My grandson was diagnosed about 3 years ago with
Marshall/Sticklers Syndrome. He's only 6 years old.
He lost his eyesight a year ago and has undergone 4
surgeries so far to try and regain some of his sight.
The doctor said he's able to see some kind of light
when they examined my grandson but we are not sure how
much. Please feel free to contact me with any
questions. I am copying my daughter on this
email....Thank you so much for the information.
There's so little out there on this terrible disease.
God Bless
--- camare88 <camare88@...> wrote:

> When I googled Marshall syndrome a while back (which
> is how I found
> this group) I found a great article on Marshall
> Syndrome, that also
> talks a little bit about Stickler Syndrome, it might
> be the start of
> answering your question about Marshall-Stickler.
> Hope that helps.
>
http://www.healthline.com/galecontent/marshall-syndrome
> - Mary Ann Crall
> --- In MarshallSyndrome@yahoogroups.com, "Christy
> Hill" <care4k9@...>
> wrote:
> >
> > What I need to clear up is that when I was at
> the National
> Institute of
> > Health, They diagnosed me as Marshall-Stickler's
> Syndrome. That the
> Marshall
> > part was a sub category of the Stickler's. So is
> Marshall's Syndrome
> different
> > from Marshall-Sticklers' Syndrome? OR the same,
> but in Marshall-
> Stickler's
> > Syndrome, they have the Stickler issues combined
> with the Marshall.
> >
> > Anyone know?
> >
> > Christy
> >
>
>
>


Luz