Hey Mandy I am gonna set the group to where members have to be
aprroved since you keep getting people who wanna post spam in here
and leave.

Tammy

It just makes me wonder if i am overreacting when we go to the
Doctor. It seems as though it is so treated as a "normal"
illness...something that you just have to live with. I mean it isnt
as if we dont have a qualitiy of life that isnt really great. I
suppose it is just the worry. I am going to contact the other support
groups with the Idea of getting many thoughts on it from several
renowed medical schools. Between us all we should be able to get some
answers....

Manda

Alright  guys just checking to see how everyone was doing and to
start planning a night we could chat online ..maybe share more and
brianstorm what treatment options we can use.... The reason I havent
been as active is because guess what?? I CONTRACTED Mrsa...I would
laugh if it wasnt so painful. The Dr said that there was no way I
wouldnt have with JJ having it so badly..I knew this as a Nurse but
have figured that I was taking all the precautions..we have been
fighting it for two years and NEVER have i had an outbreak..when we
got tested last month I wasnt colonized..then this last week BAM! a
huge sore on my hip...lanced and a wick in place here I sit just in
wonder..

Missed you all and hope everyone else is doing better!!!
Manda

Alright  guys just checking to see how everyone was doing and to
start planning a night we could chat online ..maybe share more and
brianstorm what treatment options we can use.... The reason I havent
been as active is because guess what?? I CONTRACTED Mrsa...I would
laugh if it wasnt so painful. The Dr said that there was no way I
wouldnt have with JJ having it so badly..I knew this as a Nurse but
have figured that I was taking all the precautions..we have been
fighting it for two years and NEVER have i had an outbreak..when we
got tested last month I wasnt colonized..then this last week BAM! a
huge sore on my hip...lanced and a wick in place here I sit just in
wonder..

Missed you all and hope everyone else is doing better!!!
Manda

Your document is attached to this mail.

I have a question.  I know when my mother was told she had MRSA after
a surgery reconnecting her intestines.  We were told "this is a
hospital bacteria"  Well,  I know that over the years from all the
anitbiotics we have taken that the strain has become resistant.  I
have a friend that will not will not take her children to the
hospital to visit anyone.  In fact, she was around a group of nurses
that were joking around and swabbed a hospital bed frame and its
surroundings...she said the outcome simply astonished these nurses.
It grew just about everything.
I am really curious about what doctors are telling people.  I have
been contacting another attorney to see what can be done.  I will let
you know the outcome of that.  These hospitals and clinics and even
doctors offices need to be cleaned up and it can be done but people
dont want to shut their businesses down and neither do the big
corporations.
Have alot to say.

I just wanted to let eveyone know that Mandy the owner of the site
has been out for awhile do to puter troubles she will be back soon
feel free to post question or comments or thougt on what is going on
with you,your child or spouse that has MRSA and hopeful you can get
this group talking and helping deal with what is going on with this
illness

Tammy

Hi.  I joined this group awhile ago and posted only once because I
have been so busy getting Justin's MRSA under control.  I have read
everyone elses tales however.... now I have found out that we have
given it to a friend's child, which scares me to death.   the basics:

Justin is almost three.  has had two confirmed MRSA "boils" on his
thighs, and was colonized as well. The first one was in April.  It
was huge and had to be surgically drained with a hospital
admittance.  The second was caught earlier and treated with
clindamycin.  He has never been hospitalized before and was in
contact with no one who was infected or colonized that we know of.

He is adopted and his first 18 months were in foster care, so he may
have picked something up there but he was in my home for one full
year before he developed his first boil.

At the suggestion of an infectious disease specialist, we had
everyone in our family, grandparents, babysitter, neighbors, etc.
all cultured to see if they are colonized... no one was.  Then,
while Justin was treated with twice the normal dose of nasal
bactroban, we all had to bathe with a very strong antibacterial soap
for a week.  Then, during this same time, we "purged" the house of
any germs by cleaning EVERY SINGLE ITEM THAT JUSTIN MAY HAVE TOUCHED
with bleach.  He was then cultured again and came back negative.

three days after his last culture, my daughters had friends sleep
over.  The day after they left our house, one of the friends "broke
out" on her face... it worsened and was cultured to be MRSA.

Now, Justin has another boil and the culture is being done today.
I'll let you know.

The ID doctor had said that it was nearly impossible for someone
to "catch this" from J unless they were very susceptible and also
touching anything that may be oozing from an active infection.  He
had no sores when these girls were over.

Okay, that's it.  I have vented.

