This group is for support and awareness, meeting people who also have it and those who just want to learn about it, and just to talk about it with anyone. The group's website is http://www.marfanssyndrome.net . Go there and sign up for the forums and start posting there, it is much more organized. This group also has professional physicians and doctors to help as well. Admission into this group needs approval due to a rash of those stupid advertising robots.

Please Note: It is requested and highly recommended that you leave your email settings to individual emails as the group is all about helping others when they need it and as someone who has been running this group since i began it, I know that if you tell yourself you'll check it daily online, you will eventually ignore it. Please leave it on individual emails or at the very least, a daily group of emails.

Second Note: You must let me know who has the disease within your relations when joining. We had another advertiser slip in.

Third Note: I have prepared a new way to communicate for the group using Invision BB which includes and allows everyone who is registered to set up a blog. What other Marfan site offers a blog? The new forum address is: http://www.marfanssyndrome.net/boards/ . Please take the first opportunity to sign up for the new boards as they are much more enjoyable then these and best of all, contain no ads.

Thank you