Michel, Aaron and Lalo! :-)

Sounds like you have had an incredible year! When is Lalo's birthday?

Before I was diagnosed with Marshall's, I was at the National Institute
of
Health because they thought I had Turner's syndrom. There they did an MRI on my
heart
and said my heart was perfect. No problems. They said that women with Turner's
Syndrome (only in women) always have some heart defect and that was when they
said I
couldn't have Turners and a team of other doctors said I was more consistent
with
Stickler's since they just had a recent study the year before and saw many
people
with Stickler's. Thus the Marshall-Stickler's connection. But the point is,
with the
MRI, they also injected dye, so they did a through exam of my heart and said
everything was good. So I'm not so sure if there are heart issues with
Marshalls. I
also have a kidney disease which is unrelated to Marshalls.

Christy