Hi Michel,

WELCOME! Wow, I didn't get diagnosed with Marhsall's until I was 36 years old. What advantages you have to know from early years to know how to help your child rather than going through the frustrating maze of having a child with a condition and you don't know where to start!

I've been taught that Marshall's syndrome is really a sub catagory of Stickler's.. .some will argue, but it was the National Institutes of Health that told me that it is "Marshalls-Stickler s' Syndrome." This is a connective tissue condition. I consider myself rather mild, but I have a high cleft palate, hard-of-hearing and had many years of eye problems. I lost my vision in my right eye at 17, it deteriorated over the years and last year July I had my right eye removed due to the pressure building up and the pain. IT was the best thing since the prosthesis looks WAY better than my eye. People can't tell, it is a glorious thing!

I do get joint achyness and soreness, but if I lay off the processed and human made products, then I do pretty well. There is still so much to learn about Marhsall's and I just love it when I read about someone here because there are not many of us. THis list is rather quiet and wish we had more activity. Maybe you are the spark to get it going!

I"m now 43 and have done well, I have gotten a B. S. degree in zoology, have had very exciting jobs from being a veterinary technician, to working in wildlife to being a park ranger to getting a teaching credential to teaching dog training classes to now going to work in a federal investigative job. Lalo has the ability just like many other folks.

How did you determine at such a young age that Lalo had Marshall's?? ?

Christy