I am defiantly working the information for that, but like you said it is
Very rare and hard to find data that links the two of the together. Anything
that you have that links to two would help me. I plan on cover all the
symptoms, I just have to finish gathering that data.

-----Original Message-----
From: Melanie [mailto:Meljbodin@...]
Sent: Tuesday, January 11, 2005 11:51 PM
To: MarshallSyndrome@yahoogroups.com
Subject: [MarshallSyndrome] Website




Tony,

I think the website looks good so far... it will always be a work in
progress....

One thing I think you should add, is that Marshall syndrome involves
ectodermal dysplasia...

When I saw Dr. Shanske, he told me that the only difference between
sticklers and marshalls was ectodermal dysplasia, which is why I was
diagnosed with Marshalls... He also said it is very very rare... only
about 10 families affected... He has only seen a few cases..

I know for those that have younger kids, their skin and hair may look
great.. and I really hope it stays that way... for me.. I didnt start
having problems until I was a teenager (13)...

Melanie







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