It just makes me wonder if i am overreacting when we go to the
Doctor. It seems as though it is so treated as a "normal"
illness...something that you just have to live with. I mean it isnt
as if we dont have a qualitiy of life that isnt really great. I
suppose it is just the worry. I am going to contact the other support
groups with the Idea of getting many thoughts on it from several
renowed medical schools. Between us all we should be able to get some
answers....

Manda