hi everyone hope alls ok,sorry i havent a message for every member but were up to our eyes in work and the dreaded decorating/electrics/carpets and seeing the...
Hiya Satnam, Just wanted to say welcome to the group & glad you could join us - I find it easier to keep up with everyone through this site than with ...
Hey Rachel - big congrats on the birth of Isaac!! Well done for forgoing the pain relief - I'll wait & see if I can bear the pain in Feb!! Keep us updated...
Hello everyone! We had our wopping baby boy on October 24th at 12:32pm. I had a 7 hour labor I delivered naturally without medication, not even a heplock! It...
hello everyone, sorry about not leaving any message only harveys been in and out of hospital, his seizures are good theyve gone milder and dont last as long...
Hello everyone! I have been pondering all the info that has been posted up here lately and it has been very good to hear what is working for your children. We...
Hi Laura - really sorry to hear your sad, sad news - I know what you are going through as I also suffered a miscarraige almost a year ago (when Maddie was 5...
I am Alison, and my daughter Niamh has MPEI. I have been meaning to join the group for ages but have just never got round to it until I got the invite from...
thanks for the email sorry its took so long to contact everyone.we have a grandson his name is harvey he is 5 months old to day & has been diagnosed with...
Just thought that I would let you all know that we are now Officially part of the MPEI family. Our Neurologist, Dr. Joshi at the University of Michigan is...
Hi Nikki, Did someone end up sending you a copy of this article? It is the one you were referring to where their might have been a familial connection. I've...
Hi Everyone, Hope everyone is doing well and is looking forward to the fall (or summer for some!). I just wanted to let everyone know that I have a copy of an...
When Isaak was about 2 yrs he was 1.5 kg over the 95 th percentile for weight !!! and had reached the weight limit for all standard car seats on the market and...
I was wondering if any of you have had any really good methods of working with your babies/ children. We do have a little room and some toys that he can lay on...
thanks for your question and I can only say what we have been told don't forget we are in little old NZ and it took 2 months to find out what condition Isaak...
Hi Rachael, Glad you're feeling better, and Micah is still eating. What meds is he on? Getting the correct dx is hard with these kids, you only have to look at...
We are converting our "play room" little extra lounge part into a bathroom then adding on a bedroom then our exisiting lounge becomes our playroom and we add...
Hi All, Sarah, we are in the middle of renovations too. We converted the boys bed room into a bath room for Denis, nothing flash, just lamipanel on the walls...
Hey everyone, This is a very personal question to ask but I was wondering if anyone was taking any medication at all during their pregnancies? I have ...
Hi Everyone, All still the same here, which is good. The school have offered Denis more aide time so I've got to talk to them and see how much longer he can go...
Hi everyone, I just have a quick question about car seats. Maddie has outgrown hers, & we need a forward facing one. However, none of the ones we have seen...
BEFORE you read this you will need A comfortable chair A drink of your choice a period of time NOT to be interrupted - possibly after everyone is in bed. or...
Yesterday (24th July 2007) Bianca gave us a big scare. When her mother went to check on her early morning she found that she was blue in the face and scarcely...
What gives this week? We have watched Micah seize quite a bit this week. We have had to give him rescue meds almost every day. It makes me crazy to hear that...
Hi All Margie is Bianca okay? These kids are sent to keep us on our toes. How does Liezel manage both of the kids when Bianca is hospital? I used to Bronwyn...
Nikkie! I keep trying to get a message through to you but it keeps getting sent back as undeliverable.... As per treatments, Rylie is on Levitracetam and...
Hiya, I don't want to put a big long post on here, as I know some of you already know Maddie's story. I'll just put a quick update. Maddie is just over 1 year...
Micah is a year and one month. He has had seizures since birth and nothing has gotten them under control. Out of all the testing done the MRI and EEG are the...
Hello everyone! Just thought that I would let you all know how things went in Ohio. We were admitted on Tuesday the 10th of July. Micah was having a tremendous...
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