Best wishes and prayers to all,

Lisa

--- In MRSA@yahoogroups.com, "Emily" <crmommy0304@y...> wrote:
> I just found out today I have MRSA after having my urine cultured
> because of a UTI that has been ongoing since I gave birth to my
> daughter Jaidyn on June 3rd, 2004.  I really didn't get much info
> from the Dr. besides being put on a medicine I have to put up my
> nose, so I'm hoping you all can help me out a little.  How serious
> is this bacteria?  Will I have it for life?  And my main concern,
> are my kids and husband in danger?  Any info would be great.
>
> Thanks,
> Emily

I just found out that my son has mrsa. I too have many questions
about it and what I can do to help him form getting infections. He
has already had 2 surgrys to drain this infections he gets. He is
only 3 years old and this is not somthing easy to have. If anyone can
answer a few questionst that would be great

It is great to have finally found a message board for MRSA.

I have had MRSA since 12/2002.  My wife got it 01/2003.  I have had
it in both ears since 10/2003.

As far as my ears are concerned, nothing would contain it except for
zyvox. I have taken zyvox twice and each time it came back in the
ears.  Usually alot of fluid develops in the ears.  It also is very
painful. I saw an infectious disease doctor for the ear problems.
Until I was diagnosed with MRSA in my ears no infectious disease
doctor would see me. Usually the medical doctor would want a
dermatologist to look at it.  After the second round of zyvox the
infectious disease doctor told me that I was resistant to all
medication for MRSA.  She was pretty negative about my future with
MRSA.  She said I would have to get use to living with it because
there was nothing that could be done.

I also get huge boils on my face and my neck.  When this starts I
will take bactrim which makes it go away only to return in a couple
of weeks.  If I take nothing it will spread all over my body.  My
wife on the other hand only gets boils and they don't happen very
often.

Finally, my wife and I are no longer welcome around my mother or
sister.  I found this out a couple of weeks ago.  My sister has a
child so the fear is one of them will get and give to her child. I
understand this but at the same time feel like I will never see
either one again.  Anyway since I have showed signs of this no
family member or friend has come down with it so I think it is
somewhat hard to catch.

Thanks for the time to vent.  I appreciate it.

Hi,

As long as you take the full dosage of the bactoban up your nostrils
and then recieve a all clear from a new culture you will just have to
watch for other outbreaks. There are some tips further down in the
posts about keeping it from reoccuring. Also remember that you have
to take a full dose of the antibotics to clear it up other wise it
will become resisitant to them as well. Oh! you should just to be on
the safe side have your Dr order enough of the Bactoban for your
whole family to be treated. ... Hope this helped!!
Manda

I just found out today I have MRSA after having my urine cultured
because of a UTI that has been ongoing since I gave birth to my
daughter Jaidyn on June 3rd, 2004.  I really didn't get much info
from the Dr. besides being put on a medicine I have to put up my
nose, so I'm hoping you all can help me out a little.  How serious
is this bacteria?  Will I have it for life?  And my main concern,
are my kids and husband in danger?  Any info would be great.

Thanks,
Emily

I think it is because they feel it is a risk you take when you sign
the disclousures for surgery. There is a wavier that you sign and
they feel it is a risk (post surgery infection) that is listed in it.

Hi,
My name is Becki.  I lost my mother to MRSA in March of 2003.  Since
then I have done alot of research and it scares me to see what I have
turned up.
My question is this:  Why is it so hard to find an attorney that
won't take your case.  The doctors even told us she had contracted
it.  My poor mother suffered from Thurs to Friday the next week until
her heart finally gave out.
Any help will be helpful.
Thanks Becki

I think it is because Methacillin..(M in Mrsa) Is in the same drug
class as oxicillin. All of them are synthecic penicillins and because
10 years ago penicillin was used to treat EVERYTHING and abused the
staph evolved therefore creating MRSA so it could survive.

The question I have is what happens if it evolves to where cyldomicin
and Vactomincin and Bactrim no longer work...then what?

Hope that helped.
Manda

I think it is because Methacillin..(M in Mrsa) Is in the same drug
class as oxicillin. All of them are synthecic penicillins and because
10 years ago penicillin was used to treat EVERYTHING and abused the
staph evolved therefore creating MRSA so it could survive.

The question I have is what happens if it evolves to where cyldomicin
and Vactomincin and Bactrim no longer work...then what?

