Hi Michel,

WELCOME! Wow, I didn't get diagnosed with Marhsall's until I was 36
years old. What advantages you have to know from early years to know how to help
your child rather than going through the frustrating maze of having a child with
a condition and you don't know where to start!

I've been taught that Marshall's syndrome is really a sub catagory of
Stickler's...some will argue, but it was the National Institutes of Health that
told me that it is "Marshalls-Sticklers' Syndrome." This is a connective tissue
condition. I consider myself rather mild, but I have a high cleft palate,
hard-of-hearing and had many years of eye problems. I lost my vision in my right
eye at 17, it deteriorated over the years and last year July I had my right eye
removed due to the pressure building up and the pain. IT was the best thing
since the prosthesis looks WAY better than my eye. People can't tell, it is a
glorious thing!

I do get joint achyness and soreness, but if I lay off the processed and
human made products, then I do pretty well. There is still so much to learn
about Marhsall's and I just love it when I read about someone here because there
are not many of us. THis list is rather quiet and wish we had more activity.
Maybe you are the spark to get it going!

I"m now 43 and have done well, I have gotten a B. S. degree in zoology,
have had very exciting jobs from being a veterinary technician, to working in
wildlife to being a park ranger to getting a teaching credential to teaching dog
training classes to now going to work in a federal investigative job. Lalo has
the ability just like many other folks.

How did you determine at such a young age that Lalo had Marshall's???

Christy