Hi this Tony
I have in the past few days received a number of requests to
join the list. I don’t even know how many of you are still out here but I
think maybe we should just drop a short note here to say who we are.
I am the father of little girl (now 2) that was born with Marshall
and Pierre Robin Sequenced. She was Trached at birth and had a G-Tube (feeding
tube) place soon after because of the size of her jaw. She has lost her left
eye to glaucoma and is very near sighted in the right but she is doing great
with it.
I started this to try to help others with
Tony Sizemore
"As a parent one
has to be committed towards the path taken in life in order to
justify the choice of direction in our later years
without regrets."
Linda Camarillo 8/5/2005