Hope that helped.
Manda

Hi I have a question. I am having trouble with a MRSA concept and
don't know where to find the answer. I was told I have MRSA. Staph
which is resistant to many antibiotics... I know of two other people
who have staph conditions and were told it was not MRSA because
theirs isn't resistant to oxacillin. There is no O in MRSA. Can it
still be called MRSA if it isn't resistant to oxacillin? I am
confused as their doctors both tell them that their staph is
resistant to many penicillins and antibiotics but it is not MRSA
because it isn't resistant to oxacillin? Please help........ Thanks

Ok Guys.

Had a Idea...(Thats scarey for me...look at the time!)
I have obtained a list of 25 of the best hospitals arounds I.D.
(Infectous Dieases) emails. What I would like to do is Compile a list
of standard questions about preventing outbreaks or
reoccurances..treatment..and when exactly MRSA can colonize or break
down once in a body.
I dont know about everyone else here but for us every Dr had
something diffrent to add or dispute..(everything but the bactoban
treatment that is) I feel that this would be a way to have some
standard protocal..and in turn once all the answers were complied
send the "survey" into the CDC and perhaps have it posted there.
I just wanted to know what everyone else thought about it.
Also I was thinking about writing a petition to my State Rep or
Congressman to demand that MRSA be granted more funding..or at the
least be taken more seriously. Perhaps it is just a momma's
indignation that I cant get a straight answer on how to make sure my
daughter is alright...Let me know what you think..or post the
questions you would liked asked please.

Hi My name is Manda and you can read my story in one of the first
post...First off Let me tell you how glad we are to help. MRSA is
such a lonely illness (someone told me not to call it a diease
because its a bacteria...haha) Its weird to explain it to people who
havent been affected by it. And once you see a couple of Dr's you
will realize that each one has diffrent ideas about treatment.

I am sorry to hear about your little boy. Jayden my daughter was 1
when we got the first one...and found out she was colonized. I guess
if you have any questions you can feel free to ask and we will try to
answer them. Everyone that posts here is pretty awesome.

As for the crying..my mom and dad both have been colonized..and had
sores..They say they hurt like fire. It makes me feel all the more
for my little one when she gets them. I suppose that is the
whole "out of our hands " feeling as parents or caregivers  we
experiance. Its rough. JJ has constant sinus, ear or upper
resporiotry infections which our allergist and immuneologist has
stated was because she has MRSA,its a primary infection allowing her
body to become weak against other infections. (she also gets alot of
yeast infections...Did ya'll know that MRSA can colonize there too??)

If there is anything you need to talk about please bring it to the
table..we can surely come up with some ideas to help.

Manda

Hello all.

My name is Lisa and I live in Rhode Island.  I have a 2 1/2 year old
son just recently diagnosed as both infected with and colonized with
MRSA

Justin is adopted.  I have had him for 14 months, since he was 1
1/2.  He has been sick ALOT... many colds that go right to his chest,
lots of ear infections, fevers, etc.  He also seems to have a lot of
skin problems... rashes, etc.   2 days before Easter he got a pimple
on his bum... by Easter morning it was the size of his fist... We
went to the hospital after lunch (we were visiting out of town
relatives) and they kept us for three days.  They cut and drained the
abscess and said it was a staph infection... gave him IV antibiotics
and sent us home with 10 days of oral antibiotic.  We followed up
with our own doc who said that the wound culture hadn't come back but
it didn't really matter since the antibiotic seemed to work.

1 wk after finishing meds, Justin had unexplained high fever for
several days.... 1 wk after that was clear (two weeks ago), he got
another pimple that grew quickly... also on his bum/other cheek...

a trip to the doc and a culture revealed MRSA 4+!  We got the culture
results from the hospital 1 month earlier and that showed gram
positive MRSA 4+ also.  a nasal culture revealed he is a MRSA carrier
as well...

So, antibiotics were changed to clindamycin and it cleared up... he
got off it on monday and now has two pimples I am concerned about...

his appointment with the infectious disease specialist is tomorrow...
needless to say I have spent the last 2 weeks researching MRSA and
driving myself crazy...  also... justin has cried more in the past
two weeks than in the past year!

