Thank you Tony for signing me up for this group! I see that not
many have responded to your recent message but hopefully others
will.
I am Denise mother of Sammi who is now 12 1/2 (if I forget the 1/2
she always corrects me!) She was also diagnosed at birth w/ Pierre
Robin, at age 2 with Sticklers and a few years ago changed it to
Marshalls Syndrome. Sammi has most of the classis symptoms (from
what I'm told) she has moderate/severe hearing loss but is very
verbal. She does not do sign - we got her first hearing aids at
seven months, early intervention at four months and she has been
doing great. She wants to meet other that are "like her" (her
words) I've not had much luck with finding others but maybe here I
will be able too. If anyone cares to chat - please feel free so we
can all share our experiences.

Thank you!

Denise Vallier





--- In MarshallSyndrome@yahoogroups.com, "Tony Sizemore"
<tsizemore@n...> wrote:
>
> Hi this Tony
>
> I have in the past few days received a number of requests to join
the list.
> I don't even know how many of you are still out here but I think
maybe we
> should just drop a short note here to say who we are.
>
> I am the father of little girl (now 2) that was born with Marshall
and
> Pierre Robin Sequenced. She was Trached at birth and had a G-Tube
(feeding
> tube) place soon after because of the size of her jaw. She has
lost her left
> eye to glaucoma and is very near sighted in the right but she is
doing great
> with it.
>
> I started this to try to help others with Marshall talk and help
each other
> with the day to day this you may have to deal with.
>
>
>
> Tony Sizemore
>
> www.tsizemore.dns2go.com
>
>
>
> "As a parent one has to be committed towards the path taken in
life in order
> to
> justify the choice of direction in our later years without
regrets."
>
> Linda Camarillo 8/5/2005
>