When Isaak was about 2 yrs he was 1.5 kg over the 95 th percentile for weight !!! and had reached the weight limit for all standard car seats on the market and...
Just thought that I would let you all know that we are now Officially part of the MPEI family. Our Neurologist, Dr. Joshi at the University of Michigan is...
Hi Rachel, I'm very sorry that MPEI is the confirmed diagnosis for Micah. I know you suspected he had this horrible condition but held out hope that he did...
Hi everyone, Just wanted to make sure I haven't missed sending out that article to anyone who asked for it. Please let me know and I'll get it to you tout de...
Hi Nikki, Did someone end up sending you a copy of this article? It is the one you were referring to where their might have been a familial connection. I've...
Hi Rachel, I too am sorry that Micah's diagnosis has been confirmed, but am so glad that you found us & can gain support from this wonderful group of people. I...
thanks for the email sorry its took so long to contact everyone.we have a grandson his name is harvey he is 5 months old to day & has been diagnosed with...
Hi Joanne, Thanks for telling us about your Harvey boy. We know first had how hard it is to figure MPEI babies out. You mentioned Harvey having a tummy ache,...
Hi Joanne, You've found a soft place to fall here with the rest of us. Please feel free to ask any questions and I'm sure all of us will do our best to help...
Hi Joanne, I also wanted to welcome you to this group - I'm sad you had to find us, but very glad you did. You'll find a lot of support from other parents...
Just thought that we would send our hellos to everyone and see how things are going these days. I know that a change in the weather can make our kids do funny,...
Hi All, I've just been to Brisbane for Den's check-ups. He saw the neuro on Tuesday,and the orthopod on Wednesday. Tuesday pm, I picked up his back brace and...
I am Alison, and my daughter Niamh has MPEI. I have been meaning to join the group for ages but have just never got round to it until I got the invite from...
Hi Alison, Congratulations on your baby. I remember how hectic things were when I had Bronwyn, I actually don't remember much of that first 12 months. I didn't...
Hi, This is Rachel, I am Micah's Mom. He is now about 16 months old. I was glad to hear about Denis getting a new chair and the brace. Micah is getting what...
Hi All, Niamh has also got a back brace but it is very new - last Friday actually, but she is only wearing it at nights at the moment. It covers her torso as...
Hi Alison - nice to see you here! And hi to everyone else too. We have been looking for a car seat for Maddie for a while now - she weighs 11kg & is on the...
Hiya, I'm still gradually learning about the other kids on here too. i have invited another little boy from the UK called Dylan (who is 6), plus a family from...
Hi Nikki & all, Car seat The axiss car seat cost £179 and is not a special needs one but it is very new on the market, so you may well not have come across it...
Hi Rachel and everyone, I was really thinking about the comment about how our kids look so similar and it's very true. Rylie has unnaturally long eyelashes (I...
Hello everyone! I have been pondering all the info that has been posted up here lately and it has been very good to hear what is working for your children. We...
Hi Laura - really sorry to hear your sad, sad news - I know what you are going through as I also suffered a miscarraige almost a year ago (when Maddie was 5...
Hi Rachael, Denis weighs 20kg, so about 44 lbs( I think) and is about 110 cm tall, about 3 ft 8 in. He and Bronwyn are the same size, but they have never been...
Hello Everyone, Thank you all very much for your kind words of sympathy and also of encouragement. We are so heartbroken that this happened but like our OB...
hello everyone, sorry about not leaving any message only harveys been in and out of hospital, his seizures are good theyve gone milder and dont last as long...
Hello everyone! We had our wopping baby boy on October 24th at 12:32pm. I had a 7 hour labor I delivered naturally without medication, not even a heplock! It...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