I was thrilled to find this group and can't wait to hear from
others...

i'll keep you informed.

thanks for listening,
Lisa

Thank you for the information, Manda. I've been
washing my clothes in cold water to get the drainage
stains out of them but I use antimicrobial detergent.
I've probably contaminated the house where I rent a
room by now. I guess I'll bleach surfaces from now on.
Janet
--- MRSA@yahoogroups.com wrote:
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> There are 2 messages in this issue.
>
> Topics in this digest:
>
>       1. Keeping Infections down
>            From: "manda6488" <manda6488@...>
>       2. Find a date here
>            From: "Tenesha Brumwell"
>
<TeneshaBrumwell@...>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
>    Date: Sat, 29 May 2004 06:53:34 -0000
>    From: "manda6488" <manda6488@...>
> Subject: Keeping Infections down
>
> Ok this is just what we have been told..
>
> Wash your clothes sep. from anyone else in the house
> in hot water or
> with a antibacterial laundry soap (bleach alt.)
>
> Bedding changes everyday when your wound is draining
>
> Lysol anything that could possiablly have dampness
> from the site
> itself.
>
> We were told with Jayden to go ahead and have her
> change clothes
> after 8 hours of wearing them.So like in the course
> of a day she
> changes clothes around her naptime. Then again of
> course at bedtime.
>
>
> Towels can only be used ONCE even if you just wash
> and wipe hands on
> them. Paper towels are our new best friends..
>
> Oh and just a bit of added info. Eat a yogurt (one
> with live cultures
> in it) when you take the massive antibotic doses.
> Not only will it
> help you not get a yeast infection but it will also
> help if you
> normally get diaherra (sorry spelling is off...imma
> tired LoL)
>
> Hope this helps....
> Manda
>
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 2
>    Date: Sat, 29 May 2004  6:38 -0700
>    From: "Tenesha Brumwell"
>
<TeneshaBrumwell@...>
> Subject: Find a date here
>
>
> Find a date today
>
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Ok this is just what we have been told..

Wash your clothes sep. from anyone else in the house in hot water or
with a antibacterial laundry soap (bleach alt.)

Bedding changes everyday when your wound is draining

Lysol anything that could possiablly have dampness from the site
itself.

We were told with Jayden to go ahead and have her change clothes
after 8 hours of wearing them.So like in the course of a day she
changes clothes around her naptime. Then again of course at bedtime.


Towels can only be used ONCE even if you just wash and wipe hands on
them. Paper towels are our new best friends..

Oh and just a bit of added info. Eat a yogurt (one with live cultures
in it) when you take the massive antibotic doses. Not only will it
help you not get a yeast infection but it will also help if you
normally get diaherra (sorry spelling is off...imma tired LoL)

Hope this helps....
Manda

I've had MRSA since last December along with a variety of e-coli
from nicked intestines during major surgery. So far I get mild to
moderate fevers with almost continual wound infections. So, I am
antibiotic dependent. Rifampin worked well then less than two weeks
later I had another infection and I'm back on doxycycline. The wound
is very, very large, abdominal, open, with no dermis and I have a
congenital immune system deficiency plus diabetes so this whole
process is taking forever. I plan on going back on the K vac machine
in a couple of weeks. The first time I used the K vac, the wound was
so large that the machine drained me of blood. I had to have two
blood transfusions! The wound was 28 inches across and 10 inches
deep and now it's 20 inches long and 4-8 inches deep. The upper side
has rolled in but the skin edges aren't touching yet but it makes
dressing and bandaging difficult. Life is not fun right now but I
have no pain and my attitude is good most of the time. I think i
might be in for the long haul though. I need feedback and support
from others in similar circumstances. Should I be treating my
laundry with special soap or making other special accomodations
because of the MRSA? Thanks, Janet

Hi Ya'll,

Well Jaydens last two sores are fading a bit and (thanks to some info
I got we didnt have to have them drained) I have to agree this is all
a lot to think about. I guess what aggravates me is that there are NO
clear cut yes or no answers to this. Some Dr's belive that it can
be "cured" and then you just have to wait to see if there will be
other outbreaks. Other Dr's have told us there isnt a cure....and my
FAVORITE thing is when a Dr acts as though it is nothing. Sometimes I
wonder if I am just overreacting...I mean really..I am starting to
doubt myself when JJ gets a new sore.  The immunologist verfied
something I was trying to tell her reg. Ped. That her constant sinus
and Ear infections...along with her upper resporitory infections were
actually aided by the fact she has MRSA.

We are having more test run..and I am starting to implement the blood
type diet to see if it helps (THANK YOU TO that Wonderful Friend who
reccomended it)

I worry about her passing it on..I worry about long term effects.
I worry that the answers I get are so vauge.

I am thinking on writing up a survey to be emailed and faxed to Dr's
all around the world. I want to take the answers and compile
them...see which facts agree with which facts.. I wondered what
others thought about that Idea?

