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MarshallSyndrome · Marshall Syndrome
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Reply | Forward Message #25 of 104 |

Hi this Tony

I have in the past few days received a number of requests to join the list. I don’t even know how many of you are still out here but I think maybe we should just drop a short note here to say who we are.

I am the father of little girl (now 2) that was born with Marshall and Pierre Robin Sequenced. She was Trached at birth and had a G-Tube (feeding tube) place soon after because of the size of her jaw. She has lost her left eye to glaucoma and is very near sighted in the right but she is doing great with it.

I started this to try to help others with Marshall talk and help each other with the day to day this you may have to deal with.

 

Tony Sizemore

www.tsizemore.dns2go.com

 

"As a parent one has to be committed towards the path taken in life in order to
justify the choice of direction in our later years without regrets." 

    Linda Camarillo 8/5/2005

 

 

 

 



Tue Oct 4, 2005 2:02 pm

mac08052003
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Message #25 of 104 |
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Hi this Tony I have in the past few days received a number of requests to join the list. I don't even know how many of you are still out here but I think maybe...
Tony Sizemore
mac08052003
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Oct 4, 2005
2:05 pm

Thank you Tony for signing me up for this group! I see that not many have responded to your recent message but hopefully others will. I am Denise mother of...
denise73066sd
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Oct 8, 2005
11:00 pm
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