Hi my name is crystal, I have a three month old with PRSincluding a soft palate
cleft and Marshall syndrome with an overlapping of stickler 2,I see that no one
has posted in awhile so I hope you are still all checkin in every once in
awhile! Blake has severe hearing loss and will be getting a sedated abr to
confirm and tubes put in on the 27th of july, He also will be receiveing his
glasses this week.I saw that marshall syndrome may lead to short stature has
that been the case for anyone? He has enlarged joints as well as some things
going on with the vertabra, I was told that the overlapping of the two syndromes
is rare is that true? in info would be great!please share your experinces!!!
Thank you,crystal