Thanks for everything you guys..
Manda

This is an email received by Maia which was for posting here but
didn't get posted somehow so I am posting it: Thanks


                 Hi Lori! Hi Manda, I made it over here! I love that
you're putting up this group!
     I've been fighting MRSA for four years and I overcame it 2 years
ago, and stopped getting infections. But I was doing a lot of things
healthwise (had some other health issues) and couldn't exactly
pinpoint was was important in the MRSA. So recently I slipped back
into getting infections again, after being on a round of antibiotics
for something else. After the antibiotics, I immediately got a MRSA
spider-bite type infection that got really bad, and was back on
antibiotics again for another month. (By the time my doctor saw it,
it had gotten better because she called in antibiotics -- she freaked
when she saw it and said if I hadn't told her before that it was much
better she would have put me in the hospital.) The last day of that
round of drugs, I started with another spider bite infection again,
but I figured out how to kill it with plant oils (posted how on my
site). That was 3 weeks ago, end of April. Since then I've had more
than 40 infections begin, and killed them all with the oils,
including one that had deep swelling. (Underlying swelling was about
the size of a golf-ball. Took 2-3 days of oil rubbing.) That one
scared me. Though the other infections I had were much worse, I just
couldn't afford to be back on antibiotics so soon.
     But I think I figured out how come I'm getting the infections!
For me it's candida-related. I had slipped into eating candida-
encouraging foods. I found studies (posted quotes on my site) saying
if you have candida you can't resist the staph. It makes so much
sense for me. I went on a candida diet 5 days ago and have gradually
improved -- I used to wake up with 4-6 angry new little beginning
infections, and more by evening. The last 2 days, I only had 2 new
little dots that don't even worry me, even though I still kill them
with the oils. All I've changed is the candida diet, and I also
started using a natural topical antifungal on MRSA prone areas --
Weleda diaper care cream, found it in health food stores. It's the
best anti-fungal I've found -- used to get fungal rashes on my hands.
Haven't had time to post this much detail on my site.
    Lori, the psoriasis, maybe it's candida-related? My yeast book
mentions psoriasis. And since I was young, I've been diagnosed with
eczema that doctors said was soap allergy, but it's not, it's fungal
even though it's on my hands. I heal it successfully with anti-
fungals. My dermatologist said people with eczema are prone to
staph...I wonder how many people have a fungal rash misdiagnosed as
eczema/allergy, and they might be prone to staph because of candida!
     Anyway, I do a lot of things that have made my immune system
stronger, all posted on my site.  So the vitamins & healthy diet
contribute to my well-being, especially the B vitamins/biotin and
Vitamin A. (Oh forgot, I'm not selling anything on my site! Just
trying to get info out there, in case it helps someone.)

site link -- http://www.geocities.com/maianwilliams/MRSA.html

     As for me myself, I have no doubt I can stop getting infections,
I did it before, just didn't know it was the candida I healed. Once
I'm healed from getting infections, I'm going to focus on clearing
the colonization. I'm not willing to live my life being afraid to
infect other people. I'm going to figure out how to make my body
inhospitable to MRSA. (Staph is universally out there, and only 30-
50% of people are staph-colonized at any one time -- so it is
possible to get rid of it.) Then I can live without being afraid of
touching people. I need to date again someday, and I need to have a
job... so I have to figure this out. And so far I'm doing great at
figuring! So cross your fingers for me OK? Cross your fingers that I
figure it out before I run out of my savings account!!
    Manda you're right this is so isolating. My family is scared to
see me (brother & wife with new baby, and an elderly aunt). I don't
know what to tell aquaintances when they ask why I'm sick, I'll scare
them. Single and can't date, can't even think about that.
   And Lori, you're right the infectious disease people don't know
much. I know more than my infectious disease guy. I asked him
questions til I knew all he knew, and I've been researching ever
since. He patronized me when I told him what I was working on. But
I'm doing better than he did at healing this -- his antibiotic way
didn't work ultimately. To him, clearing a colonization is hopeless,
but I have hope and I have a direction and some good information. So
hang in there everybody! I wish you all well. Take care, Maia

hi,
     I am currently on rifampin and just finished up Zyvox. I had
noticed that inside my left wrist I have a swollen bump the other day
and today I noticed another larger one right below the first. The new
one hurts like a bruise? Does anyone know what this is or if it is
related to MRSA? Thanks...

