery he was sitting up in an oxygen tent and playing...
Mandy Gianotti
mndygianotti
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Nov 11, 2008
10:32 pm

Hello everyone:   James is walking!!  13 months old, so just about the same time as our daughter started.  We are looking forward to our surgery consult on...
Deborah Hatfield
debhat70
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Nov 19, 2008
8:53 pm

Deb, ... This is AWESOME!!!!! I'm so happy for James, you and the family! Good luck with the surgery! Christy...
Christy Hill
care4k9ss
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Nov 30, 2008
4:46 am

Thanks for the good wishes.  I will give an update after our consult on December 12th.  Have a great day, everyone!   Deb ... From: Christy Hill...
Deborah Hatfield
debhat70
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Dec 3, 2008
5:15 pm
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