I just wanted to drop a quick line to say that Alexander will soon have another brother or sister! I was completely suprised yesterday to find that I am...
Congrats on your wonderful news Vanessa! What an amazing thing to have another little one! I can't imagine what I would do if I were pregnant right now. I hope...
Hey, big congrats Vanessa - and welcome to the club! I am expecting my third too - Maddie will be 2 and three quarters and tyler will be 14 months when our new...
Hi everyone,  Just thought I'd check in and see how everyone was doing, and give a little update on Maddie as well. I can't believe how little time Steve...
Hi Nikki, Thanks for filling us in on your news. It's lovely to hear Maddie is getting on so well and has started school! What is Maddie's caring bridge site...
I too an expecting – 17weeks due in March Isaak has just gone 7 and Torie will be 4 in Dec we didn’t plan to have our kids so far apart but alas life has...
Congratulations - that's amazing news! Have you mentioned this to the group before? It's just that I have a feeling I may have confused who in the group is...
Congratulation to every one who is expecting in the group ... From: nikkie tatton <nikkietat@...> Subject: Re: [MPEIparentsupportgroup] Isaak will have...
Hi, yes, congrats to everyone who is expecting. Kristan is stable and doing well, just got over some stomach virus/cold, no seizures since July 30 and she is...
Hi everyone, I really have not written much, at least not recently. I wanted to share some good news about Justin. He went to Boston Children's Hospital...
Hi Rebecca, that is great news about Justin doing so well. My daughter Kristan who will be six next month is on just Keppra and is finally stable and doing...
Wow. Thanks for sharing that with us, Rebecca, and that's good news for Justin. The Keppra Topomax mix was really good for Rylie as well, at least for a...
I don't have any stats nation wide, but he seemed to concur that a year ago there were only about 90 something world wide.  The doctor's name is Sanjeev...
Hi all again. I just received an email from the Genetic Counselor Research Coordinator out of Boston. She was given my info to contact me yesterday after...
Hi Everyone I just wanted to add my thoughts on the genetic thing. Personally I don't think it is genetic. Harry has three siblings who are fine, molly has two...
Denise - I am sorry to hear you are finding it so hard without Harry. I really can't imagine what you are going through but I am sure it must be devastating....
Hi Alison. That sounds like what the doctor in Boston was explaining to me. My understanding is the same. Justin's doctor told us that pursuing genetic...
Denise, My heart aches for you. I know that these precious children are such a gift and become our whole life. I am sure that the void of your precious Harry...
Hi Alison, Thanks so much for that. I actually did misunderstand that genetics does not necessarily mean heridity in the Mendalian sense (if I"m spelling that...
Alison, I also wanted to thank you for writing about the gene thing. It is nice to have someone write it down in terms so I can understand some of what is...
Hi All, The last 2 times Den has seen the Orthopeadic Surgeon, he has discussed Den having spinal fusion for his scoliosis. His scoliosis has gotten to the...
Margaret – give us a ring if you need a chat our ph number is below – Isaak had major spine surgery in May – best decision we ever made!! Well we can say...
Hi Margaret, Really good luck with Denis's surgery - I hope it all goes well and improves his comfort. Please can you explain what spinal fusion is? Do you...
Hi Alison no need to apologise for asking lots of questions if we can’t ask them of each other who else will know!!! Sorry I have a bit of trouble tracking...
Hi Sarah, Wow Sarah - poor Isaak but thanks so much for all the information. My Daughter is Niamh (pronounced Neeve) and she turned 4 this summer. We live just...
Hi Margaret Give Den hugs and kisses from his friends in the uk. I will ask Harry to watch over him during his op and as he recovers. Thanks for your kind...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