About a month ago I got an odd spot on my leg which was filled
with liquid. I went to my doctor and he gave me antibiotics and
diagnosed it as a staph infection. I had no clue how I got this until
I returned to work and a coworker asked me what was wrong with my leg
(they knew I went to have it looked at). When I said I had a staph
infection, another coworker piped up with "I have a staph infection,
I have the worst kind you can get." With that a bell went off and I
started researching on the internet and reading everything I could
find. Everything pointed to MRSA. I asked her many questions,
etc..., and everyone I worked with knew she had a staph infection
except me!  After to rounds of antibiotics I returned to my doctor
and because I had a new spot on my arm he was able to test that. Yes,
it is MRSA.
>       My boss told everyone you could not get it unless you kissed
her. I have found out you can get it by touching things she has
touched and at work there are all kinds of equipment and items we
share. I printed some things for my boss to read and he just denied
my claims.
>           Well, the latest antibiotic I am on is ZYVOX which
retails for $1233.95! I have just been prescribed another one to use
with the zyvox as I still am getting small spots.
>     This woman has had this infection for over 4 years and has
never treated it consistantly. Zyvox is one of the only antibiotics
which supposedly kills MRSA but my doctor says that if she has had
this so long and just lets it go and takes antibiotics now and then,
mostly she doesn't take anything, then she is breeding her own more
potent and resistant strain of MRSA to be passed on!
>    I am so aggravated as this should not happen to people and I
>have called several health depts., the CDC, OSHA, etc.. The only
thing I can do is file a workman's comp. claim if I believe I got it
from work.
>      I am so sorry you all had to go through this and continue to
do so and I am wondering is there anything we can do
together.
>To contact congressmen, change laws, sign a petition, etc... to get
some
>sort of help in stopping this epidemic. It is just unbelievable. The
health department has told me to wash my hands. Well, I am sorry but
if it invaded my body how can I wash it off! Crazy.
    I might add that I may be more susseptable (spelling?) to this as
in the Winter I get psoriasis sometimes on my hands and that would be
an easier way for the MRSA to get in though I have been told all it
takes is a paper cut or some other form of broken we could all have
and not know it.
     I just wanted to say hi to everyone and was given an invitation
to join by Manda6488. I emailed her after reading a post from her on
another internet address.
     I am happy to be able to come here as in the past few weeks I
have gone through many feelings and at present am a little lonely and
depressed. I want to believe the best and I guess I do believe that
everything happens for a reason though I wish we could all be in a
somewhat "different club" other than this one! No offense... I know I
will probably do better with a positive upbeat happy attitude and I
have been through so much in the last month and am currently at home
not working... All the best to all of you, Lori

Hi, my name is Manda and I am the proud mother of two beautiful baby
girls. Ones name is Jayden and she is two and half years old. When
she was 9 months old she was placed in a Pedatric Intensive Care unit
for a resporitory virus. During this time we belive she contracted
MRSA (noone can be for sure when or where they picked it up. I am a
Nurse, and havent been colonized..so this is the only place I can
think of besides the fact MRSA is rampant where we live).
A few weeks after getting out of the hospital she devloped a large
sore under her nose. The Dr prescribed antibotics. She got
sicker...the sore got bigger and nastier looking. They didn't quite
know what is was..but eventually it went away. This was just the
start of our Journey.

To make a super LONG story short, JJ has had eight sores drained with
wicks put in (She calls them Monster bites...and now she tries to
hide them from me when we do our nightly checkover at bath time) She
has asthma and allergies, and almost constant sinus and ear
infections. We found out that these are side effects of MRSA in her
bloodstream colonizing where it can. She is on Bactrim and we do
Bactoban therapy on everyone in the house just to be on the safe
side. Today her ID Dr also recomended taking "bleach baths" (Two
teaspoons of bleach to every three gallons of water) to cleanse her
skin. This we will have to do twice a week.

Because of her outbreaks she cannot attend daycare..simply because
she is on so many meds, and I am terrified that anyone else who
watches her wouldnt know the signs to look for when a sore
develops...or when she gets sick from the side effects of the MRSA in
her blood.

Doing research I realized that there was a TON of information that
her Doctors didnt know about...or didnt subscribe to. Its going to be
a long road to recovery and until the CDC takes this seriously it
looks like it may be some time before a serious cure is discovered.
I dont want a pause during outbreaks...I want to know with out a
shadow that not this year or the next ten years my baby will not have
anymore scars..or illnesses caused by  the MRSA "Monster" as she
calls it.

I dont know what else to write at this point. I have alot of
research..and alot of links and I know others out there do to. And I
know that it helps to know we arent alone..and that there are others
waiting for a cure as well.

Thank you...
Manda