Just thought that we would send our hellos to everyone and see how things are going these days. I know that a change in the weather can make our kids do funny,...
Hi All, I've just been to Brisbane for Den's check-ups. He saw the neuro on Tuesday,and the orthopod on Wednesday. Tuesday pm, I picked up his back brace and...
I am Alison, and my daughter Niamh has MPEI. I have been meaning to join the group for ages but have just never got round to it until I got the invite from...
Hi Alison, Congratulations on your baby. I remember how hectic things were when I had Bronwyn, I actually don't remember much of that first 12 months. I didn't...
Hi, This is Rachel, I am Micah's Mom. He is now about 16 months old. I was glad to hear about Denis getting a new chair and the brace. Micah is getting what...
Hi All, Niamh has also got a back brace but it is very new - last Friday actually, but she is only wearing it at nights at the moment. It covers her torso as...
Hi Alison - nice to see you here! And hi to everyone else too. We have been looking for a car seat for Maddie for a while now - she weighs 11kg & is on the...
Hiya, I'm still gradually learning about the other kids on here too. i have invited another little boy from the UK called Dylan (who is 6), plus a family from...
Hi Nikki & all, Car seat The axiss car seat cost £179 and is not a special needs one but it is very new on the market, so you may well not have come across it...
Hi Rachel and everyone, I was really thinking about the comment about how our kids look so similar and it's very true. Rylie has unnaturally long eyelashes (I...
Hello everyone! I have been pondering all the info that has been posted up here lately and it has been very good to hear what is working for your children. We...
Hi Laura - really sorry to hear your sad, sad news - I know what you are going through as I also suffered a miscarraige almost a year ago (when Maddie was 5...
Hi Rachael, Denis weighs 20kg, so about 44 lbs( I think) and is about 110 cm tall, about 3 ft 8 in. He and Bronwyn are the same size, but they have never been...
Hello Everyone, Thank you all very much for your kind words of sympathy and also of encouragement. We are so heartbroken that this happened but like our OB...
hello everyone, sorry about not leaving any message only harveys been in and out of hospital, his seizures are good theyve gone milder and dont last as long...
Hello everyone! We had our wopping baby boy on October 24th at 12:32pm. I had a 7 hour labor I delivered naturally without medication, not even a heplock! It...
Rachel! Congratulations on the birth of Issac! Wow, you are a trooper - no meds for pain? Yikes. I am certainly not that strong. I'm so happy to hear...
Hey Rachel - big congrats on the birth of Isaac!! Well done for forgoing the pain relief - I'll wait & see if I can bear the pain in Feb!! Keep us updated...
Nikki, We have to help Micah with a supository every day, if that doesn't gross you out. We have had him on all kinds of medicaqtion to help him have a BM, yet...
Hi Guys, I know this sounds like a weird one, but Niamh used to be very constipated all the time until some genious at GOSH came up with this. They put her on...
Hiya Satnam, Just wanted to say welcome to the group & glad you could join us - I find it easier to keep up with everyone through this site than with ...
Hi all…. For the constipation issue we used a product called “Kiwi Crush” I don’t know if it is available over there but it is a Kiwi Fruit pulp (fine...
Hi Satnam, Welcome. I've heard that you are also from Canada. I think we're the only two moms from Canada and I would love to hear from you. I live ...
hi everyone hope alls ok,sorry i havent a message for every member but were up to our eyes in work and the dreaded decorating/electrics/carpets and seeing the...
Hi Joanne. The feet turning is very normal in disabled kids. Denis wears AFO's( Ankle Foot orthotics), I put them on him for a couple of hours twice a day. I...
CHEERS MARGARET FOR THE INFO YOU GAVE US ITS REALLY HELPFUL.HARVEY IS DUE TO GO TO THE PHYSIOTHERAPIST SOON SO WE WILL SEE WHAT THEY SAY. XJO &DAVE&HARVEYBOOX...
Hello, Just thought that I would let you all know how the Micah-moo is. We have been giving his rescue meds once a day since Friday. I keep calling the Doctor...
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