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Dealing with being a "Cootie Monster"   Message List  
Reply | Forward Message #2295 of 2520 |
Re: [MRSA] Dealing with being a "Cootie Monster"

Are you convinced yet?

--- On Tue, 3/31/09, Tracy <hemphottie1970@...> wrote:

From: Tracy <hemphottie1970@...>
Subject: [MRSA] Dealing with being a "Cootie Monster"
To: MRSA@yahoogroups.com
Date: Tuesday, March 31, 2009, 3:46 PM












I'm colonized and have been since 1991 when infected at Dunn
Memorial in Bedford IN after what was supposed to be "routine" knee surgery. I
have come close to death 3 times now, and narrowly escaped amputations twice. I
am permanently scarred badly on my right leg and I will have problems with my
knee for the rest of my life cuz of it. My last battle was a year ago and
removing one of my eyes was discussed as a possibility to keep it from going to
my brain and killing me. I plucked my eyebrows and within a week I was in the
hospital unrecognizable, I looked like a scene from Rocky due to the swelling.
My docs were scared I wasn't going to make it this time. Friends and family were
scared to come visit me and many chose to give support online rather than show
up at the hospital. When talking to the program director at my college about why
I had dropped out for a semester I had to explain to him what MRSA was cuz he
was clueless. He stepped
back from me with visible fear and asked if I should be in his office or on
campus. It freaks people out and I feel like a walking threat to people's lives.
I have never passed it on to my knowledge though. I have also begun to wonder if
it was what knocked me out of a job I had been offered. I don't care how much I
educate someone about it, I'm still viewed as being different now. It has
affected me psychologically greatly to go through all this. After this last
battle I don't feel the same inside anymore. I already have issues with C-PTSD
and it has made it worse. I feel like I am in an everyday battle against an
unseen army that is constantly trying to kill me. How many more times will I be
able to win the battle and stay in one piece and alive? How much more can I take
mentally?



I would like to hear from people who have been colonized and have dealt with
this repeatedly. How are you treated socially now? How are you coping mentally?































[Non-text portions of this message have been removed]




Wed Apr 1, 2009 4:04 pm

mrsasucks
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Message #2295 of 2520 |
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I'm colonized and have been since 1991 when infected at Dunn Memorial in Bedford IN after what was supposed to be "routine" knee surgery. I have come close to...
Tracy
hemphottie1970
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Mar 31, 2009
3:49 pm

Hi Tracy, What a story. I am so sorry for all of your suffering. I am a nurse who has been fighting MRSA and it's side effects for over 4 years now. I...
Nova004@...
nova004amal
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Mar 31, 2009
10:58 pm

Hi Tracy, it's Melissa again. I know what you mean about the PTSD. I have it from my previous bouts with MRSA too. I am changing careers from a physical...
Melissa
melissa_78231
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Apr 1, 2009
1:27 pm

Sorry for taking so long to get back to you. I have C-PTSD from multiple traumas over many years. I'm a tornado survivor from the Super Outbreak of 1974, abuse...
susan parker
hemphottie1970
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Apr 10, 2009
5:03 am

HI, I understand what you are going through. I have a close family member who has distanced herself from me. I have a website: www.MRSAsupportgroup.com....
Carrie Perez
vertsk8r24
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Apr 1, 2009
2:05 pm

Tracy-- I have PTSD after my battle with MRSA which I acquired after a hysterectomy at Kettering Hospital in Kettering, Ohio where I actually worked as a...
Caryl Carver
mrsasucks
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Apr 1, 2009
4:19 pm

Are you convinced yet? ... From: Tracy <hemphottie1970@...> Subject: [MRSA] Dealing with being a "Cootie Monster" To: MRSA@yahoogroups.com Date: Tuesday,...
Caryl Carver
mrsasucks
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Apr 1, 2009
4:22 pm

If you get your doctor to do a vitamin D test, please be sure he uses the right one, as many don't. You should as for a 25-hydroxyvitamin D test, also called...
Patti Juengst
patimus98
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Apr 3, 2009
1:13 pm

what is the deal with all the liquid that seeps from one little tiny little bump?   My Lord's blossom And the day came when the risk to remain tight in a bud...
blossom
cyberdove
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Apr 7, 2009
3:34 am

Hi Susan, I don't believe that people have to stay colonized forever. I admit I asked my id doc this question and I did not get a straight answer. His reply...
Melissa
melissa_78231
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Apr 10, 2009
1:36 pm

Your doctor does not have any research because there is not any large study research out there. The best IDD docs know that re-colonization is likely....
Carrie Perez
vertsk8r24
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Apr 14, 2009
8:42 am
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