Tony,

I think the website looks good so far... it will always be a work in
progress....

One thing I think you should add, is that Marshall syndrome involves
ectodermal dysplasia...

When I saw Dr. Shanske, he told me that the only difference between
sticklers and marshalls was ectodermal dysplasia, which is why I was
diagnosed with Marshalls... He also said it is very very rare... only
about 10 families affected... He has only seen a few cases..

I know for those that have younger kids, their skin and hair may look
great.. and I really hope it stays that way... for me.. I didnt start
having problems until I was a teenager (13)...

Melanie